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Lbreshears

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  1. Update!! We saw Dr Rao on March 1st. His office was exceptional. receptionist Cam was so helpful. We did have to wait for after almost 1 1/2 hours past our appt time but i will say he is worth it. He took his time visiting with us and seems very knowledgable in pandas. We started an antibiotic and will be back to see him on the 18th. If we dont start seeing improvement in his symptoms we'll try another antibiotic. He seems like a very experienced pandas doctor with pandas and after our visit I was very hopeful about the treatment he would offer
  2. Thanks joyfulgreetings ; ) He sounds great. I will probably go ahead and keep my appointment even if we continue treatment with my local doctor. If he is that thorough a second opinion would be worth it. Thanks again for the info!
  3. Thanks joyfulgreetings ; ) He sounds great. I will probably go ahead and keep my appointment even if we continue treatment with my local doctor. If he is that thorough a second opinion would be worth it. Thanks again for the info!
  4. This is incredibly enlightening! My son is in the beginning stages of being diagnosed with pandas, he has been out of school for 4 months. School did an iep and he didnt qualify for any resources because he only had anxiety, no learning disabilities. We visited with superintendent yesterday and he said if I have documentation from doctor we could apply for 504. This helped me make sense of that. Thank you
  5. Yes nicklemama, my psychiatrist is looking into qualifying him for the study.
  6. I am also just beginning to gather information about pandas. I heard back from my sons local psychiatrist today and he tested positive for strep on his DNA base test. I guess this just means he has had strep at some point. He started him on a high dose of augmentin for the next 3 weeks and has assured me that he is willing to treat him for pandas so I will prob not be having to travel to Texas (I'm in oklahoma). We may keep appointment for second opinion. I will let you know that his receptionist was very helpful and they book out about 1 month. If you are thinking of seeking treatment t
  7. Hello all, I just made an appointment for my son to see Dr. Seshagari Rao in Plano Texas. Has anyone seen him for pandas before?
  8. I live in eastern oklahoma. Can someone make a recommendation of someone I should try and see. We are new to pandas and are trying to get some direction of where to go
  9. Thanks for the info on the study. I believe this is the one my psychiatrist is trying to qualify him for. He tested him for strep on Friday but results are not back yet. I know he did a quick test and 2 or 3 others. I think he won't qualify if he doesn't test positive.
  10. Wow, thank you everybody for all of the information! I just skimmed it as we are on our way to the psychologist for an appointment. I will be reading again in a bit when i have time to process it. We live in Eastern Oklahoma. My son had his tonsils out at 5 due to recurring strep. To my knowledge he has not had it since but it seems rampant in the school he attends. There was really no known sickness at onset. This was only 4-5 months ago so hopefully they can find it through bloodwork. (Oh boy! They had to sedate him with versed just to do the work on him Friday). Not sure where my psych
  11. I also have united healthcare and would be interested in how to get them to pay for it. I called yesterday and they said it was not covered because it is not a "proven treatment of pandas". I will be following your post for more information.
  12. I have an 8 year old son who has the following symptoms : OCD, severe separation anxiety, bits of rage or tantrums, suicidal thoughts, deterioration of learning abilities / concentration and a mild tic. The onset of these symptoms began October 2012. Regular pediatrician tried him on three different ssri's. Prozac (2 weeks, no improvement), Zoloft (2 weeks, intensified fits of rage and suicide) and he is currently on Luvox (limited help with OCD symptoms). We felt like we weren't making any progress in treatment so we changed doctors. We visited a new psychiatrist last week (who was a p
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