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Everything posted by megmo725

  1. searchingforhelp, I'm sorry you've had such an issue with that one doc. My regular doc has brushed so many things to the side so I can feel your frustration. I mentioned getting tested for lyme, but he totally blew it off. And yes, I know Lyme is often misdaignosed with MS. I worry about finding a doctor that specializes in lyme as far as insurance goes, so I'm hoping that I can find a way around that! Someone else mentioned lyme to me. and i've also heard that not everyone has the bullseye rash or even remember getting bit! I guess it's just can symptoms occur years later or flare up a while after? And thanks, I'm gonna try searching about that connection now! Sending you positive vibes
  2. I grew up on Long Island (still live here). I do have 2 cats and 2 dogs (always have). I've never been camping, but I have been hiking. I went away on an overnight class trip when I was 10 for 3 days at this wildnerness place in Upstate NY, in the woods. I've also traveled a lot on the east coast for soccer tournaments. I don't ever remember being bitten by a tick or getting a rash or anything though. I do have physical symptoms and I actually just went to my doc yesterday who referred me to a neurologist. MS came up in a conversation once but nothing else. My general bloodwork is good. I'm extremely fatigued, even post exercise. My back/legs get tingling sensations with pins and needles. sometimes burning/stiffness/heavnienss/jello like feelings. My muscle weakness in my right hand and right leg, and my joints ache sometimes too. 2 days ago, I could barely walk or stand for longer than 5 minutes at a time, it happened to be a pretty bad day. I felt like my legs were just going to give out and I was going to collapse. Yet today I woke up feeling relatively good so I tried a short run balance was a bit off here and there, but nothing major. Eye pain and twitching. Sound and light sensitivity, and tic like symtpoms (uncontrollable facial stuff or jerky arm/leg movements). I'm pretty heat intolerant too, especially at night. I mentioned getting blood test done to check for autoimmune stuff but my doc just brushed it to the side and just said to get to the neuro as soon as I can so I can get an MRI of my brain and spinal cord. It's hard to make diet changes because I am in recovering from Anorexia (which I think was an onset due to this) but long story short, my dieitian is very set on me not excluding anything from my diet because it can become "too restrictive" or "disordered." It's frustrating. I was on a supplement called inositol which did help with OCD symptoms so I might start that up again. I'm going to go to the neuro and I guess just take it from there!
  3. Hi there, I am a 23 year old female. I've been doing quite a bit of reasearch on PANDAS lately, and everything is just pointing to it. I developed a sudden onset of severe OCD at the age of 10, followed by a sudden onset of Anorexia at age 15. I also had PLMD at age 16. And at age 21, I started getting tic like sypmtoms and body movements (I'm not really sure if they were present when I was younger as well). As a child, I was in the doctor's office almost every month getting a throat culture for strep or had some sort of ear infection. I was sick quite often as a child. I even remember having a fever of 107 at the age of 2. My question is, does anyone know if antibiotics could help an adult who possibly has PANDAS untreated? I have tried countless treatments and therapies and medications for my OCD and anorexia and nothing has helped. I feel like things just keep getting worse, and I just want some relief. I remember being totally fine as a child, and the one day waking up and feeling like my world turned upside down and had no idea why I was doing the things I was doing. This happened with the OCD and Anorexia. No previous implications of it, just literally overnight. Does anyone know (or suffer themselves) and are older? Is there anyway to know if it's PANDAS even though I am older now - symptoms never got better over the years, only worse. And of course al ldoctors do is just push this SSRI or that SSRI. I'm worried it's too late in the game to test for anything or possibly treat it. It wasn't ever a known thing when I was younger, and I've even tried to bring it up to doctors now, but I'm just looked at like I have 10 heads. I just want to be okay and recover from these horrible symptoms that didn't plague me for years. If anyone has any words of support or anything they could offer/advice/anything at all - it would be greatly appreciated. I feel like I am trapped in my own body and have been for years. Thanks everyone.
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