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PANDAMOMMN

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About PANDAMOMMN

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    Female
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    Minnesota
  1. Thank you for your quick reply! We had not been on prophylactic antibiotics over the past nearly three years until just this fall. Our pediatrician (not the original woman who ignored the symptoms, but a better one in the same practice) has been very opposed to antibiotic use. He finally relented and allowed us a prescription for amoxicillian that we have used for about three weeks. Doesn't seem to be doing too much. When my son had mycoplasma pneumonia in Sept. and was on Zithromax he was a COMPLETELY different child--so much better. We realized we had seen the same thing after an an
  2. Debbie, Have you looked into Sydenham's Chorea? There are both heart-related symptoms and the skin bumps as part of that condition (and it is very PANDAS-like). Here is a link to a Sydenham's symptom article: http://www.mdvu.org/library/disease/sydenhams/syd_sym.asp Just a thought.
  3. I first posted to this site in Sept. 2007, in our first year with the PANDAS in our life. My son is 10 and though life is much more functional and liveable, he struggles daily. I'm excited to see so much more activity under the PANDAS heading here! My initial post was buried somewhere else in the site. I decided maybe providing more information on our PANDAS journey would perhaps help others identify what additional information our family should know. It's a long story that has been our family's life since late Dec./Jan. 2007. We have had four different psychiatrists confirm a PANDAS diagn
  4. I decided maybe providing more information on our PANDAS journey would perhaps help others identify what additional information our family should know. It's a long story for only having been our family's life since late Dec./Jan. We have had four different psychiatrists confirm a PANDAS diagnosis--but our pediatrician does not believe in PANDAS. Consequently, we are terrified of what is going to happen next when we have no pediatrician on our "team." Here's the story: My now-8-year-old son, Evan, started acting very "un-Evan-like" just after Christmas. He started out on Dec. 26, 2006
  5. I am new to this site and I'm hoping for some answers. Our family has been living a PANDAS nightmare with our 8-year-old son ever since late December 2006. I am desperate to learn about any "happy endings" people might be having. How long do children tend to suffer with it? Do they ever come back to "normal?" It seems everything that can go wrong has with my son's diagnosis, treatment, etc. Has anyone pursued IVIG? Where are the best pediatricians? Our story is a long one and I want to make sure I am in the "right place" here before I share all of the details.
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