Jump to content
ACN Latitudes Forums

landamom

Members
  • Content Count

    164
  • Joined

  • Last visited

  • Days Won

    1

Everything posted by landamom

  1. Hello all, I was wondering if anyone has experienced liver issues with their children being on long courses of abx or Motrin type medications? My DD has been on zithromax for the past month without a break. Her latest labs showed her liver enzymes were 4 points above normal range. I'm not sure what to do about this. Will detox help? And can this cause serious health issues in the long run? Thanks in advance!
  2. Hello all, I was wondering if anyone has experienced liver issues with their children being on long courses of abx or Motrin type medications? My DD has been on zithromax for the past month without a break. Her latest labs showed her liver enzymes were 4 points above normal range. I'm not sure what to do about this. Will detox help? And can this cause serious health issues in the long run? Thanks in advance!
  3. philamom - ugh, I'm so sorry you got stuck with the trains... how frustrating! I hope you make it and everything goes well. Thanks for responding. Yep, I had gotten the tip regarding detox - very helpful to know!
  4. Hi ptcgirl! Thanks for the info about Dr. J. I know he is pretty much the best LLMD for kids in the country. Do you have any idea if he believes in the PANS aspect of it? Thanks!
  5. There are very few LLMDs here that will see children. We've been seeing pretty much the only one and it has been a terrible experience, so we need to look elsewhere.
  6. Hello all, We have an appointment set up to see Dr. J, an LLMD in CT but it isn't until October. We are looking to have a phone consult with someone who has experience with PANS and also Lyme as we believe (based on a CDC positive western blot) that that is the trigger for our DDs issues. I was wondering if anyone has experience with either Dr. T. in NJ or Dr. K in Chicago? We have narrowed it to those two at this point because they both do phone consults and currently there is no one I can find here in NC. Thanks in advance for your help!
  7. My DD seems slightly better today - yesterday was just terrible with tics and I really feel it was the fish oil. Additionally, it has been leaking out of her for the past 24 hours the poor thing. I feel so terrible for putting her through that. tried to get in touch with the dr. who told us to take but have not heard back yet. Thank you for everyone's input!
  8. Thanks Missmom Yes, Dr. L in MD has a wait until December. It makes me sad to think of how many kids must be suffering to have such a long list. But it sounds like she's worth the wait. I'm happy to finally be a part of the forum. We start school on Wednesday and I'm praying for a miracle to keep her able to focus and I know I'm going to need the support! Best to you and your family-
  9. Thanks LLM! I am in the south east - NC and willing to travel. That's where I am at in my head... thinking that the Lyme has caused PITAND. Just so confused right now as to how to proceed and getting such mixed messages from doctors. Sorry to hear about your son... what is causing the herx? hugs-
  10. Hi lfran - when you say horrible as in an increase in symptoms? If so how long did it take to calm down? thank you-
  11. Hello, We started using two new supplements this morning - Glutathione cream and dha fish oil. I was wondering if anyone has seen a worsening of tic symptoms with either of these? I'd hate to stop something before even starting but not sure how to tell if it's an adverse effect or not. Thank you!
  12. Hello all, I am brand new to the forum after trying to become a member for a couple of months now... I'm so happy to finally have gotten a validation email, you can't even imagine Please bear with me and my long post- My DD7 has, I believe, PANDAS or probably more likely PITAND. Long story somewhat short - she started with a motor tic back in April of sticking her fingers up her nose. She had done this briefly last fall but it only lasted a couple of weeks. Then in May she started with a chronic dry cough that came from nothing. A couple of weeks after that she started with moving her
  13. Hello all, I am brand new to the forum after trying to become a member for a couple of months now... I'm so happy to finally have gotten a validation email, you can't even imagine Please bear with me and my long post- My DD7 has, I believe, PANDAS or probably more likely PITAND. Long story somewhat short - she started with a motor tic back in April of sticking her fingers up her nose. She had done this briefly last fall but it only lasted a couple of weeks. Then in May she started with a chronic dry cough that came from nothing. A couple of weeks after that she started with moving her
×
×
  • Create New...