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Posts posted by logismum

  1. I notice that a lot of people or their kids have 1 vocal or a couple that they have for quite a long peried, ie a cough or grunt that sticks around for a year or more.


    What about vocasl that are just all over the place and not consistent and have no pattern at all, Is this common? Apart from my sons "Ah" vocal that still pops up every now and then his vocals are very messy, Lots of different sounds or words that just come out. Can be anything from 'ssss' to 'No' to 'Ohhhh' plus a heap more. They have been very present this weekend just passed :/

  2. Hi I'm trying to find a good basic multi for my son, Chemar i looked up the link you posted, Would that be suitable for a 6 year old though? I see they have a childrens basic nutrients, Is it still the same basics just smaller qty's. The multi we were using had other ingredients not listed like xylitol and other stuff i wasnt sure of so i found out.

  3. I haven't used Bontech supplements but have been considering them for my son. I have fully read through the site and case studies etc and did notice that a percentage of people noted an increase in symptoms in the first 1-2 weeks then improvement started. Some longer. Are you giving her the full dose now? I read it also suggested to drop back down for a bit in dose and then trying going back up again. Perhaps some peoples bodies need more time to get used to it. I'm probably not much help :/


    Hope it all works out and will be interested in hearing how she goes :)

  4. I have no idea what he meant and i didn't bother to ask as i thought you arent the dr for us. he did say he had seen TS kids before. I'm hoping the appt with the neuro will be more helpful.


    Thanks for the comment about the bontech supplements i had thought of that, that perhaps i should wait for a dx. I really don't know what else he could have besides TS though?


    The waiting game begins, I wish i wasnt so impatient :(

  5. A couple of weeks ago we seen a new paedatrician in town to try and get a dx for my son, This did not happen as he said he doesnt look like a TS kid!! :angry: He did midly motor and loudly vocal tic in the 45min appt though so go figure. Anyway the only good thing i did get out of the expensive appt was a blood test to check some viatmin levels and he also got a liver function test done. I am waiting to get a physical copy for my records but i was told that all the levels were within normal range, i'm just wondering in by how much so will have to wait for that. He tested for.....Magnesium, calcium, zinc, iron and i think something else. I guess my question is will my son still benefit from vitamins if his levels are ok?


    We also have run out of vitamins from our natropath so my son hasnt been on anything for about 3 weeks now and i havent noticed a huge difference either way (maybe a little more vocal) so i am considering trying the Bontech supplements which have more correct levels suited to kids. Would i just start with the TS Control or purchase all of the products and introduce them slowly? He is still 90% vocal the rest motor. Also for those who dealt with Candida/leaky gut would you get that cleared first before introducing vitamins? I'm still only working with the naturopath on this one and need to get into her to do the candaplex/probiotic she's wants him to do next.


    In the last couple of weeks we have managed to find ourselves a new gp who listened and is taking it seriously, I got a referral to a paediatric neurologist in Brisbane, (australia) who has experience with TS and was recommended to me from other parents on the wonderful australian ts fb page, Just waiting on a phone call and appt.



    Any help/adivice appreciated :)


  6. I don't really know if it's helping with tics as such as we started it around 2 weeks after my son started vocal ticcing. Our Natropath put us onto it because she says it's just a good all rounder multivatamin thats made for brain fuction. We have been on it about 6-8 weeks and my son is 6.5yrs old. We have also made many dietary changes for him. It's hard to know if he would be way worse without it all. Our biggest challenge atm is getting his gut healthy. We are at the very begining of the journey and don't have a diagnosis of Ts just anxiety with tic disorder that was given at around 4.5 - 5yrs. We have also just included another vitamin called inhinbin 2 this week that includes other viatmins like vit c, B6 etc.


    I have looked up Bonnie's supplements before and am considering them for future use but was unsure on how we get them here in Australia?

  7. Hi there

    I am probably asking a question I have asked before but just looking for reconfirmation re magnesium. My son is taking approx 3/4 of a teaspoon of natural calm every morning and having an eps salt bath most nights. So far this has seemed to keep things at bay ( well we think it has it is hard to measure) He is 6 and weighs 25kg....should I be giving him more than this - gradually increasing dose or this an ongoing dose ? The reason I ask is he is suffering a bit of a tic explosion at the moment so I am looking at what to start with him.


