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Everything posted by Louisa

  1. Sorry, click too fast, my personal email account; Louisalaw@gmail.com Thanks
  2. Hi My son is graduating in June and will leave his therapeutic school where a psychiatrist is on site. So I need to find a new psychiatrist for him and would like to find an integrative psychiatrist. If you know of or had good experience with any good integrative psychiatrists in New Jersey, New York or Connecticut, I greatly appreciate that you could give me their names. If you prefer, you could send the names to my personal email account. Thanks so much
  3. Hi Three years ago, due to his paranoia, my son was placed out of district in a therapeutic school where psychotherapy, process group, and psychiatric support are given inside the school with a classification of Emotional Disturbance in his IEP. He has been in this therapeutic school for more than 2 years and now he is 18 years old and repeating his 12th grade due to insufficient credits for graduation on time. He is expected to finish all his high school credits and to leave the school in summer. For the meanwhile I need to look into whether he should be placed in some training schools and hold onto his high school diploma for more support from the special education system or if he is ready for college. Currently, his paranoia is almost none but his major challenge is OCD which interferes him with being on time to school significantly. A few months ago he had a psychological test from outside and was found to have ASD. My question is: IS IT worthy to make a request to his IEP team for a change of his classification of disabilities from “Emotional Disturbance” to “Autism”. My concern is just the stigma associated with "Emotional Disturbance" may go with him wherever he goes in the future (or as along as he has IEP!). Thanks
  4. Does anyone know any psychiatrists in New Jersey who is specialized in ASD with OCD/anxiety? You can send me the information to my personal email account: louisalaw@gmail.com. My son is 18 years old with ASD. His current challenge is severe OCD. Thanks so much. Louisa
  5. I found Mary Reed from Safe Harbor website. I filled in the questionnaire she provided regarding my son’s condition, mainly about his OCD. It then came out with some supplements suggestion, and one the them is Evening Primrose Oil. Does anyone know or have experience on its effects on OCD or anxiety? Thanks Louisa
  6. check the following link http://www.anh-usa.org/an-update-on-our-recommended-supplement-companies/ My son takes a lot of supplements which are from Pure Encapsulations
  7. Thanks for taking time to respond My son takes B6 50mg x2 now and will increase the doze in a couple of months. What was the doze you son started off and how long did you start see the effect? Do you remember what was the reason why your psychs said anafranil was the WRONG medication for your son? If I am right, anafranil is the only medicine that is used to specifically treat OCD. My son has taken Zoloft for 3 years, which initially was for his “atypical depression” labelled by his doctor (although we did not see any depression in him). After 1 year, when his OCD emerged and increased, it became the medicine for his OCD although I do not feel it is really helping him at all. However, since we have been trying to work on reducing Zyprexa in these two years, so we just leave Zoloft alone. In fact, my son had genetic test with GenoMind, which suggested Zoloft was not a good match for my son. The following are supplements my son is now taking B6, B12 (liquid), Niacinamide, VitC, NAC, lithium orotate, D3, fish oil, CurcumaSorb Mind, probiotics (mixed strain), Zinc. How did your son do with the supplement he is taking? How did you come up with these supplements for your son’s OCD?
