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ChiNC11

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  1. She is pandas but also had HE diagnosis from Duke. I don't really think it's HE however. She had plasmapheresis last month and we have been doing ivig every 2 weeks. She will have her second round of rituximab on Monday. Maybe I just need to sit tight? Just really frustrating because she has been so sick for so long. her OCD led to anorexia so we really need something to turn around soon.

  2. My 13 year old daughter started rituximab Monday. Can anyone share their experience? How long before you saw results? Do they get worse before they get better....because she seems to be the worst she's been in a very long time

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