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Everything posted by Chemar
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Which B vitamins do you guys use for tics?
Chemar replied to guy123's topic in Tourette Syndrome and Tics
Guy the sublingual is best for a B12 burst, BUT be sure it is METHYLcobalamin *not* cyanocobalamin as the former is the one best absorbed and used whereas the latter very poorly absorbed -
My Facial Tics are really starting to bother me
Chemar replied to AHB900's topic in Tourette Syndrome and Tics
you may have dustmite allergy or some other indoor allergy (carpeting, paint, woodwork, household cleaning products, "bad indoor air", mold, etc are all potential) stress is a major tic trigger Did you take a look at that list of tic triggers that I linked for you in my earlier post? -
Which B vitamins do you guys use for tics?
Chemar replied to guy123's topic in Tourette Syndrome and Tics
hi Guy i specifically did not say "increase tics" because we have never noticed that it causes constipation and a weird spacy feeling for my son, and he just feel "off" so the best term I can use is that it upsets his system. My son also does not react well to separate niacin I have never been able to take a B complex either, but do fine with them in a multivitamin or separately he takes separate Bs that are very specific to his illness/disorders so not everyone else may need those as mentioned he takes a full range of Bs at the RDA from his multi shake then he adds P-5-P(vitB6) METHYLcobalamin form of vitB12, and INOSITOL which is also a Bvit depending on his needs he sometimes adds extra B1 and B5 as they both help with his tics the P-5-P made by now also has extra B2 in it as mentioned, when run down or not well he adds Royal Jelly (we like the Bee Alive brand) as that has a "perfect" natural B blend along with other nutrients. REMEMBER tho that as this is a bee product, anyone with allergy to bee products should not use it! -
ACN conference in Fort Worth Texas May 23-24
Chemar replied to Caryn's topic in Tourette Syndrome and Tics
Shaila also has info on the conference on Latitudes home page at http://www.latitudes.org and a special site with info http://www.touretteconference.com/ -
Which B vitamins do you guys use for tics?
Chemar replied to guy123's topic in Tourette Syndrome and Tics
many find that a B complex upset their system my son gets digestive upset and feels weird with a B complex so he takes his extra B's separately and also has some in his multi-shake a good balanced multi source of Bs in Royal Jelly from bees, which my son uses when he needs a B boost -
My Facial Tics are really starting to bother me
Chemar replied to AHB900's topic in Tourette Syndrome and Tics
I so agree with that Bonnie everyone has something they have to deal with so it is all relative. The key IMO is identify what you can do to make things better and do all you can toward that. Then dont stress too much over what you cannot fix. Stress always seems to make things worse -
My Facial Tics are really starting to bother me
Chemar replied to AHB900's topic in Tourette Syndrome and Tics
Hi my son noticed immediate relief when he started taking magnesium, and a steady improvement as we added the correct supps he needed. just remember if you add any more to do them ONE at a time and wait a couple days before adding the next. that way you will be able to tell if something doesnt react well with your system and not have to do guesswork although all supps have benefit, not all people react the same way to different things becasue of our unique metabolism/biochemical make up -
Claire on the TS board used IRLEN therapy I believe
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My Facial Tics are really starting to bother me
Chemar replied to AHB900's topic in Tourette Syndrome and Tics
Hi again I am so sorry that you arent finding support and help from parents and doctors...that makes it very hard doesnt it My son is 19yo and has been dealing with tics most of his life. When he was 10yo he was dx with genetic Tourette Syndrome, which we then realized was what his dad and grandpa had too. He still takes daily supplements, albeit in a varied form since he first started, so yes, the supps are NOT just for helping kids It does seem that you have tics. the question is WHY? as that determines which treatments are most effective generally it seems that magnesium is a good point to start at to see if that helps. Magnesium taurate is good (available at the Vitamin Shoppe stores and online) and many use theNatural Calm magnsium powder that gets mixed with hot water. Has a very immediate effect. Soaking in a warm bath with about 2 cups of epsom salts (magnesium sulfate) dissolved in it may really help your tics have you ever has strep? there is a condition kown as PANDAS where strep (not just strep throat) can cause tics, OCD etc there are other viral/bacterial and especially fungal infections that can cause tics. Candida albicans ("yeast infection" ) of the gut is a prime tic trigger. There is growing evidence of untreated Lyme Disease (from tick bites) triggering tics too some people tic becasue of food or environmental allergies and some because of high toxic load (metals, pesticides, chemicals etc) Many have found vaccinations triggering tics. these are just some of the many reasons people tic. so starting to sleuth why you do will also help you find the best natural ways to help yourself. I hope you will start with the magnsium, and also try removing all "artificial" and chemical additives from food and see if that helps. A large number of people find that the food additives (color, flavor, nutrasweet/aspartame,splenda/sucralose, MSG, high fructose corn syrup, sodium benzoate and many others) are major tic triggers and we have some members who have been able to eliminate or at least substantially reduce tics just by getting rid of those in their diet. if you take a look at the link in my signature here you will see the treatments that have helped my son. he used to tic so severely that it impaired his life.Remember tho that he has geneticTS and not everything that works for him will work for everyone. but it will give you some ideas I hope also the article on tic trigger (scroll down and you will find the lists) http://www.latitudes.org/articles/finding_triggers.htm and Sheila Rogers' excellent book on natural ways to treat tics and Tourettes http://www.latitudes.org/book.html hope that helps. we are all here to try toanswer your questions and share our experiences -
hi then you can take full adult dose plus extra to see if it reduces your tics. my son has taken as much as 800mg per day in supplement form (excluding dietary intake and that from the calming epsom salts baths/cream etc) it is important tho to be sure that your intake of calcium is good...many recommend 2:1 calcium:magnesium altho we have found it isnt necessary to be rigid/absolute precise on that...
