Cum Passus
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Posts posted by Cum Passus
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Hi bmom,
If I really try to think I believe his tics were present at 9. I would swear he never ticked before that time.
Either I was deep in LA LA land or our son really did not tic much. I only say that because I homeschooled the child 3rd, 4th, & 5th grade. I know I would have noticed some ticcing during that time.
It was 2005 He turned 12 in Oct. had shots and started public school. Things exploded and I was a reck so I really feel your fear and also Nadine's. I just don't want anyone to wait as long as I did before finding help for their child.
Nadine, do give yourself time to grieve, I think that is so important. Once you have passed that grieving period you will be so strong.
Don't drive yourself crazy thinking about triggers that are hard to find or fix. Just see what you can do to see improvement now. It might take a week, month or longer, but you will find something to help her.
I know you will, this is coming from a mother who's son had an ear piercing screem for 5 months.
I was so upset about the shots being the cause for his triggers I spent 11 months in a shell and thought nothing would help him. And here we are a year and a half later and he is doing well.
God Bless you both,
C.P.
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Lisa,
His Intergrative Dr. ran all these tests. The tests were really not that much money, I think it was around $500 total for all three. We had all three done at the same time, so I got all the results on the same day.
She was talked with me for over an hour to help me understand what I was reading, but to tell you the truth I was helped by the people on this forum more. So keep asking questions someone here will help you if I didn't get it right.
I believe it was money well spent.
Take notes maybe someone else has a good lab co. that did theirs, and you can take all that info to your Dr. too.
C.P.
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Welcome Tricia,
Is the Juice Plus your multi? I only remember it for antioxidant support. I think you may need some B vitamins also. We have seen a lot of help with the B6. His Impaired Trypotophan indcates he is not converting Tryptophan to sarotonin. The B6 was to help with that.
I think I remember Chemar and Carolyn telling me to watch out for the amino acids.
How about the epsom salts? Have you tried that yet?
Good luck it sounds like you are on the right track for a good start.
C.P.
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Hi Itsme,
Yes, I do give him calcium, and zinc seperately. I had him on 1000mg calcium, 3 tablets= 1000mg, but I went down to 2 tablets because he drinks about 20oz of raw milk a day and a cup or more of kifer.
Zinc is at 50mg
C.P.
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Lisa when I added the post it did not put it in the form I typed it out.
I'll try to show you in a different way
Fatty acid (adipate) findings (high) intervention options (carnitine, B2) common metabolic association (Fatty acid oxidation)
B-complex (Xanthurenate) findings (High) intervention options (B6) Common metabolic association (Imparied trypophan metabolism)
Neurotransmitter metabolism markers (Quinolinate) findings (High) intervention options (magnesium Support)
Common metabolic association (receptor agonist)
Yeast/Fungal (no abnormality found)
Hope that was easier to understand.
C.P.
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Hi Lisa,
SpectraCell labs determined functional deficiencies in B12 and Magnesium. Also antioxidant fuction, he was average in that, but his Dr. wanted a higher percentage.
Analytical labs did hair. He was found to be copper toxic, sensitivity to ingestion of carb & sugar. aluminum was high. That test also gave me a dietary profile for him. His metabolic typing is a fast-mixed oxidizer.
The test I found most helpful was Metametrix Organix comprehensive profile
The test looks something like this.
Summary Of abnormal results:
Nurtient Markers Findings Intervention options common Metabolic association
FATTY ACID
Adipate high Carnitine, B2 Fatty acid oxidation
B-COMPLEX VIT
Xanthurenate high B6 Impaired Trypotophan metabolism
Cell regulation
NEUROTRANSMITTER
Quinolinate high magnesium support Receptor agonist
Yeast/Fungal
no abnormality found
There was alot more, but just gave you an idea on what it said. This on really helped me understand the neurotransmitter markers and even though my son was not deficient in B6 his body needed more then the daily rec.
Hope that helps,
C.P.
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Hi Nadine,
Welcome, My son is 13 and the Natural calm is what started the ball rolling in improvement for him. I think your daughter being only 4 should see some good results on kids calm.
I say that only because my son has other things to deal with at 13 (stress, hormones, ect..) so I would think younger kids have a good chance at improvement. (hoping they are still happy and care free)
My husband also has TS and our son really looks up to his dad. I think it helps to have a family member have Ts too. The child can see how normal the adult is, and I do believe it has helped my son not dwell on TS.
He has lots of friends, is a good athlete, and get good grades.
I'm so glad my husband has been this solid rock for our son to lean on. Things may have been different if he focused on his mother falling apart day after day for a year.
Good luck I think after the shock wears off you too will be the rock your daughter leans on.
As my husband says "TS... SO WHAT, AT 13 I'LL TAKE IT. BE HAPPY HE IS NOT ON DRUGS OR COMMITING CRIMES." Sometimes I need that rock to smack me upside the head.
C.P.
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Lisa,
My son would play loud, and was the clown out of my three children. (other two are girls) He plays very competively so you can hear him on the field yelling out comands. We use to think he was taking charge of the game, telling the out field how many outs, or where the next play should be. Now I believe that is his way of covering up his vocal tics. Making them sound like normal. My husband has Ts too and he talks very loud, he also covers up his vocal tics. He did it so well for 15 years of marrage I had no idea he had tics.
I think when my son turned 12 he no longer could control or cover up the tics like in the past.
I believe because my son's TS was passed down, the shot really did a number on him.
C.P.
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Hi Caryn,
WOW, I'm so glad someone else has hear that line.
