Chemar

ccc in all fairness that is exactly what we DO do here...look outside of the box! very few of us use "conventional" or as you put it "traditional" medicine here..(altho to me traditional medicine means holistic or naturopathic ) however, although many of us have found success with varied treatments, we sure dont presume to say, as this dentist does, that it works for *all*. we fully acknowledge that different people respond to different treatments MAINLY because we understand that there are SO MANY possible causes/triggers for tics! That is my problem with this...not that it may not be of great help for some, or even many, people...but the claim that all other info re TS, including genetics, infections etc is invalid and *only* this method of his is "the cure" I hope it does help many....but I remain wary of someone who makes such broad claims to a "cure" while negating all else.

Hi CP the published paper is in the PDF file that CCC linked http://www.tmjstack.com/casereport.pdf. here also is the abstract on PubMed http://www.ncbi.nlm.nih.gov/sites/entrez I have been talking with others about this and where we can agree that cranial nerves dohave a role in TS, yet all feel very cautious about the broad claims being made, as summarized in the PubMed abstract The absolute negation there troubles me......some,yes....but all, including *all* the co-morbid disorders?????

the medications investigated include: Focalin, Focalin XR (dexmethylphenidate HCl ); Dexedrine, Dexedrine Spansules, Dextroamphetamine ER, Dextrostat (dextroamphetamine sulfate); Vyvanse (lisdexamfetamine dimesylate); Desoxyn (methamphetamine); Concerta, Daytrana, Metadate CD, Metadate ER, Methylin, Methylin ER, Ritalin, Ritalin-LA, Ritalin-SR (methylphenidate); Adderall, Adderall XR (mixed salts amphetamine); Cylert (pemoline) and generics the research study: http://ajp.psychiatryonline.org/cgi/reprin...2009.09040472v1 the editorial comment http://ajp.psychiatryonline.org/cgi/reprin...2009.09050619v1 the FDA comment http://www.fda.gov/Drugs/DrugSafety/Postma...s/ucm165858.htm Sheila also wrote about this in the latest issue of ACN Today and linked to this report http://www.healthfinder.gov/news/newsstory.aspx?docID=628053

the medications investigated include: Focalin, Focalin XR (dexmethylphenidate HCl ); Dexedrine, Dexedrine Spansules, Dextroamphetamine ER, Dextrostat (dextroamphetamine sulfate); Vyvanse (lisdexamfetamine dimesylate); Desoxyn (methamphetamine); Concerta, Daytrana, Metadate CD, Metadate ER, Methylin, Methylin ER, Ritalin, Ritalin-LA, Ritalin-SR (methylphenidate); Adderall, Adderall XR (mixed salts amphetamine); Cylert (pemoline) and generics the research study: http://ajp.psychiatryonline.org/cgi/reprin...2009.09040472v1 the editorial comment http://ajp.psychiatryonline.org/cgi/reprin...2009.09050619v1 the FDA comment http://www.fda.gov/Drugs/DrugSafety/Postma...s/ucm165858.htm Sheila also wrote about this in the latest issue of ACN Today and linked to this report http://www.healthfinder.gov/news/newsstory.aspx?docID=628053

ccc, I hope it works for your child I cant in good conscience tho bypass the fact that this dentist makes a claim like this Is he claiming to stop even OCD and ADD and the "multiple comorbid disorders" of TS with a mouthpiece??? He is denying infectious agents in strep induced TS tics???? what of allergies and food intolerances which are common tic triggers for many with TS. He is saying mouthpiece is going to stop their gluten or dairy intolerance tics????? etc etc etc etc nevermind the dismissing of the genetic factors that have already been shown from research mapping the genome is people with inherited TS! again, perhaps his device is able to help some, and if so, that is good news! But I would feel a lot more comfortable if he said "some" rather than this "eureka! we cure ALL TS tics and comorbid disorders with our mouthpiece" to make a claim like I quoted above is irresponsible IMHO as it puts all cases in one basket which we know just from the case histories on this forum and the PANDAS one is simply not possible! I tend to be very wary of those who make such big claims of "cure" on a complex set of variables having said all that I do hope for the best possible outcome for your child!

