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Lymefight

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  1. Well the anti inflammatories make sense but there is no steroids with Lyme as far as I know. I am trying the ibuprofen. Does the course of this mean the thoughts are constant or do they wax/wane in intensity until they go away? Or do they seem to follow more of a trajectory? Like the last 2 days have been better but last night around 11:30 they got really bad/overwhelming for him and today he woke up and they immediately started and he is so upset and fragile. He just néeds a break and I don't know what to do for him. I feel so heartbroken and I feel like he just can't go on like this. It is s o intolerable. It just seems like there should be a med that would ease this a bit. He is also very irritable and tearful-understandably so! Great start to 2014. I am too feeling pretty depressed but I am Pms and out of my deplin. LLMD also rxd deplin for him. Thx so much for the support! Christine
  2. Thank you all so much for the information and support. It means so much during this stressful time. He seems slightly better but how long does this last? I know probably different for everyone. I think the LLMD thought antibiotics were contributing to his symptoms particularly flagyl. I asked her about not stopping now. I guess we will see what happens and reasses depending on his response. What is this steroid burst I read about? All the lit I have read for Lyme is that steroids are really bad for you. Also, tell me more about how the ibuprofen helps please. Thx again all. This has been so hard for everyone.
  3. Thank you all so much for the information and support. It means so much during this stressful time. He seems slightly better but how long does this last? I know probably different for everyone. I think the LLMD thought antibiotics were contributing to his symptoms particularly flagyl. I asked her about not stopping now. I guess we will see what happens and reasses depending on his response. What is this steroid burst I read about? All the lit I have read for Lyme is that steroids are really bad for you. Also, tell me more about how the ibuprofen helps please. Thx again all. This has been so hard for everyone.
  4. New to this forum, which is wonderful, by the way! I am so excited. A little history, I have lyme, been treating one year, seeing much improvement. DS 9 years old also has lyme, just started treatment about a month ago. Always a worry wart type child, but before Christmas, he had a couple seizures and was on Neurontin and they increased his meds dramatically and he had a horrible reaction to it- couldn't walk, suicidal thoughts. Once we weaned him off, he seemed to do fine. Then, just the other day on Friday, he started having intrusive thoughts about being gay and it has gone on from there with horrible and I mean horrible, disgusting intrusive, disturbing sexual thoughts that bother him all day every day since Friday (4 days now). I am so bothered by where these ideas have come from. Yesterday was so bad, he was having suicidal thoughts again because he just can't bear these thoughts. This was a child who a month ago would hide his face under the covers if there was someone kissing on TV. I spoke with his LLMD and she thinks we should stop his antibiotics for a few weeks until we can get him more stable mentally, increase the lamictal he is now on, to focus on detoxing, and to get him to a therapist. We went to our family therapist today and it was very helpful and he did have a much better day today, but he is still having these intrusive thoughts and he has such guilt around them. Can anyone enlighten me why such a young child would have such thoughts? Although my husband and I have been very understanding and supportive, it does disturb us where this would come from. Thx in advance for any ideas and/or support!
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