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Posts posted by landamom

  1. Chances are what you are talking about is pin worms, a very common childhood ailment. They are little worms that hang out around the rectum and itch like crazy! They usually are treated very quickly with a prescription. Most kids get them from getting dirt under their nails and then ingesting the tiny eggs. They aren't a big deal, but ironically I know a pandas child whose parents thought he had a rectal tic... Turned out it was pin worms :)

  2. I've of course seen many a post on using Motrin to decrease pandas flares and issues. If it doesn't seem to do anything, does that mean it isn't really PANDAS? And honestly, I can't remember if we ever tried Motrin specifically, my husband keeps buying children's Advil! I'm not sure if there would be a difference. I always see everyone specifically mention Motrin, not ibuprofen. Thank you!

  3. Thank you for everyone's response! I'm sure that probiotics are not solely responsible for her tics... They have been the main symptom since the beginning, but they see to get worse from taking certain things. IDK. I feel Ike I am guessing at most of this.


    Nicklemama - do you think the Sachs b.contributed to the yeast sensitivity? I hope he is doing well now!

  4. Hello, my dd8 is on two abx daily - Augmentin and Zithromax. I am convinced that probiotics are making her tics worse, even thought they are strep-free, so we have stopped them the past few days. I don't like the idea of her being on so much abx without something beneficial... Has anyone tried using Florastor/Sachs B on a regular basis for gut health? Are there any other alternatives to lab made probiotics that would be helpful (fermented foods, etc?) that you've seen results with? Thanks in advance!

  5. Nancy, this does sound amazing... Almost too good to be true! I wish you and your daughter the best. Please keep us posted. I was wondering... You said 'good bye vocal tics'. Have you been told that it specifically can help with that? My daughter has vocal tics and lately they have been so bad. I am not sure what to do at this point. Also, how can you tell if the donor has a healthy gut? Are there tests for it? Thanks!

  6. Hello all. My dd8 is on daily Zithromax and Augmentin. Her main symptoms are vocal and motor tics, but lately she has been having a lot of anxiety. She is saying things like she can't stop worrying about dieing. I don't know what to do for her. We are awaiting preapproval for IVIG but who knows when/if we will get that and even when we do, Dr. Bs office is already booking in February. Do any of you use any anti anxiety meds, along with the abx to help with this? I am not the kind to "cover up" symptoms... I want to treat whatever we can, but I am at a loss and hate to know that she is feeling this way. Thank you in advance for your help

  7. Hayley, I'm happy to hear that IvIg went well and that your dd seems to be having an improvement... An improvement so soon after IvIg seems to be a good sign, I would think. I feel like from what ive read that a lot of kids take a while to show any improvement at all after IvIg. I was wondering if your dr. had been able to explain to you why the "turning back of pages" even occurs? I asked about this very issue today when we had a call with Dr. Bs office and they basically couldn't answer it. I am going to start a new thread about this because I think it's an important issue and it seems that even among the pandas docs, there is no consistency as to what can be expected after this.

  8. Thanks for updating! Glad to hear you've had such improvement! Just started on Acyclovir today. We're also still on Zithromax and amox but she has plateaued or gotten worse again so I feel they are no longer working. I'm willing to give an antiviral a go at this point event though we can't tell if the Coxsackie is old or new. I was wondering what dosage your son is on? We are supposed to do two tsp. 2x day. Thanks-

  9. My dd had been having pretty bad diarrhea for several days. As she has been on two different abx for the past four months, I have been concerned about c diff or some other gut issue. I decided to start her on Florastor Sachs. B and within a few days her diarrhea has stopped and its gone back to normal, if not a little harder. Could this actually be from the Florastor helping things? Or am I nuts :)

  10. Hi all, I wanted to try giving my daughter OLE. I got this brand at the Vitamin Shoppe because it was the only liquid... My 8 yo daughter can't take capsules/pills and getting her to take any powder mixed in anything is so exhausting. So I always try to find a liquid option. Being that I am new to OLE, I wasn't sure if this is ok to use as it seems to have other things in it and not just olive leaf extract. My dd's main issues are tics and I worry that introducing extra stuff will set her off. Would love to hear if others have tried this kind? Thank you!

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