Melanie, my concern is that for some kids, like my son, dental procedures can TRIGGER tics when he was having severe tooth grinding and jaw snapping tics, we had a specialized mouthpiece made by his pediatric dentist who had much experience working with kids with TS, autism etc the mouthpiece itself triggered very intense tics for my son and so we immediately stopped using it, and instead found that supplementing vit B5 stopped his teeth/jaw tics I really hope this dentist is on to something and that it can help people with TS...but I remain skeptical on his claim of "immediate cessation of tics in ALL patients" also, in that PDF file, some of the background statements made re TS are not very accurate IMHO

I did read the pdf file on their research paper as I mentioned, perhaps this helps some with specific kinds of tics but honestly I just have seen so many of these "scientific" studies claiming to have found "the" cure if all it took was a mouthpiece...these guys would be zillionaires by now and booked up for the next few years however, if you decide to use this, it would be interesting to hear your feedback

ah this is a dentist all of the "case histories" click thru to a 404 error page for me honestly, where I do know that mouthpieces can sometime help re jaw/teeth tics, I really would think it unlikely as a "cure" for ALL TS tics

Hi Zoe I personally feel the manifestations of neurological disease are rooted in more than one issue internally. The thread that binds them all is likely so fine that we dont clearly see all its ramifications tho In our family's case,there are genetic susceptibilities that are clearly evident in my husband's side for full blown Tourette Syndrome with comorbid OCD/ADD/SID/anxiety/depression, and I have relatives with OCD, AD(H)D, tics, anxiety, bipolar etc. I detect mild OCD in myself too So yes, I think that thread is linked between gut and brain, but also wonder what the intricate connections to the other systems are, including the endocrine(hormonal) mechanism and the oh so vital immune system. The fact that so many kids with TS etc have sensory integration dysfunction seems to indicate that thread stretching to those intricate functions of the senses. The way that intrusive agents like allergens, vaccine load, metals and those microbes like strep and candida cause such havoc in the whole body emphasizes this to me. I know for a fact that since we began a holistic approach to all this, the improvements have been remarkable for my son. as to which supplements are key....I think that really depends so much on the individual. All have varied deficiencies or metabolic/absorptive functions and we have sure seen from the anecdotal reports just on these forums that some react very negatively to what others have great benefit from.(eg fish oil, taurine, carnitine etc) Sometimes it is that a supp is good, but needs to be at reduced dose to be effective....(eg my son cannot tolerate very high B's or B complex so we have to be selective and dose appropriate in giving his B's, and since his Crohn's dx, the probiotcs and immune boosters that used to seem to be good for his TS actually cause him crohn's flareups) and yes, absorptive issues in the gut and/or liver malfunction likely also contribute to the deficiencies and incomplete metabolism of the needed vitamins, minerals, trace elements and amino acids etc etc I do believe magnesium does play a pivotal role, at least for those with TS but it cant function properly alone and that is where gradually adding the others is so important. to be able to quickly see what is beneficial and what not theoretically only a neurologist or developmental pediatrician can dx TS but sometimes the dx is given by other docs. usually neuro needed to confirm. I think with all we are learning about many causes for tics, perhaps TS is too quickly dx just my thoughts on what it's all about.......

a mouthpiece for all tics??? or is this just for mouth tics? I have never heard of him what kind of doctor is he? sorry to sound skeptical but I guess I am when I think of a mouthpiece having any effect on my son's toe tapping tic

Hi we have never used the BonTech range but I did base my son's initial supplement protocol on Bonnie Grimaldi's earlier published formula. As my son responded well to the individual supps we were giving him, I didnt change when BonTech TS plus etc came out. We have a number of members here who, like Carolyn, have seen tremendous benefit for their child in taking the carefully formulated products from BonTech a few have however noticed an increase in tics when using them. for some that has leveled off after the initial waxing and the results have been good. Others have found the waxing continues and it seems some people may have sensitivity to one or more of the ingredients (maybe the high B's??) and their tics waned again when they stopped using the TS plus and/or the fishoil (some here, including my son, seem to not tolerate fishoil well and do better on flaxseed oil). overall tho, if your child reacts well to them and if you can afford it, the BonTech range of supps for TS hasan excellent track record

