trintiybella

Is it typical for Dr. Jones (and other doctors) to check for viruses like: Epstien bar, herpes, syphillis etc??? I hear that the Igenix test for lyme can be skewed fomr these viruses????

T.Anna - Your not alone. Please don't get down on yourself. We are only human! Our kids are very sick and we need a lot of patience but we can only take so much! Take a breath. Do something for yourself. Hang in there and vent whenever you feel like it. Thinking of you....

I know this looks positive, but doxy stopped working. I am looking into other things going on. I believe it says that this test could be a false positive too. IGM... 18 kDa ** 23-25 kDa 28 kDa 30 kDa ** 31 kDa + ** 34 kDa IND ** 39 kDa ** 41 kDa ++ 45 kDa 58 kDa 66 kDa **83-93 kDa IGG 18 kDa ** 23-25 kDa + 28 kDa 30 kDa ** 31 kDa IND ** 34 kDa ** 39 kDa ** 41 kDa +++ 45 kDa 58 kDa + 66 kDa ** 83-93 kDa +

P.Mom. This is crazy. I was told she had lyme and bartonellal Here are the IGM results: 18 kDa - ** 23-25 kDa - 28 kDa - 30 kDa - ** 31 kDa - ** 34 kDa - ** 39 kDa - ** 41 kDa + 45 kDa - 58 kDa - 66 kDa - ** 83 kDa- Also...what is the "41" band if its not specific to lyme? I am not sure where the "PM" goes either. LOL I will try to figure it out. Can you pm me and I will try searching for it?

DeDee - does that mean the "plus signs" after the bands don't mean anything??? and why do some bands have one "+" sing and some bands have two "++"???? Ugh. ....And what are the asteriks for????? Do they mean anything????

So it looks like my child FOR SURE has lyme, right? Says IGG results 18 kDa - ** 22 kDa - 28 kDa - 30 kDa + ** 31 kDa - ** 34 kDa - ** 39 kDa IND ** 41 kDa ++ 45 kDa - 58 kDa - 66 kDa - 73 kDa - ** 83-93 kDa - Is there suppose to be a IGG or IGM listed next to the bands? Or are the results for the IGG and IGM somewhere esle on the report?

I PM'd you P.Mom.

P.MOM- Would it be ok to PM you?

the lyme doctor said she had all the bands to say that its lyme/bart. but i was wondering if the test could be wrong. another practicioner the other day said if your test is possitive it is definitive that lyme is present. no question about it. i was just wondering....

at first she tested possitive and then the next test was negative but she still had all of the symptoms that we are trying to rid her of. we are not sure if she ever had lyme/bart. since being on treatment has not helped in over a year. can i have your thoughts???

This sounds pretty scary. Can you tell me what "last line of defense" means? If if doesn't work for us, does that mean there is nothing left in this world that will help the severe constipation supposedly from clostridia?

Can the Cam Kinase be high because of viruses?

has you ever used this? i have searched and found different advice about dosing. can you tell me how much you used? thanks!

Me too. LOL Had to change. My girl googled other name and found tons of past posts. Lots of trouble here. Sorry

I think my child's constipation in related to clostridia...so doctor is going to attack the clostridia and then see if constipation improves.

My child has the clostridia strain that causes constipation. Severe constipation. Do you still think florastore would be good for this?

is constipation more common with pandas or tic born illnesses? she is constantly constipated no matter what i try.

I have her OCD under control with yeast treatment, but she is suffering big time with all of the intrusive bombarding thoughts in her head. Can you tell me if you have ever experienced this and what has helped????

My child has severe insomnia and so far antibiotics for lyme/pandas has not helped with sleep. Have anyone of you tested for viruses? and if positive, can you tell me what medications you have tried? thanks/

my child was sick since birth and i was wondering if a child could have PANDAS from day one of their life? my child was never ever sick as a child either. is it possible to have PANDAS nad be so heathy (as far as colds, flu etc???)

My child also broke out in a rash after augmentin. Now I am wondering if it was scarlet fever popping up.

the bactrim alone won't work on bartonella, correct? I was told you always need 2 antibiotics for that.

did you see a lot of yeast when you started this? did you start full dose? thanks

Has anyone ever used this alone for PANDAS and had any success?

Yes, and after some more thought...I think its a bacteria problem that is being helped by the oil of oregano, because I have had her on tons of yeast medications and they did not good. So the oil of oregano must be doing something to bacteria, but how do you know which bacteria it is?