[Non-pediatric PANDAS doctors]

Dr. Miller.

[Help! Desperately need way to hospitalize adult - medical problems from PANDAS]

Hi: I am an adult with PANDAS/PANS and am so sick, malnourished and very low in three vitamins from food restrictions, fear of meds, so not taking any. I need a doctor who will hospitalized me on a regular (non-psychiatric ward) to help me take vitamins, figure out the underlying infections, and treat my immune system problems. Currently, I am so fearful, I cannot get out of bed for the most part. I am, however, will to travel or relocate to a Northeastern city to get help. Please suggest doctors or hospitals who may be able to help me get healthy. THANK YOU!

[PANDAS/PANS doctor in NY State?]

We really need an expert in western (Buffalo. Fingerlakes) or Upstate NY. Do you know of any? We really need an immunologist.

[MCAS]

Does anyone know of a good specialist for MCAS as it relates to pans?

[Have any adults seen Dr. Tanya Murphy for PANS/PANDAS?]

Dr. T, Dr. B., Dr. L and other experts al see adults.

[Help! Need telemedicine visits with PANS experts or specialists in Western NY]

We can't travel far but need someone who can treat all aspects of pans -- infection, immune system, and GI/leaky gut.

 

Thanks!

[Lupus and PANDAS]

Here's an artice posted by dr. t on fb:

Staph Nasal Carriage: A Link With Lupus?

http://www.medpagetoday.com/Rheumatology/Lupus/59487?xid=nl_mpt_DHE_2016-08-04&eun=g862467d0r&pos=22

[ENT and GI]

Does anyone know of a PANDAS-friendly ENT and GI in PA or NJ?

 

Thank you!

[Rochester docs?]

Thank you for responding. What do you mean large practices in NY generally aren't allowed to discuss PANDAS?

[Rochester docs?]

Does anyone know of any PANDAS / PANS doctors in Rochester, NY?

 

Thank you.

[Under one roof]

Does anyone know of a medical center that has all of the specialists needed to treat PANDAS / PANS under one roof?

 

Thanks

[Panda pans prednisone and panic attacks]

Your responses have been so interesting to to read. I hadn't thought about the differences between an anti-inflammatory and an immune suppressant. Thanks

[Panda pans prednisone and panic attacks]

Does anyone know why prednisone would cause panic attacks but ant-inflammatories would calm symptoms?

 

Thanks

[Parasites?]

Inositol was hard on me.

 

I was wondering about parasites, too.

[Dr. Najjar]

Thank you

[Could smoke from forest fires cause my DS to flare?]

Good observation -- check this out: http://arxiv.org/ftp/arxiv/papers/0801/0801.3280.pdf

[Dr. Najjar]

Has anyone seen Dr. Najjar?

[Who do you see when you're too sick to go, and who do you recommend]

I can't do that.

 

Has anyone seen Dr. Buckley in Florida?

[New to this forum]

Perhaps you should have blood levels checked before starting vitamins /supplements to see if there are any deficiencies. NSAIDS can also be very helpful short term.

[Who do you see when you're too sick to go, and who do you recommend]

Thanks -- I'm looking for a doctor we can Skype.

[Who do you see when you're too sick to go, and who do you recommend]

Thanks -- I called Dr. L's office and was told I'd have to come in first. That's off the table for now.

[Who do you see when you're too sick to go, and who do you recommend]

What are facetime visits, and how do you set them up?

 

Thank you

[Who do you see when you're too sick to go, and who do you recommend]

Who do you see when you're too sick to go, and who do you recommend for unresolved PANDAS / PANS?

 

 

TIA

 

Sad puppydog

[Child in Psych ward need advice asap. please!]

 

[Couple of questions]

Hi. I have a couple of questions:

 

1. Do your PANS kids ever smell scents that don't exist in an obsessive way (the smell scares them)?

 

2. Do your PANS kids have rage reactions to foods with a lot of yeast?

 

Thanks