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Trishb last won the day on June 25 2016

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  1. My DS has Lyme and coinfections so he is on a lot of medication and supplements. He is used to taking them directly from the bottle and not the pill box. I organized everything to not make it complicated for the staff. The last time he missed doses of his medication his OCD increased and his health was set back. It has been a long year because the school has been so focused on my son and this trip. I just couldn't believe that they did not make sure his medication wasn't taken and the Principal's attitude was extremely disappointing. My son is typically great about taking his medication,
  2. I am writing to get your opinion. My child just went on a 6th grade class trip to New York City. There are only 8 kids total with 2 chaperones. From the first day of school I was contacted almost weekly about my child's OCD issues and they were concerned about all his food allergies for this trip. My child worked very hard to get a good handle on his OCD issues and by the trip I wasn't even cocerned anymore. The school had several meetings with me about these issues. My issue is when my son returned from his 5 day trip the only day of medication taken was on the first day. All of his pills wer
  3. I took our child to Rogers Memorial Hospital and it is an amazing program. This was one of the best decisions that our family made. The doctors and staff are excellent. The one thing that made this program successful is that the parent(s) are involved. When we first started my son had about 32 OCD issues, by the time we left it was down to 2-3. With 1 being still a big one, but they taught me how to help him. My husband stayed home with our other children and I was in FL with our son. We left the program in July of 2016. The program taught me not to make accommodations to enable his OC
  4. For my son an infection can trigger a tic. Have you had your son checked to see if he has a sinus infection? A high strep titer can make him tic (ASO, DNAose, Mycoplasma). When your child has a lot of environmental allergies they can have sinus issues. One thing that has worked great for my son and has cleared his nose is using essential oils. I bought on Amazon an essential oil nasal spray bottle. You can put either saline water, or filtered water with a pinch of salt with 4 drops of lavender, 2 drops of lemon, and 2 drops of peppermint. You can have him do 2 sprays in each nostril in
  5. Hello. No matter what your child would benefit from CBT. Rogers will give him the coping skills for his OCD and teach you how to help him. I have been on this PANDAS journey since 2011 and I wish we came here when his OCD first got out of control. Although the OCD is infection driven as the kids get better and the behaviors either stay the same or get worse - that is what they are behaviors. They need to know how to handle their OCD. I feel they think their alone and no one understands. There are so many kids with OCD who have the same issues. When you arrive they have you and your son
  6. My son is only on antibiotics and for supplements probiotics, curcumin, and slippery elm bark. I did meet parents who had to put their kids on medication and some of them chose to use a company that will tell you which medications would be best for your child. I am not sure if it is done through blood work or saliva. I know the test is $1700, but the company allows you to pay monthly if need be. A few of the older children told me that they were on the wrong medications and after doing this test and having the medication change they felt so much better. All I can say is that I wish we did
  7. Hello Everyone. I took my son to Roger's Memorial Hospital 5 1/2 weeks ago. My son was bit by a tick in April 2015 and November 2015. Both ticks had Bartonella but he was not being treated for it. In November, he developed severe OCD symptoms after the tick bites. His doctor put him on antibiotics and tightened his IVIG treatment. Usually he always progressed with IVIG treatments but there was no getting him out of this storm. I read on Latitudes about a mom who took her son to Rogers for treatment with his OCD and was 100% ritual free. My husband and I decided to try it. We felt that
  8. Hello. I have two children who have Lyme and Bartonella. They are being currently treated, but my teenage daughter is still having joint issues, I noticed a rash on her leg and it is not itchy. If she plays in a soccer game at the end her knee might hurt for 2 days, or has back pain. She also said her ankle hurts too. I am looking for another opinion. Could you PM me with experiences and names? Thank you!
  9. You can have a compounding pharmacy make the medicine. That will eliminate preservatives and dyes.
  10. Your son may have a sinus infection. You can order an amber glass nasal spray bottle and fill it with saline water, 4 drops of lavender, 2 drops of Frankincense, 2 drops of Meleleuca and 1 drop of Copaiba. You can find this info on Pinterest too under essential oils. You can order these from Young Living. Another company that is good is Native American Nutrtionals. My child had a sinus infection for months and antibiotics wouldn't clear it. This nasal spray did.
  11. I would get a second opinion from another ENT. My doctor said to think of the tonsils like an air condioner vent and they trap and hold the bacteria. My ENT performed a lot of tonsillectomies for Dr. Keissling's patients. I asked him how those patients were after the surgery. All he said was I saw them for the follow up and that was it so he assumed things were getting better.
  12. You can also try going to a Naturopathic Practicioner. I took my child today because his tics have increased this week. We have a conventional doctor but my child is allergic to preservatives. I really liked this person and she recommended Vitamin C, Meriva, Omega 3, Acetyl-L-Carntine and Xlear nasal spray. That might be an economical route for you to try. She eventually wants to work on my child's allergies. Just make sure it is someone who has a good reputation in your area.
  13. There is. Company Seagate Products that makes a homeopathic nasal spray with olive leaf extract. My friend told me about it because my son is allergic to preservatives in medications. By what you describe it does sound like you do have environmental triggers but seeing you can't get tested you will have to try and calm down your immune system. One thing you can look into is essential oils. My child has tics and was getting frequent headaches. On Facebook there is a site The Oily PANDA and a lot of parents use oils to treat their kids. They make up a blend for allergies and for other symptoms.
  14. I went to an Enirnomental Allergist and he wanted to do 4 seperate days of testing for 3 hours each visit. I just felt it was too much for my son. I do go to an Allergist in CT and he performed the food allergy test and my son had several food allergies. After that he then sent out blood work to measure his antibodies to the food allergens. I haven't met with him for the results yet, so I can't give you additional info. We performed the Environmental Allergies in 2012 and my son had severe allergies. We did allergy shots for 2 years, but had to stop because he would tic after the shots a
  15. What State do you live in? If you live in the New England area there are several doctors here?
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