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Everything posted by ncmom

  1. Thank you to everyone for your replies and advice. I at this point have not vaccinated again. I have an appointment with an immunologist for a third opinion next week and will see what he suggests. My PANDAS doctor (we have had only one visit with her) was whom wanted my daughter to get the pneumovax and it was my pediatrician (who has never treated a PANDAS child) who advised against it. Ironic right! As far as her diet, we have for a few years now been avoiding preservatives, food colorings and try to buy organic, non GMO, and all natural foods and products. My son is a Type 1 Diabetic
  2. My daughter was diagnosed with PANDAS in May and since then I have found this forum and spent hours reading through the posts gaining as much knowledge as possible. Thank you for all of the great information and support you provide! My daughter was diagnosed at seven, we believe it to be new onset and we started treatment right away with high dose Augmentin. She is doing extremely well, I would say 95% back to herself which I am so thankful for! However, during her workup, it was discovered that she has low pneumococcal titers, only 1 out of 23 in range. The rest of her immune work up was
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