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sriramcs

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  1. For my peace of mind, I might end up doing one anyway with a neurologist. If nothing comes out of it, at least I can check that off the list. I just needed to know if it could be a possible symptom. Still educating myself, I still have so much to learn about her condition. The other thing I have not done is go dairy or gluten free (have cut back though). Do I need to? I have eliminated artificial colors, preservatives in food like BHT (going organic pretty much for most stuff except vegetables that I can steam), stayed away from fast food, increased magnesium intake with nuts and greens (a
  2. Mike, You have no idea how much this input means to me. Thank you so much. Sriram
  3. Concerned Dad here. Can someone here tell me if their kid with tics zones out for about 15 seconds and then gets up and goes about doing their stuff just fine? The teacher has told me about those blank stares in school but so far, her math, reading and writing skills are in tact. My daughter has motor tics since Christmas and her motor tics have gotten slightly better in terms of a lower frequency of them (she is also able to control them while interacting with grandparents/neighbor kids somehow, I don't know how). However, lately, she has been zoning out more obviously on the carpet o
  4. Terms like "marketing ploy" (something you used in a different thread), "essential snake oil" are terms I associate with shooting the messenger. I have made clear I don't have the answers, yet people want answers, so I finally shared all I know and see. I am not employed by Young Living, and I have the same testimonies to go by that you have read, and I am in week 2 of this effort, and need to devote my positive energy to my child. My stress levels as a parent are obviously getting to me, sorry if that came across as offensive. That is all I can say, man.
  5. This probably will be my last post on this forum for a while because I prefer to surround myself with those that won't throw stones at what I perceive to be pointing them in the right direction. I don't know the answers, all I can tell you is that I am trying. You don't know me and I don't know you but I will say this. I will give you this info that I am using on my daughter right now but let me qualify again that I am not an oil expert and I got this plan from someone who treated his son for PANDAs and got it to work, that is my strong disclaimer. I don't need any of your money or need to
  6. I think you should google "essential oils and blood brain barrier" and will find a lot of positive connections as to how essential oils have an impact on the blood brain barrier. That is what got me going in that direction. Hopefully, I can give you some positive news in a few months. Here are some articles I found that I thought I'd share (there is a lot of science in it): http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3796379/ http://www.rnoel.50megs.com/pdf/theblood.htm Here is a video that I found: https://www.youtube.com/watch?v=cycfWaWnrkU
  7. Go to www.pandashopeforhealing.com and click on the free phone consultation link. Once you talk to Will, ask all the questions you want. It is amazing how much Will has dived deep into PANDAs and essential oils because of what he went through for his son. I even Skyped with him to make sure he is who he says he was, I am sure a lot of doubting Thomases here would do the same too given the stakes .
  8. I am not an expert on oils, so I am following Will's advice on this. There are certain oils that are favorable for the brain like Brainpower, Peace and Calming, Clarity, Valor, Vetiver etc. and then there are certain oils like Frankincense that are anti-inflammatory oils. A combination of those are normally used. Each child is unique. Will normally formulates these plans based on what symptoms the child is showing (because Chelsa's son had a different kind of tics than Will's son and so have different ones) and provides you those. I'd suggest you contact Will directly through his websi
  9. My daughter developed motor tics post flu, post Tamiflu. I have been in touch with another parent whose son, co-incidentally 6 got the flu before Christmas time and developed OCD and motor tics. That was four years ago, in 2010 December. Now, her son is free of the tics but still struggles with OCD and sensory issues. However, she also has a friend whose daughter developed tics post flu, without Tamiflu. So, if you are asking for proof that Tamiflu did it, I cannot say it did it. But it did put something over the edge, I strongly feel. If you read closely, Tamiflu cuts down the recovery ti
  10. I ran into someone in upstate New York named Will Cook who had put his son through 2 years worth of antibiotics before his son's white blood cell count dropped and he ended up going down the path of essential oils. He has this thing patted down to a science, the usage of the essential oils, and detoxing. He is a pastor who spent a lot of the last 3 years studying about PANDAs and PANs and in 4 months of essential oils usage, his son came out of the motor tics, mood swings etc. and has never looked back. I am in personal touch with him and he is helping my daughter with a personalized plan.
  11. The grimacing of the mouth I saw post Christmas is pretty much gone now. All that is remaining is neck jerking or a slight head rotation. That has been over the last 3 weeks since we cut down the sugar and ramped up our healthy eating habits. I will keep a close eye on it, of course. She just came back home scoring 98% in her weekly math class test. As a first grader in high ability, she added numbers in the thousands in her class test last week. It is mighty hard looking at everything with a cynical eye but I am trying my best to be objective and not jump to conclusions. I get weekly upda
  12. Yes, that is what I meant. Blood testing to see if there are any auto antibodies. Can you get blood tested without a doctor's approval? When I first brought it up to the pediatrician 2 weeks ago, she asked me to wait till the neurologist appt. on the 20th and let them determine if she needs that. My gut says I need the blood testing done. I have never had her blood tested whatsoever since she was a baby, during the first 3 months for serious ailments, and that is about all she has had done on the blood testing front. if you want to get her tested, make sure to go to the apt prepared.
  13. Is this a "specific chiropractor"? (specializing in brain stem / spine alignment?) I have taken my daughter to one for an evaluation several years ago. He said that there is significant stress in her brain stem area. My pediatrician laughed from it, and I never followed up. I am interested to know more about this. With my pediatrician not being of much help, I am thinking if we should take her anyway. Yes, this chiro specializes in spine alignment. They do an X-ray followed by EMS (electro magnetic scanning) that shows their neck curvature (and spine too), how much it deviates
  14. Yes, that is what I meant. Blood testing to see if there are any auto antibodies. Can you get blood tested without a doctor's approval? When I first brought it up to the pediatrician 2 weeks ago, she asked me to wait till the neurologist appt. on the 20th and let them determine if she needs that. My gut says I need the blood testing done. I have never had her blood tested whatsoever since she was a baby, during the first 3 months for serious ailments, and that is about all she has had done on the blood testing front.
  15. Since you asked, let me list them out pre-flu and post-flu: Tics - neck and head jerking along with facial grimacing None before flu and Tamiflu Started once she went off Tamiflu and got over the flu Have reduced to neck and head jerking probably once in 15 or 30 minutes and increasing in frequency during times of stress or high activity. Facial grimacing has pretty much died down, just the neck and head jerking remain. If not for the tics, I would not even be here. OCD tendencies Like I said, she has been an anxious kid for the last 2 years, very conscious of what teachers think, doing
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