My 5 year old son has been diagnosed with PANDAS since last October. He presents typically with motor tics, vocal tics, anxiety and rage. His tests have shown both strep (off and on) ,a previous mycoP infection and extremely high EBV antibodies. Last week we started him on a new protocol from Dr. Alarcio: Rifamdin, Cefdinir, Leucovorin, Advil, Vit D, Mutlivitamin, Fish Oil, Culterelle and Florastor. A few days in his eye rolled back while at school and he became unresponsive for about 30 minutes. We took him to the hospital and he tested positive for strep with no other indication for why it happened. They switched him to clindamycin to fight the strep. That was 7 days ago. For the past two days he has had continuous eye movement. Mostly side to side but also in an arc. It is all the time. He is amazingly not complaining about it but he is struggling because of it. He fell over at school yesterday probably from being dizzy. He has an EEG scheduled for tomorrow and a sleep study in about a month.
Have any of your children had this sort of continuous eye movement either due to the PANDAS or perhaps a reaction to one of/combination of the medications he has been on. We removed everything except the clindamycin and advil yesterday just in case. I am just at a loss for how to help him. He has had eye tics in the past but not like this. We are waiting to hear back from our pediatrician who is consulting with his neurologist. Hopefully will hear something back today.
Thanks!