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JosyJoy

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    JosyJoy reacted to MomWithOCDSon in Is this OCD? Need Advice   
    I don't know that the 50 mg. of inositol in his multivitamin is enough to make a difference, but you might see if you can find another supplement that has all the same ingredients except for the inositol, and see if his behavior improves at all. If he's high in serotonin naturally, then I suppose it's possible that the 50 mg. of inositol could be "activating" him, i.e., increasing anxious behaviors.
  2. Like
    JosyJoy reacted to Sheila in Is this OCD? Need Advice   
    Good luck with looking into allergens and chemical exposures. Am not sure if you have seen this article on triggers on our site. It is expanded in our book (the book is featured on the website where those worksheets are provided); the article gives you a quick start. http://latitudes.org/articles/finding_triggers.htm
     
    The comment about infection was just a general one, am not implying that one exists. It's good he hasn't been on a lot of antibiotics.
     
    For sure it could be a good idea to look into candida, especially since this was mentioned to you already. Many with tics report a reaction to sugary and yeasty foods, and this is sometimes connected with candida.
  3. Like
    JosyJoy reacted to Sheila in TS in Late Teen & Adulthood   
    For the inhalant allergies, you might want to consider Modified Quantitative Testing (MQT). It is mainstream, generally covered by insurance, and is considered more accurate than standard skin pricks. It provides a more specialized therapeutic dose than standard inhalant testing. Could look for someone experienced in this technique.
     
    If you introduce a new food back into his diet that you already know he has been sensitive to, a very small amount should be used to avoid the possibility of a significant reaction. Also, try to have it in pure form (not a processed food) and organic. For example, a little organic cream of wheat made with water versus a muffin. This assumes wheat is a problem, not a gluten sensitivity.
     
    Avoidance of a food for more than a year is often helpful in reducing reactions in mild to moderate food issues, but it depends on the severity and type of food. Peanuts, tree nuts, fish and shellfish are often the most long term. Some allergists prefer to have a child retested for a food before introducing it orally, to be sure it seems safe -- again, depending on the circumstances; and some want to have any oral challenge done in their office. You can be the judge of whether that is needed based on the level of reactions to foods that you've seen.
     
    It is important to be sure that he avoids all chemical additives in foods including artificial sweeteners, while you also watch the environmental exposures. And keep sugars to a minimum.
     
    Has anything else changed for him -- new house, remodeling or painting, leaks and mold, pest treatments, new car, new or remodeled school? And what do you think about his bedroom--how is it as far as electromagnetic exposures and dust, pets, etc?
     
    Sheila
  4. Like
    JosyJoy reacted to Sheila in Is this OCD? Need Advice   
    Hi -- again, have a related comment under your Tourettes forum thread.
     
    NAET is difficult for me to respond on. Some people find it helpful and some reputable practitioners endorse energy medicine like NAET and similar approaches; other families report it was not useful. It may depend both on the the individual health circumstances and the person doing the testing.(If NAET treatments were going to clear the food allergies, shouldn't your son be able to tolerate the foods better and not need the strict elimination diet? Or did you just use it for identifying troublesome foods?)
     
    I can say that OCD, tics and hyperactivity can all be affected by foods, allergens, and chemical exposures. I personally would explore more traditional testing for inhalants (as mentioned in Tourette forum). Not sure if that is feasible for you.
     
    It's not possible to predict whether managing allergies will completely eliminate symptoms, but it should help. If there is an unidentified exposure or infection that is creating an underlying immune hypersensitivity, it could be difficult to completely heal until those factors are under control.
     
    These are just general comments, naturally can't be sure about your particular situation. You son sounds like a real trooper though, having cooperated with your efforts -- and fortunately finding some success. Sheila
  5. Like
    JosyJoy reacted to Sheila in Is this OCD? Need Advice   
    Hi JosyJoy, I just posted a note to you in the Tourettes forum, where you had started a thread. It is related to food allergy and other allergens, and how they can cross react. Not sure if you will find that a match for your son. http://www.latitudes.org/forums/index.php?showtopic=19978
     
    We do know from reports we receive that OCD behaviors can be triggered by foods and allergens, though of course there can be other factors playing a role, as Nancy has pointed out. Hope you will keep us posted on how things work out for you and your son. Sheila
  6. Like
    JosyJoy reacted to Sheila in TS in Late Teen & Adulthood   
    Hi JosyJoy, It's good you have been able to stick to a rotation diet and see improvement with tics, and you say you've seen they get worse if he eats the wrong food. But I know that is hard to maintain that diet. Sometimes people can let up on the diet a little after an extended time, or at least experiment with doing that. Sometimes the food reaction is related in part to the total load of allergic issues a person is dealing with.
     
    In other words, if he is an allergic child and those allergies are not under control (dust, mold, pollen, animal dander) or he is exposed to toxins/scented products his food sensitivities might be worse. Since he is so sensitive to foods, there is a chance he is also sensitive to other things in his environment. Did your doctor advise you in this area or have you had a chance to look into it?
     
    Tics often do get better with age-- just as childhood allergies often improve over time. Of course it is hard to predict.
    The Great Smokies Medical Center clarifies some of the common cross reactions that can occur between foods and inhalant allergens. See the info below. Does your son have allergies? If so, they may need to be controlled in order to get the best response to dietary approaches.
     
     
    If you are especially allergic to ragweed, there is an increased chance that you will react to the following foods through cross-reactivity: chamomile, melons, squash, egg, milk, mint, bananas, and lettuce.
     
    If you are especially allergic to grass pollen, there is an increased chance through cross-reactivity that you will be allergic to: legumes, including beans, peas, cottonseed, soybean, and its byproducts, and cooking fats.
     
    If you are especially allergic to birch pollen, there is an increased chance that you will react to the following foods through cross-sensitivity: raw apples, carrots, and celery. More info from this site here.
     
    Does any of this seem to be a match for your son? Sheila
  7. Like
    JosyJoy reacted to MomWithOCDSon in Is this OCD? Need Advice   
    Yes, it sounds as though it might be an OCD behavior. If he's high on serotonin, then you don't want to use inositol or an SSRI. But if he's high in glutamate and histamine, you could try some supplements to modulate those levels, which we've found to be helpful in curbing OCD and some of the anxiety behind OCD behaviors. N-acetylceistein (NAC) helps modulate glutamate, and quercitin is a natural antihistamine that prevents histamine production at the T-cell level. We also use a regular old, over-the-counter- H1 inhibitor (Pepcid), which has done truly wonderful things for our DS.
     
    And finally, not to sound like one of those people who thinks every case of Tourette's or OCD is actually mis-diagnosed PANDAS/PANS, but have you ruled out underlying infection and/or an autoimmune reaction to an underlying infection as a root cause behind your DS's condition(s)? I only ask because, if infection or autoimmune ARE at the root of his issues, then all the supplements and/or medicines may do is help manage things or reduce them. But if you can get to the root, you may be able to eliminate many, if not all, of the issues, over time.
     
    Good luck!
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