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Everything posted by puppydog

  1. Hi: I am an adult with PANDAS/PANS and am so sick, malnourished and very low in three vitamins from food restrictions, fear of meds, so not taking any. I need a doctor who will hospitalized me on a regular (non-psychiatric ward) to help me take vitamins, figure out the underlying infections, and treat my immune system problems. Currently, I am so fearful, I cannot get out of bed for the most part. I am, however, will to travel or relocate to a Northeastern city to get help. Please suggest doctors or hospitals who may be able to help me get healthy. THANK YOU!
  2. We really need an expert in western (Buffalo. Fingerlakes) or Upstate NY. Do you know of any? We really need an immunologist.
  3. Does anyone know of a good specialist for MCAS as it relates to pans?
  4. We can't travel far but need someone who can treat all aspects of pans -- infection, immune system, and GI/leaky gut. Thanks!
  5. Here's an artice posted by dr. t on fb: Staph Nasal Carriage: A Link With Lupus? http://www.medpagetoday.com/Rheumatology/Lupus/59487?xid=nl_mpt_DHE_2016-08-04&eun=g862467d0r&pos=22
  6. Does anyone know of a PANDAS-friendly ENT and GI in PA or NJ? Thank you!
  7. Thank you for responding. What do you mean large practices in NY generally aren't allowed to discuss PANDAS?
  8. Does anyone know of any PANDAS / PANS doctors in Rochester, NY? Thank you.
  9. Does anyone know of a medical center that has all of the specialists needed to treat PANDAS / PANS under one roof? Thanks
  10. Your responses have been so interesting to to read. I hadn't thought about the differences between an anti-inflammatory and an immune suppressant. Thanks
  11. Does anyone know why prednisone would cause panic attacks but ant-inflammatories would calm symptoms? Thanks
  12. Inositol was hard on me. I was wondering about parasites, too.
  13. Good observation -- check this out: http://arxiv.org/ftp/arxiv/papers/0801/0801.3280.pdf
  14. Perhaps you should have blood levels checked before starting vitamins /supplements to see if there are any deficiencies. NSAIDS can also be very helpful short term.
  15. Thanks -- I called Dr. L's office and was told I'd have to come in first. That's off the table for now.
  16. Who do you see when you're too sick to go, and who do you recommend for unresolved PANDAS / PANS? TIA Sad puppydog
  17. Hi. I have a couple of questions: 1. Do your PANS kids ever smell scents that don't exist in an obsessive way (the smell scares them)? 2. Do your PANS kids have rage reactions to foods with a lot of yeast? Thanks
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