Jump to content
ACN Latitudes Forums
  • Announcements

    • Administrator

      Forum Community Guidelines

      Forum Community Guidelines

      Our forums provide support for people dealing with neurological and related issues. Everyone joining this community should find it a safe haven where they are treated with respect, civility, and understanding.

      Your agreement as a user: You agree that you will not use this forum to post or send messages that are knowingly false, inaccurate, abusive, vulgar, obscene, profane, or sexually oriented. Text should not be defamatory, harsh, accusatory, intimidating, slanderous, an invasive of a person's privacy, or violate any law. Doing so may lead to you being banned (and your service provider may be informed). The IP address of all posts is recorded to aid in enforcing these conditions. You agree that the webmaster, administrator, and moderators of this forum have the right to remove, edit, move, or close any topic at any time should they see fit. You agree not to post any copyrighted material unless the copyright is owned by you or by this forum/website. Advertisements, solicitations for services or business, most research requests, as well as any type of research on the content of these forums by third-parties, are prohibited. Unauthorized use or reproduction of posts on these forums is not allowed. Any user who feels that a posted message is objectionable is encouraged to contact an administrator.

      Announcements, media requests, and research requests

      These need administrative approval. Please send to an administrator before posting.

      Inappropriate content

      Members are here for support and education. Check the list below for types of posts that are not allowed: Advertisements Flames or messages meant to intimidate, criticize, or harass others Threatening or obscene messages Messages discussing a private message (PM) from others Copyrighted materials that you do not own the rights to, except educational or research articles Messages containing or condoning illegal acts; also messages of suicidal intent Direct discussion of politics (please avoid) Specific or strong religious views Requests for donations for other organizations unless approved by administrator Solicitation of members for research, media projects or other projects, without prior administrative approval About links for other websites:

      You may have links in your profile as long as they do not violate our guidelines (above). Links within a post to online resources and articles are generally OK. Do not post links to other forum communities with the aim of soliciting other members to that community, thereby taking them away from this community.

      When a guideline is violated

      If you violate a guideline, you will be contacted by PM or email. We will try to resolve things amicably. We don’t like to ban members and rarely do, but this is an option.

      Updated March 19, 2010
    • Administrator

      Disclaimer and Privacy Policy


      The ACN Online Discussion Boards are intended to provide helpful information and allow sharing of ideas. Postings should not be considered as medical advice. All users should consult with their healthcare professional for questions or medical decisions.

      Users must accept full responsibility for using the information on this site and agree that ACN, Latitudes.org, advisory staff or others associated with the site are not responsible or liable for any claim, loss, or damage resulting from its use. Please remember that we do not actively monitor all posted messages and cannot be responsible for the content within. We can also not guarantee that access to the site will be error-free or virus-free.

      Reproducing any document in whole or in part is prohibited unless prior written consent is obtained. Web pages may be shared when passed on with the URL.

      Information posted on the Forum is done so voluntarily and will be accessible to the public. The material posted may be used by ACN (without the identity of the user) for publications or educational purposes. No compensation will be provided for the use of this material.

      Note: ACN is providing this service with the expectation that users will abide by the guidelines provided. We reserve the right to monitor postings and remove or refuse inappropriate and questionable material, as well as remove dated postings at our discretion, for any reason.

      Privacy Policy

      When you register with the Forum, you need only give your email address, which is available only to the Adminstrators and will not be shared on the Forum site or with others in any format. Forum users will see only the user name you choose to provide.

      Our web server collects and saves default information logged by World Wide Web server software. Our logs contain the date and time, originating IP address and domain name (the unique address assigned to your internet service provider's computer that connects to the internet), object requested, and completion status of the request. We use these logs to help improve our service by evaluating the "traffic" to our site in terms of number of unique visitors, level of demand, most popular page requests, and types of errors.

      You have the option of enabling to save your username and password data when you are accessing interactive parts of our websites, to allow your web browser to "remember" who you are and assist you by "logging on" without you having to type your username and password repeatedly. This is known as a cookie and it can be enabled or disabled in your control panel. Cookies are small files stored on your computer's hard drive that are used to track personal information.

      Except for authorized legal investigations, we will not share any information we receive with any outside parties.

      Updated March 19, 2010


  • Content count

  • Joined

  • Last visited

  1. Respen-A or Oxytocin has anyone used these

    My two PANS/Lyme boys are using Oxytocin nasal spray for 1 week so far, but have made multiple changes that week, so hard to tell if helped (but overall they are calmer). We have an RX waiting to use, but it muscle tests poorly so will not just yet. It must work in some people and not others. Would love to hear who it did/did not work for.
  2. Help with some info please

    Hi jukyardjean, I was googling low SigA and found your post. I am trying to improve my boys (6, 8yo) SigA which has been persistently low for well over a year, despite various treatments, ABx, GAPS diet, food elimination. Our latest stool test also shows extremely high enterococcus and strep, and they are identified as quite problematic (Bioscreen test from Australia) vs Doctors Data which lists under good flora. Our Aussie Dr also said, after talking to Dr Henry Butt, the microbiologist at Bioscreen, that enterococcus and strep are burrowing into the intestines and causing the damage to mucosa and therefore low SigA. They said imperative to treat with AMPICILLIN (I believe vanco and azithromycin might be alternatives, depends). They say very low dose, to BALANCE the flora, not to kill it. But in our case, we had nearly zero good E Coli, and also have to support E coli with Mutaflor. One child has this imbalance i found here on this website, who also use Bioscreen and Dr Butt. http://www.adhd.com.au/Intestinal_Dysbiosis.htm . We are right in the middle of treating with Ampicilin, so I won't know until we test afterwards (and how long it takes to repair SigA lining??) to see if this was actually the right treatment or not, but I will post if so. I have heard that lining can repair in less than 7 days?? But other Drs say years… Also, we were told that the overgrowth of entero / strep causes the yeast overgrowth and yeast also destroys the SigA. Our yeast is in biolfim and no longer shows up on stool reports, but it is still there… when we do biofilm protocols we get die off. And imbalance of wrong bacteria changes ph of gut, which then prevents good bugs from growing…. then more yeast. If we balance the strep/entero, the theory is the yeast will die off by itself and everything will be back in order…………….. I only hope this is true! Please let me know if you hear anything differently. I only got this perspective after talking to the Australians. I am in Singapore and rely on American and Australian Doctors.