    It is very overwhelming as I read to know where to start in terms of supplements...I have a list of approx 50 that I have read have helped some people. I keep hearing repeatedly that a good multi and maybe fish oil, taurine would be good ? I have had the bonnie grimaldi supplements in the cupboard for a while and was holding off using them until we seemed to need them. Do you think I should just start these along with the natural calm and bypass all the others I have read about ?

    Where I live in Australia there are not a lot of practictioners out there with any experience or even knowledge of TS, so to do this under someones guidance is difficult.

    We have cleaned up his diet A LOT and on the weekend he had a few parties and would have consumed a lot of 'party food' considering his diet doesnt contain much of that stuff anymore. Sausage sizzle, a soft drink, a few chips, birthday cake, fish and chips amongst other things. Now the tics have increased significantly - I cant help but think it is quite connected. It is a tough gig with a 6 year old - he hates missing out and I hate to constantly be depriving him. but what do you do ?!

    really appreciate anyones feedback re natural calm dose and supplement suggestions.tonight I bought a tub of magnesium capsules - it says each capsule contains magnesium as amino acid chelate 150mg. WOuld this be worth giving him with the NC or separately or not at all ?

    thanks so much in advance :)



    I don't have lots of experience yet with all the vitamins and i'm in Australia too so know how you feel about not having guidance for all this. I did post a week or 2 ago about how we had cleaned up my sons diet for approx 4 or more weeks then went to a birthday party and within the hour he had tics i'd never seen before so i absolutely believe the food/gut/brain connection would most likely cause a tic increase. I also have posted somewhere about a multivitamin that we are using from our natropath and it has all the major helpers in it. Theres a link in one of my posts if it helps.

  8. We had a appt with our natropath yesterday so do some simple allergy testing, She just did one that worked on him holding the food or item and used a machine that detects vibration or something like that (i will be getting more in depth allergy testing done soon)


    anyway she tested him on fish oil and he did react to it. So i'm glad that i took him off it after roughly 14 days a couple of weeks ago as i felt it really made his vocal tic worse.


    My question is would it be likely that he would also react to flaxseed oil? I didn't have any with me to so she could test him but he has been on it for about a 14 days he has all these new tics i've never seen before, he has always been really mild in motor tics.


    Do some kids have trouble with omega's in general? or should i try something else like Krill oil?

  9. Ok thankyou i will take a look and talk to our Natropath about it.



    One thing that is doing my head in is this candida diet!!!


    Dr Bruce semons book uses potatoes, pumpkin and other google pages say no starchy vegies, Then he doesnt use cinnamon and coconut but google searches say they are 2 of the biggest helpers in beating candida. Also he says no nuts but other candida diets have an allowable nut list. I'm sooooooo confused about what i'm feeding my son which is already super limmited due to him always being very fussy :(

  10. Thank Chemar for the response, It certainately has shown me that we are on the right track diet wise. We have no dr's diagnosis of the candida just from our natropath who did iridology and i dont like my chances of finding a dr willing to work with us in our area but i will keep trying.


    He is currently just on a bowl digest that she says helps repair the bowl/stomach connection then wants to put him on Candaplex, i'm not sure if its just a product for Australia but it has almost all the ingredietns the same as the Candida clear except for the one you mentioned :/ I will have to research that.


    Heres a link to the ingredients in the one she plans to use if someone can take a look for me.






    Also a quick question about epsom salt baths, Is there any danger in doing them nightly for a 6.5yr old especially during the more intense weeks? i'm doing 2 cups in a bath for 20mins

  11. Hi


    I took my son to a birthday pary yesterday afternoon and gave in and let him have some mini pies and sausage rolls and a piece of birthday cake well within the hour he had all these body tics he has never had before. someone at the party was also spraying insect spray. When we got him home i immediately popped him in a epsom salt bath and gave him his second lot of multi vitamin and bowel digest. he also had to go to the toilet for number 2's and said he had a tummy ache.

    The tics he started at the pary have now dissapeared.


    We have been on a gluten free, low lactose (full dairy free this week) no colours, preservatives and low sugar diet now for about 6 weeks. so my question is would food really bring on a reaction that quickly? We are also dealing with candida/leaky gut so would this impact the quick reaction also? It sure did show me just how important diet etc is.


    Next question for those that have had to deal with candida i'm wondering what kind of differences you noticed once the condition was dealt with? ie: generally better wellbeing, tic improvement, willing to eat better and less sugar/carb cravings etc....


