KateH
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KateH got a reaction from Tiger in What is the normal pattern of tic changes?
Hi Tiger,
Sounds very similar to our experience of the NHS. They only did a blood test because I pushed for it and then told me to buy a blood sugar monitor and to get her school to refer us to the Junction for councilling.
We decided against this and I have been trying to look at alternative solutions myself since September. I do think we are making progress but I'm not sure if this is just a natural waning......
Might try the clams next !! 😜
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KateH got a reaction from Chemar in What is the normal pattern of tic changes?
Hi Tiger,
Sounds very similar to our experience of the NHS. They only did a blood test because I pushed for it and then told me to buy a blood sugar monitor and to get her school to refer us to the Junction for councilling.
We decided against this and I have been trying to look at alternative solutions myself since September. I do think we are making progress but I'm not sure if this is just a natural waning......
Might try the clams next !! 😜
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KateH reacted to Tiger in What is the normal pattern of tic changes?
Hi Kate
No PANDAS diagnosis, just lots of dismissive comments from GP & his paediatrician - they've never heard of it. Yep totally useless.
No diagnosis at all, quote:
'well your son was ill & sometimes children take along time to recover, this could explain the emotional outbursts you're observing & tics.....well they happen sometimes in childhood, just ignore them they should go away'
Can you believe we waited 6months to hear this.......18 months later with not much change the paediatrician refuses my request for a referral to a neurologist & I'm having to find ways to manage the tics & anxiety with no support at all from the NHS.
I truly hope you have more success.
Regarding your daughter & her brothers scarlet fever, I've read somewhere that children susceptible to PANDAS can react when people they are close to have strep infections. I've also read that some children has tested positive for PANDAS but have never displayed strep like symptoms, its seems to be a very complex disorder.
You might want to have a read of some of the post in the PANDAS section - I find it really useful.
`Tiger x
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KateH reacted to Tiger in What is the normal pattern of tic changes?
LOL i meant calms ---- anyone heard of clams helping with tics, you never know