Jump to content
ACN Latitudes Forums

MadisMom

Members
  • Posts

    3
  • Joined

  • Last visited

MadisMom's Achievements

  1. Thank you guys for all your responses and advice. Well since my last posting things really haven't changed with my daughter. We went to a neurologist at LeBonuers Childrens Hospital in Memphis a week ago. He "diagnosed" my daughter with Migraines and tension headaches. He is trying to treat her migraines with Amitriptyline. My daughter has only had one of her seizures like episodes and a small one at that since being placed on the medicine but she has gone weeks and months without them before then they flare back up so I dont know if the slow down is the meds or what. Her headaches are still there but I have been told it could take up to a month for the medication to work...so I am nervous wreck not knowing what to think or do. I want to trust the Doctor but my guts telling me its something else. The doctors make me feel like I am crazy... but in reality I just want to know whats wrong with my daughter so she can either learn to cope with it or get better.... this limbo stuff is killing us both.
  2. I live in Arkansas about an hour from both Memphis Tn and about an hour from Jonesboro AR
  3. I am the mother of a once very healthy child. About six months ago my little girl was sent to the hospital in the middle of night she had a rash and a high fever of 103 that wouldn't go down. Once we got to our local hospital they sent us to a children's hospital in Memphis. After hours and hours of tests the only thing that came back was and elevated strep level. Sent us home and told us to see her pediatrician. She seen her dr the next day he put her on a 10 day treatment of antibiotics for strep. A few days later she returned to school. But she started to complain of sever knee pain so again I took her back to her dr. The doctor did a scan on her knees said she was fine and it could be just her growing and something she would out grow. The pain in the knees got so bad that Madi couldn't even walk I ended up having to carry her everywhere. She was wheel chair bound for about a month and then began having seizure like episodes that progressively got worse we have spent days in the hospital had eegs ekgs ex-ray cat scans etc nothing at all except the elevated strep levels. Well she slowly got better went back to to school for a month and half I thought it was over and had my little girl back. Then I get a call one morning my daughter was had fallen out of her seat at school and was having one of her seizure like attacks. I say seizure like because every one who sees it thinks that what it is but the drs say that is not what they are because she had 1 eeg and they say that's not what it is. She had a sore throat the next days and was treated for strep. Well the last incident at school was the beginning of what seems to be a reccurance of some of the symptoms now shes having the seizure things get more frequent but now in the middle of these she wakes up ans acts very childish like a 5 year old nothing like herself she will barely recognize me or herself and wants to just hold her kitten and during the middle of one of these episodes will pass out and have another siezure like spell. And eventually she will come out of it and have no memory of it. WE have been to neurologist,rheumatologist and it goes on and on. NO ONE can figure out what this is. Our family doctor is baffled all the "experts" try to say its psychotic episodes..but my instincts know better. Something is wrong with my daughter and I just cant seem to get anyone who wants to listen.
×
×
  • Create New...