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tlkinser

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  1. I have never been a smoker, but I did find this quote interesting: "Mathews, from the University of California in San Francisco, and her team hypothesized that reductions in oxygen in the womb, a known effect of smoking, could increase the risk of developing Tourette's syndrome in those with a genetic susceptibility." As I've mentioned before, I have antiphospholipid syndrome and lupus anticoagulant, both of which cause recurrent miscarriages due to blood clotting. The clotting would affect the amt of oxygen in the womb so possibly it would have the same effect as a smoker. ?? I'm g
  2. Hi Nicola, I don't think there is anything specific that my chiropractor does for my son regarding his tics. I think the therapy he is giving my son is the same therapy anyone else would receive. He examined him on the first visit and felt some places along his back and neck that were out of alignment (?? I guess that's what you'd call it.) I had already discussed my son's issues with him during my own chiropractic adjustments when my son was not with me. I brought all of the medical testing results (pediatrician, neurologists and environmental physician) and had many conversations with h
  3. Hi all, As you may know, my son (5.5 yrs old) has been ticcing everyday since last April. PANDAS dx is still up in the air as he was + for strep via blood work when his tics began but did not get any worse last fall when he again tested + for strep. I have done all of the testing (blood, hair, stool, saliva, urine), tried numerous supplements, made adjustments to his diet including Feingold, cut-out screens, give him Epsom salt baths, and still have not been able to make any conclusions regarding triggers. It has been very frustrating. We have had many good days, but he has still continue
  4. Hi, My son has this as well. His lips and cheeks are constantly chapped, especially during the colder months, and we live in a southern state (thank God!) lol. My husband's neice does this as well, so I think it must be a tic. Someone at school recommended putting some of the diaper rash creams on it and it really did help. The Vaseline is ok, but this was much better. My son still licks his lips, but we now treat it with Boudreaux Butt Paste during the really bad chapping phases. (Took some bribing, but now he is fine with it). Although he still gets red around the lips and sometimes
  5. Hi Jenny, I put my son on the Feingold Diet immediately after he began his tic explosion last spring. I was neurotic about trying to find something that would "fix" him overnight and Feingold sounded like a good place to start, especially since I had heard from my MIL that she had my dh on it as a child for hyperactivity. I tried to be as strict as possible with it for about 3 weeks (I was making myself crazy). My children are young (at that time, 3, 4.5 and 6); I don't know if that makes it easier or harder, but I found it difficult to get them to cooperate and my son's tics were not gett
  6. Hi Kim and bmom, I have antiphospholipid antibody syndrome and took heparin and/or lovenox while pregnant with my three children (also had 2 miscarriages). This is why I'm thinking my ds got the double whammy from both of us- my auto-immune disorder coupled with dh's "tics" that he had has a child (nothing that was ever diagnosed or that ever interfered with his daily life; he has just now realized that he might have had something similar to ds on a lesser scale when he was younger. I have never seen any sign of tics in the 10 years that we've been together.). Kim, does this mean anyth
  7. Well, shoot!, I can't figure out how to post a link to the article. I went to msnbc.com, clicked on "health" stories, and then found the link to the story. It basically says that the vaccine MAY be coming soon. Here is a quote from the end of the article. (Love the part about the huge market potential, lol). Vaccine market could be huge These vaccines protect against pneumonia, ear infections, and other diseases cause by Streptococcus pneumoniae bacteria. A spokesman at Novartis said the company has a GAS vaccine in the pipeline but it is in very early stages of testing. The
  8. This story was on the front page of our paper (AJC) in Atlanta; the family is from GA. I haven't had a chance to read it yet, but have been thinking about it all day. As soon as I get these maniacs settled in bed I'm going to sit down and read it. Thanks for the heads up on Larry King. Off to record that now. I think this is so interesting and opens the door for MANY more lawsuits. On a different note, have you all seen this? strep vaccine I'm not sure how to post a link, but I found this on msnbc.com when I was looking for some info regarding recalled heparin. (I was on heparin
  9. Hi Kim! I desperately want to understand the articles in your post, but I can't! I have read them over and over and I might as well be reading Chinese. After you're done with your research, will you please interpret for me? To answer your question about my son, he really doesn't have any large moles, but he is freckled. He has fair skin, blue eyes and red hair (we were shocked when we saw that red hair! lol). He is only 5 1/2 and the freckles that now cover his cheeks and nose didn't start appearing until he was 3. Every year, he gets more of them and I can already see that some of
  10. Hi Faith, My son is now 5 1/2 and is still ticcing. The Benadryl relief was short-lived. He seemed to be doing better overall last fall but since the holidays, he has been ticcing alot, both motor and vocal. I did all of the testing with our Environmental Physician last Sept/Oct but didn't really put anything into practice since he was doing well at that time. He even had strep and seemed to be ok. (His tics started last spring overnight during a course of strep). As of Jan, he is on a dairy/casein free diet. (wish I was seeing more of an impact on the tics from this) His IgG re
  11. Thank you Chemar for this info. I guess I am so confused about everything... I had my son's blood levels tested several times this summer and by the end of the summer, his titers were normal. He was still ticcing very hard even though the strep had been treated with antibiotics. What kind of testing will Dr. Murphy do? Is there a test that will tell us whether or not my son had undiagnosed strep in his body for a long time before these tics started?? I guess I am just wondering what she will be able to do for us? We are more than willing to go see her, and I have been in touch with her o
  12. Thanks for your replies. I never thought that the spots could be a virus; I just assumed his skin was irritated from the salts. ?? How did you get the virus diagnosed and what did you do for it? My son seems healthy as a horse other than the tics, but I was sick a few weeks ago with a flu-like bug for several days. I guess I will keep my eye on the spots and take him in if they don't go away or if they get worse. Bmom, I have not totally ruled out PANDAS and am very interested in reading the info here from others dealing with it. Honestly, other than the overnight explosion and his
  13. Hi Kim, Sunshine, and bmom, I was reading through some older posts and came across this thread. I wanted to add that my son also has a small tumor/cyst on his wrist (a ganglion cyst I believe it is called) that just appeared (I noticed it approx 4-5 months after he exploded with tics nearly over night last spring.) My dr also assured me that "it's nothing to worry about" and I haven't thought twice about it since I saw this thread. I also wanted to add that I do give him epsom salt baths nearly every night but they don't seem to help. I have noticed that it dries his skin and makes it red
  14. Airbucket, My son (5.5 yrs) also likes to feel pressure on his head. This seems to come and go as often as his tics, but last summer and fall it was pretty consistent. (Right now, he just has a lot of head shaking, but I haven't noticed the banging or need for pressure.) Several months ago, I often found him putting things like books or wooden puzzles against his forehead (banging motions), and he also rubbed his head along the floor while on his hands and knees which landed him in the hospital with staples in the top of his head since he didn't see the corner coming. Poor little guy. He
  15. Hi, Do you know where he is located? I am still not even sure if my son has PANDAS (depends on which dr I talk to). I do know that his tics have increased this week and he is having a hard time writing his letters and numbers (wants to write them backwards). I have been sick with the flu all week and am wondering if the two are related. I have had him on a strict diet according to his IgG results and am disappointed by this recent surge in tics. I am starting to get so frustrated. I hope this passes soon as he is doing some testing for private school admissions in less than 2 weeks.
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