Chemar

Hi Lyn my son has tried almost every variation of fishoil available and ALL make him tic more we tried many because the health benefits of fishoil are remarkable but eventually we had to switch to flaxseed oil istead also for him with Crohns, as for kids with PANDAS or any inflammatory illness, any that have high omega6 (eg evening promrose oil) is bad becasue omega 6 increases inflammation whereas omega 3 decreases it

as the meds that are usually prescribed for tics fall into this category this newly released research may be of importance here http://content.nejm.org/cgi/content/short/360/3/225

Hi Lyn I am not against meds per se and know they have a very important and sometimes life saving role my son had very very severe tics, OCD, and other behavior / mood issues when younger and finally we did decide to try rx medications out of desperation and also because we were being pushed into them by his neurologist and school etc sadly for him, it was a case of from bad to worse as he had dreadful side effects that were more negatively impacting than the issues we were medicating for. I am not exagerating when I say that we nearly lost our son during that awful year on meds the various meds he tried for the tics and OCD/anxiety etc were haldol, zyprexa, luvox, methotrexate and naltrexone (my husband tried clonidine with very very bad side effects resulting) I know that different people react very differently to the same substance, whether a med or supplement etc and so I am not suggesting that what my son (and husband) experienced will be the result for everyone. I know of many people who feel the benefits of the meds have outweighed the side effects but that was our experience and is the reason we sought more natural ways to help, thankfully with very positive results. I hope you find the best way for your son

Hi Lyn Benedryl is an antihistamine the reason it seems to help some people with tics is that they most likely have co morbid allergies and so the anti histamine effect is beneficial I do hope that people arent going to start just giving benedryl to kids for tics as reducing histamine when it is not elevated is just not a good idea. also some people have adverse reactions to anti-histamines so I do urge caution with this

what do you mean by the "P-5-P" form of vit b6? and what dose is he on? Is it done by mg/kg bodyweight? Hi I answered the P-5-P where you had asked about it on OCD forum too it is the Pyridoxal-5-Phosphate coenzyme form of B6 that has best absorption. B6 is used by the body after the liver converts it to P-5-P so giving it this way eliminates the need for that extra step My son uses the one by NOW that has co factors B2(riboflavin) as well as some mag taurinate in it

abe I have fixed your post again to remove the wrong quotes as it is impossible to see what you have written and what you are quoting from others the way you are posting it. maybe just use the "reply" instead of the "quote" button....reply will still give you the qyotes of the other party then just reply above or below (not insude the quote tag) or if you dont want any quote, just hit the "add reply" botton at the very bottom of the thread hope that helps

I would suggest caution with doses that high of melatonin mixed with 5HTP 5HTP is very potent serotonin booster and melatonin is part of the serotonin biosynthesis pathway too plus it has hormonal attributes. over stimulating serotonin can lead to serotonin syndrome which can be dangerous! my son is adult age yet 300 MICROgrams of melatonin knocks him out and anything more leaves him very groggy next day I know individuals vary in their reactions but it really is advisable to start at the minimum dose on melatonin (300 micrograms and then only gradually work up if needed and only combine with 5HTP or tryptophan with caution. also never combine these with SSRI's or any other med or supp that also boosts serotonin

Hi Abbe youhad asked me to take a look at this so here is a quick comment: I dont know anything re the NeuroScience supps so cant comment on those but I do kow that tyrosine can lead to increase in TS tics because it stim dopamine. If your child doesnt have TS then I dont know if it would trigger tics I personally prefer Candida Clear by NOW to Nystatin, but then my preference is always to go the natural route before a rx drug. I have heard mixed reports on Nystatin...some love it, some hate it I like kefir as a natural way to provide probiotics/good gut flora but not sure if it would be ok re the dairy allergy. I have been told that people who are lactose intolerant can still safely use kefir but check with your doc first on that methylB12 is really good stuff and vit E is too we dont use glutathion so no comment there my son can only tolerate the 300 MICROgram melatonin on occasion and so even .5mg would be too much for him I personally feel it is best to use as little of it as possible and not too often. as mentioned on the other thread, my son used only L-carnitine not the acetyl form if there was anything else you specifically wanted input on just let me know I am in one of those mega busy work modes so tending to skim posts and may have missed something

guy it depends on how long since the tick bite new cases often still have the bite mark. they do blood tests to confirm the parasite the longer the untreated time period from the infection, the more serious the complications many people have been misdx when in fact they have Lyme. even some have been dx with multiple sclerosis when in fact they are in late stage complications from untreated Lyme I really cant stress strongly enough how serious that can be! however, caught early and correctly treated, and the prognosis is good, although again complications can linger

