Girl, 12yo began to behave strangely in July this year, she first started to sleep a lot and then started the symptoms of decreased concentration, disorientation, but the whole thing was not too strong, and the parent attributed it to fatigue from the end of the school year, the end of an exhausting competition season ( practicing skiing, 120 days a year on the snow) and primarily the onset of puberty (19.5.2003.) Although not yet reached puberty when looking at those standard indicators ...
All these symptoms stepped up this summer, when she forgot the dog she took out for a walk, she began to talk completely incoherent, nothing was heard, and completely lost interest in things she really loved before( iPad and phone). Finally with the suggestion of a friend neuropediatrician she was taken to hospital.
They made there all sorts of possible tests and all were negative so they tested also for NMDR and sent it to Barcelona for testing.
Although no findings that would indicate any disease, except for a little bit in the cerebrospinal fluid, with which they made working diagnosis: autoimmune encephalitis. They started to treat initially with antibiotics and Virolex and after that corticosteroid (Medrol ). The situation, primarily after the start of corticosteroid therapy, rapidly improved and 14.8. she was released home. They were told to constantly reduce dose of corticosteroids and she came to 4mg every second day.
On Saturday, 12.9. again began talking incoherently and it was clear that it was a recurrence.
Yesterday morning finally came the long-awaited report from Barcelona(NMDR), which is negative, and therefore the doctors excluded the possibility of an autoimmune disease...
The doctors do not know what that could be but I wanted to ask you if any of you had any similar story They are my good friends and I am following this forum for my DS8.
Is there a possibility that could be PANDAS/PANS or could it be something else....? Thank you!