kmb123

I am certain that there is a neurotoxin connection! keep up the good work!

It turns out that the Lyme (boriella bergdorferi bacteria) and Strep are neurotoxin bacterias. My daughter is neurotoxin sensitive/allergic/reactive call it what you want and contracted the LYME bacteria and has PANDA- L for LYME, but it is all the same thing, Lyme or Strep. Our food these days from the grocery store also have neurotoxin in them, preservatives, additives, color additives are all neurotoxins as well as mercury, lead, and other bad stuff. You can find a list of neurotoxins in the food today, but basically if you read it and can not pronounce it, do not eat it. Neurotoxin sensitivity runs in families, it did in mine. I cleaned up my daughters diet, cooking from scratch, fresh and mostly raw foods for her to reduce her her ingestable neurotoxin exposer. She went on minocycline, it crosses the blood brain barrier to fight the brain bacterial infection. We will be on antibiotics for three more months after her symptoms subside, to make sure her bacteria infection is at a low enough level for her immune system to keep it down. Her symptoms were worse before they got better as her immune systems fights the bacterial infection and she has to process out the bacterial neurotoxins through her liver, kidneys and lympathic system. Start monitoring your neurotoxin daily exposer just like some monitor kids blood sugar levels and you will feel a lot better during your treatment!

Thank you, you guy's are the best!

We live in Southampton New York and we have had two warm winters in a row. It turns out that the blacked legged deer tick does not hibernate, they require -32 degrees with snow on the ground to not be looking for their next meal. http://www.dnr.state.oh.us/Default.aspx?tabid=23808 Thank you for any abx and all the info, I need all the help we can get! Sending lot's of healing love to all of you!

I am reaching out because I agree with you about the testing, co infections and the short antibiotic length. I would do anything to keep her from a decline. I am on a two month wait list for a LLD. Could you tell me about your antibiotics use, what was used, for what what period of time and what co-infections you may have had. She seem to be herxing a little, more symptoms and a new hyperactivity and obsessive behavior since we started the Doxycycline. I can not thank you enough, the diagnosis of PANDA +L is PANDAS symptoms, without strep but with Lyme instead. My daughter would be the neurologist's first case, but at least she put it together correctly, because, I think that is exactly what my daughter has.

My seven year old daughter just tested reactive for B. burgdorferi with two bands, 41, 58 on the western blot on 6/4/13. Our Pediatric infectious disease Doctor Sharon Nachman prescribed 21 days of Doxycycline Monohydrate and a referral to the best pediatric neurologist in our area Dr. Marsha Bergtram. We believe that my daughter contracted b. burgdorferi by a tick bite the end of January 2013. The tick was sent away for pathology and came back negative for b. burgdorferi, so I thought she was in the clear (false negative or she was bit by another tick that we never saw). The beginning of March she presented with a few days of fevers, (they would last 24 hours, resolve them come back a week or so later), complaining of growing pains (body ache), headaches, her right jaw hurt, sores in her mouth, a loss in her hearing (put the TV up so loud), but more dramatically a cognitive change since the end of March. She has been reading since she was 2 years old and has always been a talented gifted student. List of what we have noticed: Memory loss, she frequently is forgetting what we did, "I did not eat dinner, what did I eat for dinner."Problems pronouncing words that she knew how to say correctly or making basic counting mistakes. She did not know what road we were on and it was the end of our own street. She has been making poor judgment climbing things acting more like a 4 year old, needing to be reminded that it is not safe to walk on the ledge of the fence in the back yard or climb on the outside of the stairway railing. She is forgetting the names of her new toys, so she writes notes to herself of their names and how they like to play. She is playing differently, she only wants to play with these new toy's that she writes notes about. She is "relying on Brynn in the morning," (her words) her 5 year old younger sister to help her when I am sleeping. She became dizzy, walking funny then hit her head on the bus. She has had some behavioral changes since the day after Easter Crying a lot for no reason is a new behavior. Waking a lot in the night for bad dreams and wanting to sleep in out bed is a new behavior Playing by herself on the playard at school instead of with her friends that like her. Has been anxious and worried (new behavior) that she will loose me. Loosing her school work, getting upset and it turns out to be in her backpack. The Swedish research on lymphocytic meningoradiculitis, Bannsworth Syndrome (referenced by Dr. Nachman) recommendations for treatment with Doxycycline Monohydrate is not indicated for children ≥8 years of age, but she is allergic to Amoxicillian so they went forward with treatment. The research shows that in adults Doxycycline Monohydrate can be an effective treatment for the b. burgdorferi and also against other co-infection tick pathogen human illnesses, such as Bartonella Bacilliformis, b. henselae, b. quintana, ehrlichiosis, but for pediatric neurological presentations with b. burgdorferi in cases >9 years of age a third generation cephalosporins, IV ceftriaxone was more effective then Doxycycline. However Doxycycline is not an effective treatment of b. microti, b. ducani, Babesia or Babesia FISH. Their treatment is usually with Levofloxacin or Atovaquone combined with azithromycin. US National Library of Medicine National Institutes of Health http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1032595/pdf/jnnpsyc00559-0001.pdf http://www.ncbi.nlm.nih.gov/pubmed/3070690 http://www.ncbi.nlm.nih.gov/pubmed/1606475 http://www.ncbi.nlm.nih.gov/pubmed/7847012 http://www.ncbi.nlm.nih.gov/pubmed/2782858 http://www.ncbi.nlm.nih.gov/pubmed/3056201 http://www.ncbi.nlm.nih.gov/pubmed/16012005 We had three good doctors appointments here in NY this week. • Pediatrician Jill Creighton, Stony Brook hospital • The head of the pediatric infectious disease department at Stony Brook, Dr. Sharon Nachman, • Dr. Marcia Bergtram, pediatric neurologist, Hyde Park, NYC several hospitals. The infectious disease doctor confirmed the Lyme exposer and the neurologist believes that my daughter has the equivalent of P.A.N.D.A.S But instead S for strep, she most likely is being affected as P.A.N.D.A.L for L. Lyme.

