[Essential Oils to cure PANS/PANDAS]

As an FYI, turmeric contains methyl groups, so if there's an sensitivity to over-methylation, it might cause issues.

[SSRI]

I've tried Paxil, Zoloft, and Lexapro, with the latter seeming to have the fewest side effects. Dr. L says if there's a PANDAS diagnosis, you want to stay away from any drugs that increase dopamine - best to check out the Wikipedia articles for each drug, as some of the SSRIs do have some dopaminergic effects.

[Update - 5 1/2 months after onset 90% back to normal (no ivig)]

Do you think the Olive Leaf extract helped?

[how do I request specific labs like Igenex?]

You don't need a doctor to order the kit - just call Igenex and ask them to send you the kit. Once you have the kit, there's a form inside that the doctor has to sign, and the results will be sent to the doctor.

[Alternatives to IV Ig?]

Besides antibiotics, has anyone had any luck with other (perhaps less expensive and invasive) methods of clearing auto-antibodies? I'd be interested in hearing about any techniques, supplements, medications, etc. that you've tried.

 

Thanks!

[Experience with Yasko RNA formulas]

I've started to use the Ammonia support formula to address CBS and BHMT issues, and I actually think it helps. I'm interested to see if anyone else has had good results with any of the others? I was thinking the inflammatory support formulas, including cytokine balance and hyper-immune might be helpful with PANDAS.

 

Any thoughts?

[PANDAS in Adults]

Hey, thanks for responding.

 

I've had the OCD since I was a kid (maybe 8-10 years old?). It started as facial tics, then morphed into more mentally based. It has been on a off since, and was complicated by 12 years of Lyme (but that's better .

 

I don't remember how it all started, but it definitely could've happened suddenly (I imagine I had strep at least once as a kid, and my dad says I had Scarlett Fever at some point).

 

I just tried Augmentin 875mg for a month, which seemed to help at least a little with the mental o-c, but was going to talk to my doc about going up to 1000mg. I'm also seeing Dr. L in DC next week for the first time, so I was going to chat with her about it and have her do some blood work.

[PANDAS in Adults]

Has anyone had experience treating OCD (presumably caused by PANDAS) in adults? Would 1000mg of Augmentin XR 2x/day be a good starting place?

 

Thanks!

[Supplement Successfully Used For OCD]

I take up to 18 grams of Inositiol powder per day (I'm 33). It's hasn't been 100% effective, but it's definitely helped significantly.

[Helpful Threads for Lyme & related Diseases]

As someone who went through 13 years of Lyme, I've amassed a number of helpful resources:

 

1. http://www.lymebook.com/ (many books on Lyme and associated infections)

2. http://mpkb.org/ (one protocol)

3. Richard Horowitz's comprehensive book