tic2talk
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tic2talk reacted to momslove in Food allergy question
Teamtyrion--When DD suffered another relapse, she had "issues" with so many things... One difficulty she had was plastic--she could not eat or be near anything that she thought had touched plastic. The bottle of drops was glass, but the pump was plastic. Also, she had great difficulty with anything she considered chemical and this included her drops.
We went to a place in LaCrosse WI which, I think, developed the "LaCrosse Method" of sublingual immunotherapy. They were very good, but the last time we went, we saw the wrong guy... Unfortunately got into discussion about reality of PANDAS... That doctor is no longer there.
We would not rule out going there again, but right now treating Lyme and Bart and strep. Also doing our best with diet change...
I think Doris Rapp is an interesting read--"Is This Your Child?". This is what led us to treat allergy before we even knew about PANDAS.
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tic2talk reacted to putting together the piece in Food allergy question
When that type of slip happens I give activated charcoal or Chorella to bind with the offending substances and reduce the resulting offending behaviors. It helps especially if you can address quickly.
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tic2talk reacted to Chemar in Organic Food
Hi there
it is so frustrating when you are doing all the right things but the tics still wax.....
Remember with TS there are also likely some "internal" or other subtle triggers that account for the characteristic waxing and waning and these are obviously harder, if not impossible, to fully account for. As your daughter is also now at or near puberty, with all those hormonal changes, this may also be a factor! along with those teen year angsts that push up the stress levels and so exacerbate tics
We have found over the years that being totally organic and "clean" in diet is well worth it... just a little of the toxins etc from pesticides, additives etc can often have a very big reaction!
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tic2talk reacted to Chemar in My sons' organic acid test results
Hi
This is a very old thread an thankfully many of those parents are no longer posting here as their kids are now grown and doing fine
The most beneficial treatment my son has had for OCD is Cognitive Behavioral Therapy (CBT)
As serotonin is usually deficient in people with OCD, also taking a serotonin enhancing supplement can be beneficial
The SSRI drugs had horrible side effects for my son! and over the years he has used 5HTP and Inositol under physician guidance with good effects.
He now (mid twenties) takes a low dose pure tryptophan supplement which, in combination with the CBT, has his OCD very stabilized.
I am commenting based on OCD that is co-morbid with TS, but please do note that for kids with PANS/PANDAS etc...the OCD is frequently related to the infection, and so dealing with the infection and it's resultant effects on their brains is what may be needed to control the OCD