Hi abbe yes there is a difference between the acetyl form and the regular L-carnitine my son was on the L not the acetyl I will try to find the thread you posted on your son's results and respond there later as working at present. s

hi Darla my son does not have autism {he has tourette spectrum} but does seem to benefit tremendously from exta vit D supplementation

hi footballguy I fixed the spelling on Lyme for you as that way you may get more input from those finding your post on Google etc it's good that your doc has caught this and begun treatment...undiagnosed Lyme Disease and delayed treatment can cause very serious and longterm problems you are not the first person I have heard of who got tics as a result of Lyme disease FYI here is general Lyme info on NeuroTalk where you may find helpful http://neurotalk.psychcentral.com/thread15648.html there are also other posts about it there http://neurotalk.psychcentral.com/forum91.html Lymenet also has lots of helpful info and groups http://www.lymenet.org/

Monolaurin (available at Vitamin Shoppe stores or their website) is an excellent antimicrobial that may help given with things like garlic and also olive leaf extract and minute amounts oregano oil (care as oregano oil is*VERY POTENT!!!!*) that may be enough do be careful of flagyl as I have seen reports of it causing neuropathy

Hi I replied to this on the PANDAS forum too my son gets choline in his multi shake but I have not heard that it is needed per se for Inositol function choline is good for neuro stuff tho P-5-P aka Pyridoxal-5-Phosphate is the form of B6 that has best absorption. B6 is used by the body after the liver converts it to P-5-P so giving it this way eliminates the need for that extra step B6 in turn helps other supps work better info on VitB6 info on Inositol

Inositol has been life changing for my son where he had used 5HTP when younger to help with his OCD/anxiety etc, it later made him "edgy" The Inositol has totally calmed his symptoms!! He takes it with the P-5-P form of vit B6 along with methylB12. he feels they work well in combination I have not heard of it needing choline, but he does get that in his daily multi shake, along with methionine, which also is helpful for OCD/mood issues info on Inositol

Hi Buster you may want to link to this thread in the essential threads sticky so others can easily find it. thanks for the helpful info

I just wanted to mention that where *many* tic disorders are related to magnesium deficiency, NOT *all* tics are caused by low magnesium levels. Magnesium is a very good first step in helping with many types of tics but it isnt a "magic" cure for ALL tics. People with TS benefit from magnesium and it can substantially reduce tics, but it does not "cure" their Tourette Syndrome Kids with PANDAS may benefit from magnesium for their tics, but they need antibiotics and other treatments becasue they are ticcing from strep infection causing inflammation, not magnesium deficiency re adding magnesium to other drinks, only magnesium citrate is tart so other forms of magnesium can be added to milk etc I have not looked at the ingredients of this chocolate almond milk so have no idea what it is made of

I would disagree with that because then we would see the same with all forms of Omega3 which is not the case. Most of those who react negatively to fishoil form of omega 3 can take flaxseed oil form without any problems, my son included. he takes a lot of flaxseed oil in (supp, salad dressing and we grind them fresh for use on cereals salads etc) and we only see benefit re his ADD, inflammation and OCD, and no increase in ticson it. However if he has any form of fishoil, his tics spike almost immediately. yet he can eat fish without problems

yes, I just spoke with Heidi and this is an outdated link to an old research study, now closed however the good news is she is hopeful that they will soon be awarded another grant to conduct further study and she will keep us updated

yes, I just spoke with Heidi and this is an outdated link to an old research study, now closed however the good news is she is hopeful that they will soon be awarded another grant to conduct further study and she will keep us updated

I just posted this on TS board as well that I think this link is for an old study ie 1999 I am waiting to hear back and will update.

FYI I am waiting to hear back from Heidi but I believe this link is to a 1999 announcement. One of the phone numbers given is also no longer operational

I wish I could encourage you Darla but I regret our experiences with neurologists have been yuck...and my son doesnt even have PANDAS! It was bad enough just trying to get beyond the "no help other than antipsychotics, antidepressants" for his TS.......from what I have heard, most do not acknowledge that PANDAS even exists

Hi Lyn my son reacts very negatively to fluoride he only drinks reverse osmosis water with no fluoride in it and uses fluoride free toothpastes etc. when he was younger, a dental fluoride treatment made him severely ill

Hi Lyn its my opinion that MSG is bad for everyone but especially so for those with neurological disorders. It has an almost instantaneous negative effect on my son.