Hi Zoe many kids with TS ADD etc also have writing difficulty my son is one of them. His TS and OCD made it hard as he would either tic and malform the letters or the OCD would make him go over it till "just right". Even holding the pen/pencil can be difficult for some kids with neuro issues One ofthe first accommodations he was given under his 504 plan (TS is classified a disability for education under "other health impaired") was to be allowed to do all work on a keyboard instead of writing. He was allowed to have his AlphaSmart at school and could take notes etc and then come homeand plug into computer and finish homework and print. The AlphaSmart even has an organizer etc...really nifty Public schools now have them and issue to students with that need and you can also buy one privately from www.alphasmart.com my son is an adult now so there may be newer and better tools available for this one thing is sure tho...that psychologist who suggested your child's writing difficulties had to dowith home schooling needs some extra schooling themself!!

myrose I have heard about 3 weeks to be fully out of system? but I dont know how accurate that is here is what wiki says about it's half life etc http://en.wikipedia.org/wiki/Topiramate continuing to pray for a smooth transition off and that things will stay calm. I dont know if your daughter is dye sensitive but if so see if your pharmacist can find a colorless claritin form for you. when my son was on Crohn's meds initially, we were able to find dye free stuff via either compounding pharmacies or sometimes generic versions.

I tend to wonder about these stats as I honestly feel too many kids are being misdx with TS when in fact their tics have other root causes. (myrose, some publications and authors are beginning to get very strict about entire articles being copy pasted onto message boards so would you mind rather doing just the title, source, opening paragraph and then most importantly the link to the article so we remain compliant with copyright thanks )

Hi what testing are you looking to do? I am surprised they have him on Ritalin if he has TS as Ritalin is known to *cause* tics. Did he tic before the Ritalin?

myrose hope it is still going well I know its hard but try not to be too focused on what may be a tic etc as she can also pic up on that and be triggered. I have learned that lesson with my son altho I realize it may be different because he has TS I dont know if you already use the Bach's rescue remedy, but you may want to think about it for YOU a few drops under tongue has a very calming effect. We always keep a little bottle of it here. praying the withdrawal remains stable and that your family can have a peaceful fun summer

that is so encouraging to hear teachers are buying the video CP

yup....we dont use any of those peeled carrots as the chlorine in them is easy to taste and yup caused more tics for my son. I avoid any of those "ready peeled and chopped" veg how deceptive too that they use large carrots cut down and call them "baby"

Hi myrose I edited title for you...you need to click the advanced/full edit to do that my son loves olives and eats a lot of them (be sure no sodium benzoate etc in the solution) without any apparent negative effects green olives are just that...olives that havent ripened yet. the black ones are ripe. My son likes green with some things and black with others

just bumping this up so all see it

I just heard from the webmaster that Latitudes/ACN website is being moved to a more efficient server, which should rectify the slowness we have been experiencing. The switch will take place at 10pm CST tonight. The website (including the forum) should be down for 1-2 hours during that transfer, so dont be concerned if you cannot access the site. Just try back later and all should be zipping along

I just heard from the webmaster that Latitudes/ACN website is being moved to a more efficient server, which should rectify the slowness we have been experiencing. The switch will take place at 10pm CST tonight. The website (including the forum) should be down for 1-2 hours during that transfer, so dont be concerned if you cannot access the site. Just try back later and all should be zipping along

I am assuming they mean a neurologist who also has chiropractic training?? I would check carefully on just what their credentials are

the problem with increasing dose on mag taurate is that doesnt just up the needed magnesium but also ups the taurine, which is also an amino acid IMHO better to just increase the magnesium with natural calm or another pure source

here is iHerb Natural Library info on it Blessed Thistle they seem to suggest it is more for topical use? rather than systemic