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brink

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Everything posted by brink

  1. Hi Everyone. It's been a couple of years since I've been on here as we had our son's Tourette's and behavior fairly under control. Well, needless to say, he's hit puberty and at 14 years old, he's taller and stronger than us. He's so very full of anger and swears at us (not allowed, and not a tic). He was also diagnosed with Aspergers, but it seems to be on the brink of it, rather than full fledged. We are at a loss as he is starting to have his rages again and we cannot physically control this, without both of us holding him down. Is there anything any of you can recommend to us to g
  2. Has anyone had any interaction or experience with the Joshua Center in Kansas City Missouri? We are going to their camp this year and was just wondering if anyone knew much about them. The website is www.joshuacenter.com. I've been down there for a conference and have met Becky Ottinger, the director as well as Mike Sumner. They seem very nice and helpful. Thanks!
  3. My kids love the chocolate almond milk too. They're not big fans of the rice milk, either plain or chocolate. The plain almond milk works pretty well in white sauces like for sausage gravy and biscuits. Yummy. There's also hazelnut and oat milk, oh and hemp milk too. We haven't tried the hemp milk. They just look at the carton and say "NO WAY", lol.
  4. Just wanted to add an update. The doctor originally upped his meds (as in the other post) because she 'wanted better impulse control". Well, boy oh boy was that the WRONG thing to do. We ended up in the ER last night because he basically went crazy. Ranting, pacing, eyes dilated, swearing, angry, climing to the very top of the swing set, jumping off (basically dangerous behavior). He knew this wastn' him. He told me he needed to destroy things so I let him bash up a few bricks in the hopes that it would help (joint compression, anger release in a productive way, etc). Fortunately, he
  5. Thanks Chemar. I just posted over there.
  6. My son has TS, OCD and ADHD. He is explosive and we're working on that using Dr. Greene's methods. He was recently put on Vyvance and now all of a sudden he is wanering away from our house because he says he has "an unsatisfyable need to explore". Well, we spent the night in a hotel last night and come to find out he wandered out of the room while we were sleeping and was walking around the hallway. He also snuck out on to the patio and was wandering around. The other night I found him standing in the living room, after he had slipped out of his bedroom window. This is getting pr
  7. That's exactly what happens here too. He seeks out the negative and on some days he pushes so hard for it that I have to get to the negative for the safety of others around him. You hate going there because you know what's driving it at that particular time. Is there a way to get them more motivated? I would love to find a way for him to become interested in so many other things. Although he is, he (and his sister alike) are both very bad on follow through. Sister has anxierty issues and we're not sure if they're school related or Ethan related or both. She seems to havfe an upswing
  8. Thanks for the reply. Actually, he was in public school through 2nd grade, then homeschooled for 3rd and went back for the first part of 4th. We just brought him home at Christmas break and have been homeschooling since. We do let him do keyboarding because writing is an issue for him. He spells phonetically but is getting much better about using the correct spellings. There are day shwen he cooperates completely and does all his work in 3 hours, but then other days it can take 6 hours to do one subject. There's just no telling which way it will go most days. I agree with the dese
  9. Boy oh boy! All of your posts sound like my child. The only thing we don't have is the erasing thing...although we did at one time. Guess I need to be on here more often, lol. The clothing issue is insane here. He never wants to change his underwear or pants and he'll only wear socks when we have to go out. The minute we get home, off go the shoes, followed right behind with the socks. He'll put them on again if he gets cold, but the minute he warms up, they're off again. The homeschool/homework is a huge issue here. Now that I've read these posts, I think I need to rethink, ye
  10. Thank you. He started Sertraline 50 mg about 4 weeks ago. We were told that it takes 6-8 weeks for it to 'kick in'. I chose to make today a better day. We went to the craft store and bought some stuff and made Valentine decorations. We were able to incorporate a little bit of schoolwork too. So overall today was better. But I still need other skills to be able to get through tomorrow and the next day and so on. I appreciate your willingness to help.
