Hi all,
I am new to the board and would love to hear your experiences with tonsillectomy. I know it can help in some cases but is not considered an official PANDAS treatment. My daughter is scheduled for one in 2 weeks. She is on zith but still having bad tantrums every evening after dinner. We may be switching to augmentin.
If your child had a tonsillectomy, was he/she having any PANDAS symptoms prior to it? Did the surgery stop any of the symptoms? I have heard that you want to try to clean out the tonsils with abx prior to the surgery but I am wondering if the fact that she still has symptoms means the tonsils are still infected.
Also - the ENT who will be taking them out uses a procedure called an intracapsular tonsillectomy which leaves a small part of the tonsil intact. I don't think this is a good idea but was wondering if anyone can tell me if they had this type of tonsillectomy? I asked if they could do the traditional one and he said probably unless they were too far back or something.
Finally, has anyone had a complete remission with the tonsillectomy? One woman in my local mom's club said her son's tantrums stopped immediately after the tonsillectomy and haven't returned so far (months later). She was not aware of PANDAS but was told by her ENT that kids get tired from not sleeping well and then have tantrums. At least the ENT recognized the link between tantrums and tonsil removal even if she didn't see PANDAS as the cause.
Thanks,
Megan