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gracie

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  1. Thanks so much for the advice Amy. Greatly appreciated:)
  2. This is such wonderful information you shared with us. Thank you so very much will your story. It really is a great guide as what to do next. We just want our daughter back even at 70 percent would be great:)
  3. I will keep positive thoughts that the ivig helps your child and I feel that eventually that may be what we turn to also. It sounds like as we have seen in a short time that anything can flare her symptoms. We don't know if true but have read also that sometimes the earlier the ivig is given the more effective result. Thanks for the support and please update me if possible on how your child does with the ivig.
  4. Thanks so much for the advice. It seems like all the doctors have had there idea on what antibiotic works and how long and now on cephalexin and hoping I can at least convince her local doctor to stick with this longer and at full strength to see if improvement. I appreciate any advice.
  5. Thankyou for the post and I did call on the study . Not a candidate they said due to the fact that we saw some initial improvement before she declined again so drastically. Has been difficult for her to even function at school this last week. Any advice appreciated!
  6. Looking for advice . My daughter was recently diagnosed with pandas 2 months ago. Did test positive for strep with elevated ASO.. Pediatrician put on her on antibiotics which she showed some initial improvement. Did some research which took us to Dr K who confirmed that she has pandas. Did 3 more weeks of Augmentin and saw by end of 3 weeks 50 percent improvement. . Pediatrician then insisted we have a second opinion and saw a Doctor in Des Moines who did agree this is pandas. They put my daughter on prophylactic PCN and sent her home. She then started to slide in a downhill trend again. OCD symptoms very intense in past 2 weeks and again irrational fears and trouble with concentration amongst other pandas symptoms. Went to family dr who did ASO which was climbing again despite neg throat swab. Dr just put her on cephalexin high dose now to see if any difference. Seven days into antibiotic just starting to see a glimmer of improvement again. Any advice on where to go from here would be appreciated. We are very confused what to do next. Insist the pediatrician for continued antibiotic or contact Dr K for IVIG or just wait and see.
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