michelew923

Hello. This is my first post to the board. My 13 year old son had his first IVIG treatment in January, 2013 with Dr. Bouboulis in CT. Aetna did not give us preapproval so we paid in full, and has now denied the procedure entirely. We are going to try to appeal or have an outside review of our case, as Dr. B thinks he will need treatment every 6 - 8 weeks for approx one year... ( about 6 or 7 treatments ) We paid 10,300.00 for 2 days of IVIG and he goes in on Monday for round 2! We are expecting to pay the 10,300 again based on his weight of approximately 130 pounds. They were wonderful there and made the experience very smooth. He had a week or so of an exacerbation of his symptoms after the treatment ( which they told us to expect after treatment 1 ) and then had approx. 3- 3 1/2 weeks of a great decline in symptoms and then exacerbated again! He really needed another treatment two weeks ago....but they couldn't fit him in! Has anyone out there had Aetna actually reimburse for the IVIG? Has anyone had an insurance company pay for the treatment and under what codes? We are willing to try to switch insurance companies if there is one that will cover this much needed treatment! Thanks!