  11. Hi all. Some of you may remember me from last year, but it's been quite awhile since I've posted. Sine then, life has become hellish in some ways. My son was diagnosed 2 years ago with TS, OCD and now has the dx of a mood disorder. He picks up the mood of anyone around him and that's how he is for the day, uless an new mood becomes stronger around him. What I need now is not the dietary support but the mental support from other TS moms. I need coping skills. I need to know how to get through the day. I need to know how to deal with and cope with my son and how to teach him how to cope
  12. I'm pretty sure that the pill was .05mg. At first, the dr. prescribed 1 tablet. Then the DR decided that it wasn't enough because apparently my son wasn't comatose enough for his liking so he upped it to 1.5 pills...then decided that he wanted him to go up to 2 full pills, 1.5 at night and .5 in the morning. WE decided that wasn't cool withus because he just laid around complaining about being bored. When E says that, it usually means his brain cant' function or he's tired. So my DH and I decided to wean him down to .5 and it was working fine, but he was still going into a zombie-like sta
  13. We took him off clonodine because it made him too zombie-like. We found out that some kids with sleeping problems like our son were trying melatonin and having success. We would rather he was taking something his body already made than a manufactured chemical cocktail. Basically, we're were trying a more natural and holistic approach and it's doing the job. Plus, we stopped going to the neurologist because he was a jerk (the doctor) and he was the one who prescribed it. We went to another well known neurologist in our area and she said she didn't believe in prescribing medication for the
  14. Thank you for your replies. The stealth dyslexia sounds like it could be a fit. I'm going to do some more reading about it and ask his doctor about it. As for the fear of someone dying, yes, it's possible, however we've been dealing with a lot of tihs for 3 years. He's a sensitive kid, but he hasn't seemed out of the ordinary with any of this. I do agree that the school stressors are probably aggravating things. I just got an email from his other main teacher and she said he's very respectful, actively participates in class and is for the most part a very happy and fun to be with
  15. I haven't posted in quite some time and we're managing so so here. My almost 10 year old son has TS and we homeschooled last year. Due to some other family issues (his grandparents illnesses), we've decided that the structure of school was the best option for this year. He's managing somewhat, however we noticed something that started last year. He spells phonetically. He can pass spelling tests with flying colors yet when it's time for free writing or assignments he reverts back to the phonetic spelling. It started early in our studies last year and we corrected it when it happened, b
  16. Yes, I understand the IEP/smart thing. Actually, I went on the TSA website via the links above and I sure wish I had found this before today. I am just finding out about so much with the TS. Our son definitely has the rage issue associated with TS. It wasn't until he went to a TS camp a few weeks ago that we found out about the stubborn/obstinance/defiance part of it. As I was reading the info on the TSA site, I was actually saddened. Looking back, my son could have been diagnosed so many years ago. He's had rage issues since he was 2. He's had the writing issue since he could
  17. One thing...I may be overlooking this or just missing it, but how does one go about initiating a 504? Do I just tell the school when I call to find out about registering?
  18. Thank you. The more I looked at IEP info, it didn't seem quite right for him. I'm probably going to go with the 504.
  19. My 9 year old son has mild TS. While he has the ticks and some vocal noises, they're intermittent (wax/wane). He also has OCD, not severe, but it's there. The two main issues with his TS is the rage/anger and stubborn/defiance. We didn't even know that the stubborn/defiance/obstinance was a part of TS until he went to a TS camp. We tried homeschooling this year and although I would like to do it again, they're just not happy here. I'm sure this is because they've already been exposed to school. We've decided to send them back. It was recommended that I get an IEP for him. We also h
  20. I always assumed it was a synthetic. Our son didn't react too well from the sorbitol, especially in the sugar free gums.
  21. Thank you for the additional suggestions. I'm not sure if it would be the soy products as he's had those before without reaction. He's also had almonds in the past without incident, but then again, who knows what all is related. He's doing so much better today. I don't know if the rash has anything to do with it. The rash is almost gone already. We have suspected sugar for quite some time, so I'm leaning toward the raw sugar issue. Not knowing that was also considered a refined sugar, I've been using it in many things for him. None got into his system today. What a journey
  22. Wow! I never knew Sugar in the Raw was just a less refined sugar. That could explain some of this. We have eliminated the corn syrups and I think we've gotten all the dyes and artifical flavors out. I suppose there could be some that I'm missing. We've also tried eliminating all the MSG's as I'm allergic to those anyway. I've done a bunch of research on the MSGs and am very surprised where we find it! We've removed basically all corn products, at least the ones I know about. Thank you for your help! I'm going to try the two sugar subs listed and see what happens. I have a feeli
  23. So, we need help. We've tried eliminating dairy and refined sugar and it was helping for a while. It's been about a month. We have let our 9 year old son have chocolate soy milk, chocolate soy ice cream bars and almond milk. Basically, it's the only way he'd eat it, but he's not getting the chocolate items everyday. Anyway, it was suggested that he may be sensitive to chocolate (by a holistic person), along with the dairy and sugar. We started using raw sugar as his birthday is right now and he wanted a cake. I tweaked one of my recipes to work and he loves it. Of course, it's chocolat
  24. Yes, the teacher did notice. When this all first started, she had no idea what was going on so she contacted me with her concerns. It was because of her astute awareness of my son's behavior that we sought professional help. We had no idea what was going on either! At the time, we didn't have any diagnosis, but I did tell only the teacher what the neurologist had said. Due to the privacy laws, she was not allowed to take it further than a confidence between the two of us, unless I specifically gave permission. The reason I didn't involve the school was more of an interpersonal issue b
  25. Actually, no, the school was not involved at all. We didn't want those "labels" on him whatsoever. He's had issues most of his life and we had no idea why. Everyone kept telling me "oh, he's just a boy-they have lots of energy". He would itch and rub himself (not inapporpriately, but facially or around the top of his head) whenever he was concentrating, nervous, focusing, etc. If he had to be in front of people he would be worse, even though he enjoyed being there. I figured it was just a "nervous twitch". But in my heart, I just KNEW he wasn't "normal". Finally, in March, after months
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