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wembles

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  1. My son has been doing really well recently. He is currently on a 30 day course of Azithromycin, and on days 6 and 7 of the course, he was back to 100%! It was amazing. We also started him on Enhansa (turmeric) at around the same time--started low with 150 mg in the morning. When we added a second pill in the evening (for a total of 300 mg/day), his stuttering returned slightly. I'd still call him at 90% as it isn't bad, and none of his other symptoms (fears, OCD, etc.) returned, just the minor stuttering. I have read that Turmeric can increase dopamine levels, which can cause stuttering in som
  2. Hi everyone! I am a speech-language pathologist (SLP) and mom to a son with PANDAS. I, along with one of my colleagues, am putting together a presentation proposal to spread the word to fellow SLPs about PANDAS/PANS and effects on communication. We have put together a survey to gather information for our presentation proposal and would be more than grateful for your participation. (fyi: this will be cross posted in multiple forums!). Thank you so much! https://www.surveymonkey.com/s/2S52C8S
  3. Hi, My son has only recently been diagnosed with PANDAS/PANS, and I am still learning. He has been symptom free since September, following a bad flare that lasted from May until the end of August. The doctor we have been seeing did some allergy testing, as he mentioned that the inflammation from allergies can work in conjunction with infections to trigger a flare, so he wanted to minimize the effects from allergies. My son tested positive for some environmental allergies (mold, juniper, hay...2 others I'm blanking on) and peanuts on the skin test, but not the blood. It was suggested we take a
  4. My son's main symptom when he experiences flares is stuttering--his tends toward "cluttering" (excessive revisions of phrases, pauses in odd places, breathing or swallowing mid sentence, etc.). I'm a speech pathologist, and actually took him to see a stuttering specialist (I did not trust myself to be impartial as his mom!). He received therapy for 2 months, then was dismissed because his speech cleared completely. It stayed clear for 6 months, when he got impetigo and scarlet fever, then had his worse flare ever--cluttering and stuttering combined, arm flapping, excessive questions about size
  5. We saw a PANDAS friendly doctor--he was recommended by a couple families here in Denver. Looking at the blood work, I don't see any tests for underlying infections. He seemed very focused on reducing allergic reactions as a start (his reactions are skin based...no runny nose/eyes/etc.). I am hesitant to have him on the daily allergy med (his brother reacts with a change in personality to both zyrtec and claritin...gets very irritable), but he hasn't ever been on allergy meds before himself. But at the same time, I want to prevent him from having any more flareups, so I'm willing to try
  6. Update: We had our allergy test and blood work follow-up appointment today. I'm not sure I understand what exactly everything that was tested was, but in short: his IgG (subclass 1-4), Thyroid, Anti-Myelin Assoc. Glycoprotein, Vit. D, Vit. B12, C-Reactive Protein, and Antinuclear Antibodies were all within normal limits. His Memory B Cells were low (I have no idea what those are, so need to research). Food allergy blood tests came back normal, but he was positive for nuts on the scratch test. The doctor wants me to pull him off all nuts. Is that a typical interpretation of food allergies, to p
  7. Thank you all for the advice. We will go ahead and keep the appointment and see what the doctor thinks.
  8. Hi everyone, We have an appointment scheduled for my son next week because of suspicions of PANDAS. He is 5 years old (almost 6), and has a history that last May made us think PANDAS could be an answer. His main symptoms are stuttering, flapping his hands/arms, and baby-talk. We finally made the connection that these symptoms cycle in and around sickness this past May when he was diagnosed with impetigo, followed by scarlet fever. He had never had a strep diagnosis previously, but we did notice the symptoms ebb and flow. Prior to the impetigo/scarlet fever diagnosis he exhibited the worst cyc
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