    Also a question on vocal tics. My son only has very mild motor tics but the vocal one has stuck around changing in severity for about 8 weeks now. He is getting l-carnitine (100mg) and taurine (500mg) in his multi since i upped his dose which i've heard can help. After last weekend when he had a far bit of cheese and his daily lactose free yogurt his vocal increased again this week passed so i decided to do this week completely dairy free! Well the vocal has come right back down to just a handful of times a day, Has anyone found a connection before dairy and vocal tics?


    Any opinions would be greatly appreciated :)

  12. Hi there have u found this vitamin has helped with ur son at all ? Thanks :)



    Hi, He has only been on it about 3 weeks so i can't really say yet if it's helping tic wise. My boy doesn't have any major motor tics and is mostly vocal for the last couple of months since vocal started. The vitamin definitely has great things in it for the brain and is used a lot in downs syndrome kids as well as those with ADHD so it would probably be even better for those with TS+. The Natropath seems to think when we are about half way through the tub we should start seeing some difference in his general wellbeing. We are also dealing with Candida and leaky gut for him which also impacts his health.

  13. Hi I'm new! Where can I find the cognisense vitamin? I would like to try it with my boys they both have Tourette's and I think this might help them.


    Hi My2boys, I think you can only get it through a natropath or practioner but maybe try a google search and see if it's possible to get online. My son is now taking double dose (the adult dose) as i checked out all the safe mg levels etc and he isnt getting constipated. Good luck

  14. Hi

    it looks ok I think, but I have no idea what the last 3 ingredients are as I have not heard of those fruits?


    But yes, more magnesium would be needed, especially if he has tested low on that or does in fact have TS


    Thanks for your input :) I might ask her what those fruits are as i'm not sure either.


    We have no diagnosis, Only told that when he was 4.5yrs he had mild anxiety with a tic disorder and to not be surprised if he he started vocals as well. Which he recently has at 6.5yrs. This then led to me researching and TS coming up A LOT then researching again for natural help and me feeling more positive which then led to a natropath and candida/leaky gut etc. Hoping to see a new paedatrician that is starting in our town soon but that could take forever and my gp isnt being real helpful :/ so i'm sticking with the help from our natropath (who bless her has worked with kids and adults who have had tics and ts)I don't want to sit back and do nothing.

  15. Hi


    My son is currently on a multi-vitamin given to us by our Naturopath that we started seeing and i know there are lots of ingredients in it that have been talked about on the forum that can be a great help but just wondering if anyone who has more experience with this can see anything on the list that might be alarming?




    The adult dose is 10g a day, He is on 5g a day so is only getting half the qty's. I know he can have more magnesium that the 50mg he would be getting from this but don't want to give him the adult dose because i'm unsure on some of the other ingredients and the qty's for a child (he is 6.5)


    Any thoughts or opinions on this product would be appreciated


    Thanks :)

  16. Hi All

    My son has had tics since the age of six. They started with rapid blinking and eye rolling but now are almost exclusively vocal. He doesn't have a formal diagnosis of Tourettes because his specialist says he would have to have both motor and vocal tics together for a period of time and he never has.

    I have read recently that vocal tics can be linked quite strongly to allergies and am wondering if anyone has seen improvements in vocal tics after cutting out certain foods? I do give my son Magnesium, fish oils etc and we avoid colorants. He follows a very healthy diet and eats pretty much everything! Rather than start randomly cutting foods out I am thinking I should go the allergy test route.


    Would really appreciate all thoughts and feedback!





    Hi i'm a Newbie and just joined up. We were told my son had mild anxiety with a tic disorder at 4.5yrs and we left it at that he had a little bit of eye rolling and mouth opening and that was it. He is now 6.5yrs and 2 weeks before starting grade 1 he started with a very loud vocal tic. I immediately started researching and got him into a natropath who has found he has candida & leaky gut syndrome which can have many health complications so it may be good to rule that out. I've read that many people have had success with a gluten and dairy free diet, Low sugar and no additives or colours. This is currently what we are doing with my boy (it is tough at first)and i also plan to have him allergy tested asap. He is on a multivitamin with all the magnesium etc in it from the naturopath and we started fish oil also but i found after 1.5 weeks on it his vocal tic came back much worse so i have stopped it and the vocal tic is slowing waning out. I have since read that a lot of people with tics or ts cannot tolerate fish oil and seems to make vocal tics in particular worse for some while others have no problem on it. I think allerg testing your boy is a really good idea. It can only do good, Not harm :) Also give him some nice epsom salt baths a few times a week, Really helps!

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