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magnesium dose would depend on your age and weight
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Hi Anne that really is something you should check with a physician as I know nothing about Lexapro my son now takes around 12gm Inositol daily (he uses the Jarrow Powder which we get at a great price from iherb.com) and yes, we also started at 500mg per day. When he feels the OCD waxing he ups it to 16 grams a day. He emphatically feels that it works best with the P-5-P form of VitB6 and the methylcobalamin form of B12 remember too my son is 19yo and so takes adult dose
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Hi Pippin I really recommend you read Claire's old posts on how she helped her child with light sensitivity there is a wealth of info in her posts
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Hi my son has had similar OCD symptoms he is pretty stable at present on high dose Inositol daily along with P-5-P and methyl B12 and some methionine, plus daily multi. omega3 etc the OCD used to seriously impact his life and we have been through many ups and downs with it, but since the high dose inositol it really has calmed dramatically
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Hi if you do searches here for username Claire and the keywords screens and photosensitive you should get lots of good info on this
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Tracey it really varies depending on diet as to what others are being taken in. Flaxseed has some 6 and 9 in it so not just pure omega 3 we used to balance as much as possible but since my son's autoimmune dx with the Crohn's we keep the omega 3 highest as it is anti-inflammatory and limit 6 as it promotes the inflammatory response
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it depends on the strength of your epsom salts to start with and then you would extrapolate as to what 1/2 cup contains. I must say I havent attempted to calculate the exact concentration...all I care about is that it works! it is your choice on the cream. just be sure it has no added color and substances that are known to be icky chemicals (eg those parabens, sodium benzoate etc.) I get a tub of aloe vera gel cream made at my health store and mix mine in that now, but you really can use any cream or oil of your choice...you just have to be certain to dissolve the epsom in as little water as will do the job and then blend it very well into the cream
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Ready to medicate....any input out there....2009
Chemar replied to Tracey111's topic in Attention Deficit Disorders
Tracey he should qualify for IEP or plan 504 at the school and so get accommodations for the ADD that may take the pressure off while you try some treatments to find what works best for him without triggering increased tics -
this is something you need to discuss with your doctor. any problem with medication can be serious and really should be reported to the prescribing physician
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Ready to medicate....any input out there....2009
Chemar replied to Tracey111's topic in Attention Deficit Disorders
my son was 11 and already 120 lb when he started the gingko...we never saw any negative reactions here is iherb's natural encyclopedia info on gingko and yes, grapeseed extract (NOT grapeFRUIT seed extract) is supposed to be helpful too for many things. My son used to take it but since his Crohn's dx we have to avoid things that boost immunity, which GSE does -
I just wanted to bump this post up as those being plagued by these thoughts really should seek professional help and also via support from others the forums at PsychCentral really are better equipped to help with this than we are here with hopes and prayers that all who read here will find help and peace
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Mercury in Corn Syrup & ...Food Article
Chemar replied to Mustang Carole's topic in Tourette Syndrome and Tics
found a link to the press release http://www.iatp.org/iatp/press.cfm?refID=105025 and the full report from the study http://www.healthobservatory.org/library.cfm?refid=105026 -
Mercury in Corn Syrup & ...Food Article
Chemar replied to Mustang Carole's topic in Tourette Syndrome and Tics
guess we shoulda known huh I am just so thankful we eliminated HFCS from all of our diets years back. thanks for the info Carole do you have a link to it per chance as I would like to put that on NeuroTalk too -
myrose, if you can ensure a good balanced diet then a basic multi (as Faith mentioned with no added "extras" ) is probably the safest way. so many of the recently added ingredients may be very beneficial to many, but not necessarily for kids with neuro/inflammation/immuno stuff. I had to learn the hard way that since my son's Crohn's dx along with the TS, he could no longer take some of the supps that were beneficial to his tics. It is a delicate balance and so best going with a multi that just provides the "essential" vitamins and minerals to compliment a good nourishing non-allergenic diet my son takes his multi in the form of a protein shake to which he adds those supps he has found keep all his disorder/illness symptoms manageable. if you do reintroduce a multi start at low dose, ie about a quarter or third and then work up gradually to the full recommended dose. that way you will quickly see if it is having an adverse effect and there wont be as much forher system to have to process
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Ready to medicate....any input out there....2009
Chemar replied to Tracey111's topic in Attention Deficit Disorders
Hi Tracey this forum is not nearly as active as the TS one my son has ADD (no H) with his TS and we never medicated! He remained an A student. We used high omega3, gingko biloba herb and soy lecithin, along with his regular TS supps. multi etc. We also added BORAGE oil and Royal Jelly(from bees...we used the Bee Alive product)) and noticed a real benefit from those. sadly most of the meds that are rx for ADD seem to make the TS stuff worse