Chemar

((((((Carolyn)))))))) that is wonderful news

really does sound more like a tummy bug than the supps to me, especially if he has been on them almost a year with no probs

Hi and welcome does your child have a PANDAS diagnosis? if so you may find most help on our PANDAS forum http://www.latitudes.org/forums/index.php?showforum=17 if PANDAS, then the increased symptoms off the antibiotic seems to be what happens, which is why so many choose to use prophylactic antibiotics ...and of course the antibiotics in turn mess with the GIT so a lot of fine tuning is needed with probiotics, candida cleansing etc let me know if this thread would be best moved to the PANDAS forum

personally I wouldnt even wait a couple of days as it is likely to get worse IMHO sadly my son has the same reaction to the tree mold we have had a large artificial tree for years now..... I know it is not the same, but the compromise is worth it!

there are a number of members of the RSD forum at NeuroTalk who have used HBOT successfully for keeping the excruciating pain they suffer at bay it is a promising therapy for a number of conditions it seems

LOL took me a bit there to realize you were likely posting re my post in my signature link click here for The Treatments that have Helped My Son I was trying to find those topics on the Latitudes blog at first! my son took both taurine and 5htp so I am not sure what their separate effects may have been. interestingly he cannot tolerate 5htp anymore (he was 11 when we were on the initial supplement program with him and is now 19yo) He takes inositol, P-5-P, methylB12 now with Boswellin for his OCD we knew it was the L-carnitine making him edgy as he had been off it for over a year, having used it very successfully a year before for a screaming tic . when he started it again he immediately became edgy/spacy and as soon as he stopped taking it he felt better. maybe the sulfer in the epsom salts(magnesium sulfate) is what your daughter is reacting too? another member, efgh, posted a link recently on the TS forum here about a company that makes various salts combos, so maybe you could try one with magnesium that doesnt have sulfer?? I have heard of other people who seem to not tolerate sulfated products hope I answered all those for you Pat, and dont forget to check out Latitudes Blog "Better Brains, Naturally" http://latitudes.blogs.com/weblog/

http://latitudes.blogs.com/weblog/

Environmental Physician Dr Albert Robbins is currently featured in an Ask Dr Robbins Q&A format on Latitudes blog Better Brains Naturally http://latitudes.blogs.com/weblog/

Hi Abbe we added B1when my son went on a youth missions trip to south America as we were told it prevents mosquitoes from biting. he found it reduced his tics so we kept it in his program. B vitamins in general are found to be very helpful i tic reduction BUT some people (like my son) do not tolerate B Complex so best to give the B's separately we used to use B6 but now prefer the P-5-P form. dose is weight and age dependent my son is now 19yo and so his requirements in terms of dose etc are very different now he used carnitine successfully for a persistent vocal tic. when that had waned he went off the carnitine. vocal tics intensified about 2 years later and he started carnitine again but found it made him feel weird and edgy so he stopped it never used NAC or glycine other than the magnesium glycinate no intolerance to wheat or dairy. we tried elimination. his allergy testing also showed he was fine with them. I seem to recall ph tests being done around the time of hair tests etc hope that answers the questions for you

:)

Abbe from our experience it is best to stay as far away from the fluoride in dental procedural cleaning and in toothpastes. their are thankfully dentists now who recognize the problems with fluoride and dont use it. if yours still does use it, simply tell them you do not want it used on your son. both my kids have strong healthy teeth and we have not been near fluoride with them since they were very young

Hi efgh good to see you and glad your son is doing well I have never heard of these salts before so honestly dont know what their effect would be on tics. I do know epsom salts have a very calming effect on tics (magnesium sulfate) so it is possible these others could also be helpful

Abbe I have not heard of creatine for vocal tics I do know that L-CARNITINE helps with vocals for many tho

Info on Acupuncture Info on traditional Chinese Medicine principles in causes of illness lots more on that site I like it because it is easy to understand yet pretty detailed in explanation

always so good to read your balanced posts, Ronna for anyone who does want to see the movie Front of the Class based on the book of the same name by Brad Cohen....it will air on CBS at 9pm on Sunday night 12/7/08 http://www.cbsnews.com/stories/2008/12/02/...in4642661.shtml

Have you read the book? this is a wonderful and inspiring story!!! if anything it would give anyone with TS, or associated with someone who has TS, hope and encouragement TS isnt a death sentence try visiting the forums for parents with terminally ill kids or those with severe incurable diseases and maybe then TS really wont look so bad my son is 19yo now and has been through it all (tics that injured and hospitalized, bullies that tormented, teachers that punished and a whole lot more!) and come through as a well adjusted caring and compassionate young man with multiple talents and a soaring spirit. we have NEVER hidden from TS and instead have met the challenge head on. IMHO that paid the dividends we now are reaping.