  8. Hi, My son used to have mild OCD. But last summer, his OCD increased significantly. Dr. T found he had PANDAS and prescribed him with various kinds of antibiotics, which, unfortunately, made his OCD worse. Later, the Cunningham test showed he had autoimmune disorder and was prescribed with Prendisone, which even made his OCD much worse. So we stopped all these medicine. And later, with increased probiotics, his OCD was relieved. Although it was still significant, it was within a tolerable level. Last week without a clue again (or maybe due to increased social anxiety in school), his OCD increased back to the high level like that in summer. So his school psychiatrist wanted to increase his medicine for OCD because he has been very late for school due to OCD during morning routine. His current medicine for OCD is zoloft 200mg. He is also taking zyprexa for his paranoia. Personally, we do not want to add any medicine. He has been seeing Dr. Greenblatt, an integrative psychiatrist, who give him several supplements. His paranoia has been reduced to minimal and zyprexa reduced from 30mg to 10mg in two years since he started taking the supplements. A recent Kryptopyrrole test indicated he had elevated pyroluria and Dr. Greenblatt has just prescribed him with Zinc and Vit B6, hopefully to reduce his anxiety. We would like to see how the new supplements work before changing his medicine. Anyway, his school psychiatrist proposed three options for us to consider for treating his OCD 1. to increase zyprexa from 10mg to 15mg in order to boost up the effect of zoloft. 2. to add another SSRI, such as Prozac, on top of 200mg zoloft 3. to add another tricyclic , such as Anafranil, on top of 200mg zoloft. Any feedback for the medicine options and any suggestion relating to what happened to my son's OCD are greatly appreciated Thanks for your time Louisa
  9. Can anyone share their experience in IVIG? My son did not respond well with antibiotics and prednisone for his OCD. Dr T. and my son's psychiatric nurse practitioner suggested IVIG may be the next step. Thanks
  10. Can you give me the full name of Dr. K and Dr. L?
  11. My son had seen Dr T for 3 visits. With all the extensive blood work and expensive autoimmue test, he seemed to be confident in getting the right treatment for my son. Unfortunately, the antibiotics and the prednison later on made his OCD even worse. Dr. T and his office responded to our concerns about my son's negative reaction to medicine very late. For one or two times, they simply did not respond at all. So we stopping going.
  12. Anybody knows of good intensive OCD program for late teens in new york/ new Jersey areas?
  13. Does anybody know what the following tests do and how they can help in reference to OCD. Kryptopyrrole test Genetic test with Great Plain Lab Micronutrient test by Spectracell Food Allergy test by US BioTek Neuro-Biogenic Amines ​Thank you
  14. I hope it is not too late to respond. Dr. James Greenblatt is an integrative psychiatrist in Waltham, 20 minutes from Boston. He referred my son to several tests, including food sensitivity, ION test, Organic acid test, Gluten and Casein Peptides. He prescribed different vitamins and supplement for my son who made tremendously improvement in his paranoia since then. You can google him to locate his office and telephone number.
  15. Thanks for your information My son has Sjogren's AB SS-A negative and SS-B positive. Just found out the research paper (http://www.ncbi.nlm.nih.gov/pubmed/25735642) with conclusion as below The presence of anti-SSB, without anti-SSA antibodies, had no significant association with SS phenotypic features, relative to seronegative participants. The solitary presence of anti-SSB antibodies does not provide any more support than negative serology for the diagnosis of SS. This serological profile should thus be interpreted cautiously in clinical practice and potentially eliminated from future classification criteria.
  16. Nancy The author of the book is Kenneth Bock, not Steven Bock. Are they related? Did you refer to Kenneth Bock or Steven Bock in your reply?
  17. Please share your experience if you or your child has ever worked with NYU Child Study Team in Hackensack NJ for OCD?
  18. My son was on Amoxicillin, Augmentin, Clindamycin and Rifampin for 10 days in different times, and on prednisone for 10 days after the result was positive in Cunningham tests (July 2016). For some reason, his OCD became much worse than before the treatment. If it is due to a herxheimer reaction, should I have seen at least some improvement within 10 days of time?? During my 3 visits, Dr. T was very nice to spend time answering all my questions and seemed very confidence in being able to help my son. Unfortunately with all the medicine, his OCD was worse. Between the visits, I have called his office a few times about my son’s adverse reaction to the antibiotics and prednisone. They were either very late to respond or not responsive at all. However, when I asked to set up a follow up appointment, they replied right away. I know Dr. T is a very knowledgeable in treating PANDAS, but with my experience with his office, I am not sure if I want to go back. I would want to find an integrative doctor who also knows how to support my son with natural supplements in addition to medicine so that the side effect of the medicine can be minimized. Did anyone work with Dr. Steven Bock, an integrative LLMD in New York? I am thinking to get consultation with him. Although my son's blood tests prescribed by DR. T showed negative in lyme infection, I am not sure if quest diagnostics was able to accurately test for his lyme infection and if his herxheimer reaction was due to lyme disease.
