Thank you very much Sheila for your reply. In the past few days Leo has begun rolling his head back & sticking out his tongue which is not really very pretty to see. The family are due to go on holiday soon for 2 weeks & I have asked his mum to observe any changes in his behaviour as this could indicate that something in his home is a trigger. I haven't seen anyone mention reactions to pets, could this be possible? I am interested in the articles you suggested, however both links seem to be to the same page. Thanks for your help, Janet
Hello everyone & thanks for the replies. At this present time my daughter has decided to try a therapist who has suggested EFT (emotional freedom technique) tapping. I don't have much confidence in this but have to respect her decision. Whilst I wait for any results I am reading Sheila's "Natural Remedies for Tics & Tourette's" and am finding it very interesting, especially the reports from families who have had success with their own remedies & without medication. A few cases mention a definite reaction to food. In the UK doctors tell us that people can be tested for allergies but there is no test for intolerances. However in the book I'm sure people mention being tested for ANY adverse reaction to food/environmental factors. Is this a difference between USA & UK? Like most 9 year-olds Leo has lots of interests/activities outside the home & observing him at all times would be very difficult. If I could find a test to at least point me in the right direction I would be overjoyed. Thanks
Grandma posted a topic in Tourette Syndrome and TicsHello, I'm new here & from the UK. My Grandson, aged 8, was diagnosed with TS about a year ago due to physical tics lasting over a couple of years & noises (sort of grunts). He is a sociable, intelligent child who appears to be totally unaware he is doing this. His Mum has been taking him to the local NHS appointments, which she says are not helping. Quite often these appts are cancelled at the last minute, putting extra stress on everyone. She's a single parent, working hard & when they cancel she's already booked time off work & disrupted Leo's day. She was so distressed last week & I realise this will only make the situation worse so I decided to step in. I am semiretired & so have more time to research his condition. However, being Grandma makes it a little harder as he doesn't live with me so I can't observe him quite so much. I do see him very often though & with Easter hold coming up that will change to having him & his older brother every day. Last week his school rang my daughter to say they thought his tics are getting worse & other children are beginning to comment. It occurred to me that for about a month now he has been attending "before school club". He loves going but I thought I might start by looking at what he eats there, what/who he plays with etc. as maybe it is no coincidence that the schoolteacher has seen a change. My question is this - if I insist on a change to something (eg ask them not to let him play electronic games before school) as a rough guide how long do people think it would be before I saw the effects of this (if there were any)? So sorry this post is rambling! I'm very concerned for my daughter's health & also the effect on the other son. Thanks for reading.