My son went to a ID doc on Monday He had a culture done and it was positive for strep. Even though
he has no symptoms presently she feels that hes a carrier and wants to try to irradicate it with Clindamcin
and Refampin. 10 day course. My son did have a pandas panel done last month and was positive for
extremely high antigens and autoantibodies. Very high. Presently being that he has no symptoms other
than an occassional tick in his wrist am i taking a risk by going on this 10 day course ? Ive been reading
that when finished with antibiotics the symptoms can return with vengence. Is this only true if youve
been on them for a very long time? Im also scheduled to have my sons tonsils adnoids removed in 2
weeks. A doctor in Illonois recommended this and also suggested taking Keflex instead of Clindamicin
and Refampin. He thought it would work much better to erradicate the strep and thought these others
were too strong and would probably not work. Has anyone had any success with any of these?Are there
sideeffects? Has anyone ever successfully erradicated the strep? And had symptoms completely
disappear? Im probably just dreaming that this might happen in our case. I get such mixed opinions
from every doctor i speak with. This one panda expert says its very important to nip it in the bud asap
before puberty because once he goes into puberty the damage cannot be reversed and the ticking and
ocd will stay thru his adult life. Has anyone heard of this happening? He also suggested TA removel
and then if symptoms reappear taking steroids then ivig then keflex for a year. Yikes! One thing im
very confused about is why if you can erradicate the strep whereever it might be ,why would you still
have symptoms? If theres no strep toxins then there would be no antigens for the autoantibodies to
attack the basil ganglia right? or wrong. I find this so confusing. I can understand if he got another
strep infection the symptoms could reoccur but what if he didnt get another strep.? Is it common with
panda children to be carriers? If so when they do have reoccurances with strep are they getting the
strep each time from other people or from themselves? Over and over again. Im so so sorry
for all of these questions but im in a desperate state. Im suppose to start these antibiotics tomorrow
and im afraid if ido it his symptoms will all return when im finished. The doctor is concerned if i dont
do it that the step can end up doing permanent damage to his heart. I thought when a child is a carrier
it doesent do damage . If hes just a carrier why are there such high antigens in his blood? I thought
carriers didnt have this it just stayed in their throats. Would this mean that he may insteas have a true
infection instead of a carrier? Its been 8 Months now of non stop sleuth work
and look at all of these questions i still have. The docs all give me completely different advice. I dont
know who believe or what to do. I hope someone out there can take a moment out there busy schedule
try and answer any of my questions. Id be so very grateful. Has anyone ever seen a child make
a 100 recovery from Pandas or thru supplements, probiotics, cheltion etc have the immune system
straighten itself out and become symptom free?