  19. My son is 18 years old and has Aspergers. here is the problem for his OCD using ERP treatment During ERP session, the therapist will have the patients exposed in a situation where they feel anxious and show OCD. I can understand how the exposure will help those patients with OCD, like washing hands, touching things, or just intrusive thoughts. But my son’s OCD is displayed when he is getting changed (to repeatedly make sure his certain body parts are covered and endlessly thinking about that). So if he is in ERP, that means the therapist will see him getting changed while working with him??? I just do not know how ERP would work that way. Does any one has the experience with working with a therapist using ERP for such “private” OCD?
  20. Thanks for the information which really fit into my son's situation. I feel like I am seeing a light again. His Lyme and Babesia tests were negative with Quest Diagnostics. Definitely I will explore getting the Lyme test again with Igenex. Do you know how much they charge for the test? Does anyone know of good integrative LLMD in new Jersey or nearby states. Thank you
  21. Thanks for the information which really fit into my son's situation. I feel like I am seeing a light again. His Lyme and Babesia tests were negative with Quest Diagnostics. Definitely I will explore getting the Lyme test again with Igenex. Do you know how much they charge for the test? Does anyone know of good integrative LLMD in new Jersey or nearby states. Thank you
  22. My son has had more than 15 session in CBT treatment which mainly involves talking, and the effect was none to minimal. I am looking for a therapist who can do ERP. I live in northern new Jersey. Does anyone know of good therapists with ERP specialty in new york and new Jersey. My son's OCD is severe and he does not seem serious about fighting his OCD. I am not sure if he is a good candidate for ERP treatment then Your information and advice is appreciated. Louisa
  23. Hi My son was taking inositol for his OCD as recommended by his integrative psychiatrist this April, but his OCD became a little worse. He is also taking a lot of other supplements,including lithium orotate. I have just learnt from different website that Inositol cannot be taken together with Lithium, as it seems to block its action. Has anyone ever heard of that? Please share your experience in using inositol for OCD. Thanks Louisa
  24. His lyme test was done in Quest Diagnostics and showed negative. So you suggested we should do it again through Igenex? He also had high level of Sjogren's AB, which Dr. T noticed but did not think he needed to do anything about it yet. Do you know anything about that? I am also thinking whether his OCD and high level of strep A antibodies in fact are independent in his case. Could it be? His IGA and IGG level were normal except for IGG subclass 3 a little high. We are just too scared to let him try different antibiotics or to try for a longer time because he responded so badly every time and you see his OCD deteriorate with the treatment. How long do you think is sufficient to see the effect? Dr. T also mentioned IVIG. If he does not respond to prednisone, would IVIG be helpful? I learnt about IVIG. Although the literature and patients feedback showed it helps most of the time and does not have terrible side effect in general, we just feel it is so invasive and are not sure if it is worth to try. Your feedback and experienc are greatly appreciateded
  25. Hi Please help my son. I am desperate! My son used to have mild to moderate OCD and controlled with Zoloft 200mg. His OCD basically did not affect his daily function. April of Last year, he had to take antibiotics for other purpose, but his OCD increased a lot. After the treatment course, his OCD relieved a little bit. In this year April, his OCD increased significantly without a clue. Blood tests showed high level of Strep A antibodies. Then we visited Dr. T for checking for PANDAS/PANS. He first gave him Augmentin and Ibuprofen, but OCD increased instead. At the same time, he ordered a comprehensive blood test which showed he mainly have high level of Strep A antibodies, no Lyme infection. Then he prescribed Clindamycin and Rifampin, his OCD got worse again. Lastly, Dr. T ordered Cunningham panel of tests, which indicated my son has autoimmune disorder. Dr. T. then gave him prednisone 50mg for 10 days and expected a speedy recovery after 2 to 3 days. Unfortunately, his OCD continued to get worse and even worse than before his treatment with antibiotics. Before the treatment, he could still make it to school. After the treatment, he cannot make it at all. Now He has to take more than 3 hours for morning routine due to OCD. All this blood test results seemed to suggest PANS but the conventional treatment does not help at all and even make his OCD worse. Please help me make sense of it. I am desperate. Thanks Louisa
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