Hi Abbe and welcome tho sorry to hear what is happening I cant post long at present but noticed you mentioned he said he had a sore throat....that sets off a flag for strep and possible PANDAS induced tics have you had a strep throat culture done or any strep antibody bloodwork? always a good idea when sore throat and tics are together will try to post more later. in the meantime, do take a look at my signature link on what we did to help my son

we saw Dr Murphy when she was at Shands, Gainesville FL and it was her psychiatric intern who my son bonded with and who helped us re CBT etc. My son saw him for a year and we drove the 2.5 hrs each way as he was so helpful. It was he who informed us on the morphing of OCD/tics (tourettic OCD) and also he who helped wean my son off the meds. He is in New Zealand now Dr Murphy is a wonderful doctor but her speciality is more PANDAS, altho she does treat TS/tics/OCD and other psychiatric pediatric disorders However, she used to treat with prescription meds rather than alternatives. As we last saw her almost 9 years ago I am not sure what her protocol is now

(((((((((((((Clara)))))))))))))))) I am so sorry for the anguish you are experiencing and sure understand those feelings. not sure which part of Florida you are in but have you emailed Sheila to see if she has any recommendations? she lived in se florida for many years so would possibly know the docs in that area. Dr Robbins, the environmental doc, is in south Florida I believe. I know carolyn saw him for a long time I wish I had personal recommendations for you but sadly the only good psych we ever found is now in New Zealand, and, apart from our acupuncture therapist, my son is doc free at present. The team of physicians we initially used are no longer in this area ( I am north of Orlando) We have a DO as primary care doc, but my son pretty much manages his own healthcare now I did recommend a pediatric Integrative Doc to myrose (she is the one that did the dry blood test etc) but we havent seen her in years and so I honestly dont know where she is "at" in terms of treatments etc now....myrose would know more about her at this time. I liked her very much when we saw her in 2000-2001 and she started my son on the acupuncture and suggested I read up on supplements. It was shortly thereafter that I found a copy of Latitudes magazine and the info on Bonnie's program............ Her name is Dr Cornelia Franz at the Franz Institute in s Orlando and she is an MD with an integrated homeopathic practice, so most insurance covers her. I think that the website myrose posted is where a friend of mine from church has been with her autistic son, with high praise for it...I would need to check tho to be sure that is the same one

my son sometimes does the "lining up" stuff when in OCD wax mode

so good to hear these reports thanks for this encouraging thread Faith!

Linsey you post brought me to tears as I remembered my son's many encounters with bullies...not just those who picked on critters (at his school it was little lizards, which abound here in florida) but also those who picked on him and especially those who picked on others too. He has always been outspoken against injustice, nomatter how intimidating the perpetrator. He doesnt return aggression, but defends with gentle reason and with a way of responding that gets to the heart of the matter and has frequently turned a hard heart soft. It won him a local hero award from the county when he was in 7th grade.(proud mommy *glow*) I so agree with you on that compassion, sensitivity and strength of character that we see in our TS kids

so glad you talked with your adviser Carolyn! and that she managed to reassure you on this.

good article...thanks Linsey we had a thread on the old MGH forums on similar things...highlighting the many positives we had noticed in our TS kids Very smart and talented too!! I remember a struggle we had with one teacher who couldnt seem to "get" that my son could have his high IQ and be in advanced classes yet still have need for 504plan accommodations incorporate things like his CAPD and ADD etc...........he was just so advanced in reading and comprehension that it seemed incongruous to her

myrose I have merged your replies from the pandas board in here and left a redirect there for members to follow to the continuation here.