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astridrobi

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  1. I'm in the northwest corner, but will travel anywhere in the northeast, really. Is "Oxford" insurance? astrid
  2. WE have an appointment with Dr. Bouboulis for September 2. That seems so very far away, and we are so very desperate for help. Sigh. (sob) I'll keep calling back for a cancellation and make anything work. She saw her original allergist who did the bloodwork in 8th grade; he was very open and receptive to dealing with it, and is sending her for more bloodwork including a full thyroid, lyme, lupus, etc. We'll see how that turns out. Her anxiety seems mainly to be in school, and now the school wants to put her on a 504 plan. I'm wondering about just pulling her out to homescho
  3. Right, I understand the whole "you get what you pay for" philosophy, but we also need a roof over our heads. ;-) I JUST hit on the NAC study for trich yesterday and stopped at the health food store last night. She took a dose last night so here's hoping it'll be helpful. Travel isn't too much of an issue, but would love some Hartford area resources if you wouldn't mind sharing some names. I'm feeling so much more confident and a tiny bit of relief since finding this forum! astrid
  4. So BOTH Dr. O'Hara and Dr. B? Do they specialize differently? astrid
  5. We have good insurance; Dr. O'Hara doesn't take insurance? What exactly are we talking about in terms of dollar amounts for a visit to her? We're already paying out of pocket for dd's hypnotherapist to get a handle on the trich. Not sure we can swing another giant chunk of money. :-/ Dr. Bouboulis--- off to google! Thanks, astrid
  6. Thank you all so much for your replies! We live in Connecticut, and my gut is just telling me that this is not just anxiety and OCD. I'm concerned though that she doesn't have a definitive list of positive strep tests with all the illnesses I've listed. The mycoplasmic pneumonia was diagnosed on New Year's Day last year when our ped met us at the office at 6 pm and said, "I think it's mycplasmic pneumonia..... here are two prescriptions. Call me tomorrow and we'll decide whether to hospitalize her based on her condition tomorrow." He used the term "mycplasmic pneumonia." But never ment
  7. Hi there, I'm new here, and would like some input into my dd's history; I'm wondering whether it's worth pursuing a PANDAS diagnosis, and whether there's enough "evidence" that points to PANDAS. In a nutshell: Dd is 15 and a sophomore in high school. In winter of 2nd grade, she had a routine head cold/sore throat virus. Soon after, she developed cold urticaria. (Hives brought on by cold air.) Ped. said it was just a strange autoimmune reaction to the cold virus, and was most likely transient. It was. But our previously happy, bright, normally-developing daughter develo
  8. Hello everyone, I'm new here and stumbled upon this forum in my search for answers regarding my daughter's sudden onset anxiety and OCD. Like all of you, I'm sure, when your child started getting ill, I'm desperate for answers and seem to be hitting roadblocks with health care providers at every turn. I'd never heard of PANDAS until last week, and the more I look into it the more I think it might be somehow related to what's happening with my dd, age 15. Once I'm fully approved to post here, I'd like to list the chronology and her symptoms and see if this educated community has an op
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