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jimTheBassPlayer

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Everything posted by jimTheBassPlayer

  1. I am unfamiliar with the urine test for neurotransmitters .... when is it a good idea to have that test ? What do the results generally tell you ?
  2. Did a consult via Skype with Angelica Lemke ... whose name I got on this forum I believe ... although it was the Pandas forum I think. Haven't tried the treatments unfortunately ... but I do believe there are some sucess stories with it.
  3. I've read the book and am a firm believer ... anecdotally at least. I would love to try it but would need my ex to be on board 100%, which is quite a sell at this point. Fortunately his tics have been manageable ... perhaps at some point we can give it a try. I think all parents should read the book, it does an excellent job explaining how the gut, the immune system, and the nervous system are connected ... knowledge that is extremely important when making health decisions.
  4. Mom kept the tick so we're good there. And found a place to test the tick, so we're starting that process. Local Urgent Care will prescribe preventative abx with 72 hours so we're good there. We're touching base the pediatrician, would prefer to have them on board for the process preferably. Need to look into possible interactions between his current Meds (Intuniv 2mg) and the possible abxs he may soon be on. Much thanks everyone.
  5. Hi, My DS12 has Tourettes and we've been treating him for his tics for a couple of years now. We found a tick on him today, not sure if it is a deer tick or not. I am obviously concerned about Lyme, I certainly don't want him to have that in general, and especially so because he is already experiencing neurological symptoms which may or may not be PANDAS related. I am just wondering if there is anything I can apply topically which could reduce the chances of a lyme infection? Or anything else I should do. How long would I have to wait before a Lyme test is feasable? Thanks,
  6. Our DS12 Started Intuniv around the start of the school year ... and it did help his tics ... he was having basically constant vocal and motor tics (head rolling, and a sort of grunting/snorting noise) we were concerned as he was starting a new school (middle school) and was ticcing badly. The intuniv did help. The head rolling stopped, the vocals were reduced ... he still had some vocal, and his motor switched to a less noticable tic ... we call in "banging" where he would basically punch himself in the hip ... After Dentist he had a flare up of his old breathing tic ... constant deep br
  7. Were the fillings a mercury amalgam ? Would be good to know if mercury is something that should be considered. There are natural chelators like Chlorella that can reduce mercury levels if that is the case, although I have not looked into its affects on TS, if any. Flouride is also a definite neurotoxin ... so that could also be contributing to the problem ... sufficient Iodine levels are needed for the body to remove excess flouride ... it is iodines job to rid the body of both excess flourides and bromides ... Just my two cents .. My sons last bad flair of vocal and breathing tics
  8. Interesting ... well there are certainly direct links between bowel health and many of these neurological conditions ... has your daughter had the surgery to repair the problem ??
  9. Chemar I went and did a little looking, and contrary about what I had read about it ... you are correct ... olive oil has a higher smoke point than unrefined coconut oil ... I need to go back now to some of the sources I got my original sources and recheck ... I feel like there is some bad info out there on the issue. http://en.wikipedia.org/wiki/Smoke_point -Jim
  10. I would also read up on the GAPS diet. As I think whether it is Pandas or non-genetic Tourettes it all starts in the gut, and as you mentioned your child has a very restricted diet ... I would assume it is a lot of carbs, starches, and sugars ... is a pretty standard thing for GAPS kids. The good thing about the GAPS book is even if you do not try the full diet, just incorporate a few things, or none it all, it still does a wonderful job of explaining how the digestive system is related to immune health and neurological health ... how things generally get messed up in the first place, and how
  11. Chemar, while all oils will oxidize at some temp during cooking ... and decreasing their health benefits, or even making them harmful, coconut oil is actually much more tolerant of heating than olive oil ...
  12. Are you using the plain Natural Calm or one of the flavored ones ?
  13. We have not yet gone the environmental route ... I would like to find a good doc to rule out some other factors that we have not yet, so if anyone does know of a good one in NNJ the info would be appreciated. Currently we have DS12 on 2mg Intuniv ... and it has brought his tics down considerably ... while the vocal and motor tics are still present .. the more noticable ones are gone, and he is doing well socially in middle school, so we have not been as aggressive in seeking out alternative therapies ... his mom is less receptive to such things, so we have been staying the course for a whi
  14. This link, which I've posted before, I think is relevant to this conversation ... low ferritin stores can affect Tourettes. http://www.ncbi.nlm.nih.gov/pubmed/16816233 -Jim
  15. Agree with Fixit ... mostly in the gut. The ABX is horrible for the gut, so it could start making things worse again. So definitely try and get that under control. Also, teeth grinding (bruxism) is a sign of magnesium deficiency, and as magnesium is a major tic reducer as well, you may want to get some Natural Calm and try and get your levels up. Sometimes absorbtion can be an issue to, especially if gut is bad ... Epsom Salts will help regardless of that. -Jim
  16. Nothing really concrete to offer here, I've thought about it a bit ... seems oddly coincidental. So with a grain of salt I offer basic speculation ... The body in general will attempt to expel waste and toxins through the feces and the urine ... if for whatever reasons those methods are not sufficient or not working the body can expel toxins through the pores of the skin .. via sweat etc .. So all I can say is perhaps you have a fairly toxic condition and the body is trying to get rid of it in any way it can? Found this link ... http://www.mamapedia.com/article/daughter-tic
  17. Hi, You say you had bloodwork done ... were his ferritin levels checked ? This my current focus, just posted a new thread about iron levels ... curious to get some feedback from parents on this. Restless leg syndrome is also a symptom of low iron so I'd certainly be interested in seeing if there is a correlation. -Jim
  18. Hello, In my journeys searching for nutritional contributors to tics I came across this one. http://www.ncbi.nlm.nih.gov/pubmed/16816233 Which seems to indicate that low iron store levels (ferritin) may contribute to tic disorders. And I happen to know that my DS12 does have low ferritin levels. Wondering if anyone has had any experience or success in reducing tics by raising ferritin levels. -Jim
  19. Does your daughter have any active infections, like lyme? Possible healing crisis/Herx type reaction when her immune system got the jolt from IVIG ? Just a guess ... Is this her first IVIG ?
  20. Dosage for the Tagamet for warts is 30mg/kg/day ... I don't think you would be using a dosage that high unless you were specifically targeting the warts. So I would not expect to see the immune system response. Interestingly Classical Homeopathy works by the same premise, that of stimulating the body's native immune system to fight off the infection. So Fixit it certainly seems that the persistent viral infection of the warts was most likely due to immune suppression (down-regulated cell mediated immunity) Did you see any improvement in Pandas symptoms as the warts improved ? This
  21. Warts are definitely viral, it's HPV, Human Papilloma Virus. Cimetidine (Tagamet) in high dose is an FDA approved treatment for warts. It worked for me for some stubborn plantar warts, gone after 20 years after 4 weeks on it. It works by upregulating cell mediated immunity. People with down-regulated(suppressed) cell mediated immunity are especially vulnerable to viral and fungal infection. People in that state of immune suppression have an altered T1/T2 balance. The T1 cells are the ones associated with cell mediated immunity, they are low ... T2 cells are associated with antibod
  22. I'm a Jersey guy, you should be ok traffic wise on a Saturday morning, barring an accident or construction. Now if this was during the week it would be a whole different story! (:^)
  23. Keep in mind if the gut flora is compromised, some, or most of what you try and supplement orally may not be absorbed.
  24. Anyone attempting to heal gut issues should read Gut And Psychology Syndrome ... if you dealing with persistent GUT issues you need to give the GAP diet a look. -Jim
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