My seven year old daughter just tested reactive for B. burgdorferi with two bands, 41, 58 on the western blot on 6/4/13. Our Pediatric infectious disease Doctor Sharon Nachman prescribed 21 days of Doxycycline Monohydrate and a referral to the best pediatric neurologist in our area Dr. Marsha Bergtram. We believe that my daughter contracted b. burgdorferi by a tick bite the end of January 2013. The tick was sent away for pathology and came back negative for b. burgdorferi, so I thought she was in the clear (false negative or she was bit by another tick that we never saw). The beginning of March she presented with a few days of fevers, (they would last 24 hours, resolve them come back a week or so later), complaining of growing pains (body ache), headaches, her right jaw hurt, sores in her mouth, a loss in her hearing (put the TV up so loud), but more dramatically a cognitive change since the end of March. She has been reading since she was 2 years old and has always been a talented gifted student. List of what we have noticed: Memory loss, she frequently is forgetting what we did, "I did not eat dinner, what did I eat for dinner."Problems pronouncing words that she knew how to say correctly or making basic counting mistakes. She did not know what road we were on and it was the end of our own street. She has been making poor judgment climbing things acting more like a 4 year old, needing to be reminded that it is not safe to walk on the ledge of the fence in the back yard or climb on the outside of the stairway railing. She is forgetting the names of her new toys, so she writes notes to herself of their names and how they like to play. She is playing differently, she only wants to play with these new toy's that she writes notes about. She is "relying on Brynn in the morning," (her words) her 5 year old younger sister to help her when I am sleeping. She became dizzy, walking funny then hit her head on the bus. She has had some behavioral changes since the day after Easter Crying a lot for no reason is a new behavior. Waking a lot in the night for bad dreams and wanting to sleep in out bed is a new behavior Playing by herself on the playard at school instead of with her friends that like her. Has been anxious and worried (new behavior) that she will loose me. Loosing her school work, getting upset and it turns out to be in her backpack. The Swedish research on lymphocytic meningoradiculitis, Bannsworth Syndrome (referenced by Dr. Nachman) recommendations for treatment with Doxycycline Monohydrate is not indicated for children ≥8 years of age, but she is allergic to Amoxicillian so they went forward with treatment. The research shows that in adults Doxycycline Monohydrate can be an effective treatment for the b. burgdorferi and also against other co-infection tick pathogen human illnesses, such as Bartonella Bacilliformis, b. henselae, b. quintana, ehrlichiosis, but for pediatric neurological presentations with b. burgdorferi in cases >9 years of age a third generation cephalosporins, IV ceftriaxone was more effective then Doxycycline. However Doxycycline is not an effective treatment of b. microti, b. ducani, Babesia or Babesia FISH. Their treatment is usually with Levofloxacin or Atovaquone combined with azithromycin. US National Library of Medicine National Institutes of Health http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1032595/pdf/jnnpsyc00559-0001.pdf http://www.ncbi.nlm.nih.gov/pubmed/3070690 http://www.ncbi.nlm.nih.gov/pubmed/1606475 http://www.ncbi.nlm.nih.gov/pubmed/7847012 http://www.ncbi.nlm.nih.gov/pubmed/2782858 http://www.ncbi.nlm.nih.gov/pubmed/3056201 http://www.ncbi.nlm.nih.gov/pubmed/16012005 We had three good doctors appointments here in NY this week. • Pediatrician Jill Creighton, Stony Brook hospital • The head of the pediatric infectious disease department at Stony Brook, Dr. Sharon Nachman, • Dr. Marcia Bergtram, pediatric neurologist, Hyde Park, NYC several hospitals. The infectious disease doctor confirmed the Lyme exposer and the neurologist believes that my daughter has the equivalent of P.A.N.D.A.S But instead S for strep, she most likely is being affected as P.A.N.D.A.L for L. Lyme.