My son's Intergrative Dr. took blood, hair and urine tests. when she was going over the tests she made that comment. She said she might want to test vaccine titers. She seem to think his body was not distributating the vaccines through the body the way most kids do. I was so confused and overwelmed with all the tests in front of me, and it made me think the shots really had an effect on his system.
He was given his shots in oct 2005 and by Thanksgiving his body was out of control. A week later he was yelling. Shortly after the shots I had his picture taken with his sisters and he looks yellow in the photo. His older sister had the shots on the same day, she is fine.
I never knew my son had anything wrong before he exploded. Now when i look back some of the things he did were tics I just thought they were boy stuff.
I agree do NOT give him any shots,
My son's PANDAS titers came back 6 and less then 60 for the other, but I don't have those tests, Dr just told me.
i would love to talk to you more about this, I have to take him to Baseball now.
C.P.
C.P.
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Hi Lisa,
I wanted to welcome you. I don't have much to add that hasn't already been said, other then my son also tested very low for the PANDAS titers test.
The only thing that I can add is my son's Dr. said it seemed to her (from his lab work) his body was fighting off some kind of virus or something. I guess it could be from the shots he had in 2005. I did think it was PANDAS for a while. My husband has Ts so your post is the only one I have read where a Dr. said the child could have had Ts triggered by strep. Thanks for sharing that. Keeps giving me something to think about.
C.P.
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Hi, Luke's mom
I just wanted to add he may be going through puberty, and try not to get frustrated if you don't see results right away. I think my son really had a hard time with the TS at 12 because his body could not handle puberty/shots/stress form starting public school.
Last year I was taking all the suggestions from this sight, and it seemed not to help at all. I really found that the lab work has helped because I can see what my son needs. I really notice a change when I give him vit. he needs.
I don't want to be gross, but I have noticed since my son takes so many epsom salt baths, and he is not shy about walking around me with no clothes on. That his body is showing a lot of hair growth that seems to have sprung up overnight. I don't know if that is helpful, but it just seems like he has made it over a hormone hurdle these last few months. (just something to keep a look out for, or your husband if he is shy)
Plese keep us posted I know so many parents with young children would like to hear how your son is fairing through puberty. I'm sure it would give them a good idea of whats coming down the pike in a few years.
C.P.
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Deanna,
Our son's profile has him down to take 400mg and he is 86lb/90lb depending on which scale he stands on.
Recommendations from Metametrix Labs.
I'll be trying it at the end of May or early June.
Good luck please let us know how it worked.
C.P.
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Anyone notice an improvement in tics after a supp is added then maybe a little waxing (not much) but then that improves after another supp is added to the mix.
It seems to me our son greatly improved in Dec after Mag Calm was introduced, then a little waxing in Jan. That waned after the zinc was given. Then waxed a little until we introduced the B6. On the look out for waxing (hasn't happened yet) I feel I'm pinning the waxing on school, allergy, baseball, ect... When maybe it is not those things at all. Just wondering if his body is telling us its time to add another vitamin to the program.
I was just wondering if this has happened to anyone. Was hoping to see if there comes a time when I'll know when to stop adding supps, and know the right mix for our son. ( Chemar, Carolyn any thoughts)
C.P.
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Thanks guys you all are most helpful.
I guess my problem is he is so healthy (besides the bumps and bruses) I have such a hard time putting supps into a body that looks and acts like it does not need any. (you know reading what some supps are for, thinking , he can't have this or that, he looks to healthy)
Thanks for the advice C. and F. I will hold off (but will try the B12) until after tests.
C.P.
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HUMMM???
Carolyn, A couple of questions. So would he have had to have a special blood test to tell if he did not convert B12? Something different then the SpectraCell Lab blood work?
She only gave me the different options, (supps, shots, a patch) she did not say anything about why it was low.
He is really close to the B12 being adequate, in fact about 1/4 of the marker is in the adequate range.
Does that sound like he is not having a problem converting?
I will hold off on the B12 and give the raw milk more time as a dietary change and repletion of the B12. What is your opinion?
Last question, would the B6 or mag or some other vitamin help with him absorbing B12?
Thank you for the warning about B12 and increase in tics, and thanks for answering my questions.
Faith could you share how low was your son's B12 was/is so I could get an idea of what I'm thinking about.Thanks so much,
C.P.
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Thanks Faith and Carolyn,
The test says it should be cobalamin, I had a hard time finding it, but got some by Solgar 500mg.
I think the Dr was thinking this was a key supp because of the nervous system support. I'm not sure if he will benefit from high doses because he does not have motor tics most of the time.
Carolyn do you take B12? If yes how has it helped you?
Is cobalamin good? I'm a little confused on what I have read about B12. It seems a person can take high doses and not really get that much B12 in their system. Oh and what about coenzyme B12?
Faith, He is still doing very well. Was concerned he would tic more after the skating accident (lumbar strain) and x-rays. But nothing, no change, still doing well. Came home tonight after B-Ball practice with a hugh bruse and knot on his hand, was hit by the pitcher. So I'm a little better about worring about pain increasing his tics.
Have B12, vit C, CoQ10, Arginine, and Carnitine left to get into him. Hopefully without any problems.
Still thinking about the krill oil.
Going very slow as he has state testing coming up, and I don't want to rock the boat.
C.P.
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Hi Faith and anyone else who give their children B12,
Faith, I remember you said you give your son B12. Could you tell me how much you give him? My son's chart has him down for 50mcg. His multi has 10mcg and B12 is plentiful in raw milk.(don't know how much is plentiful though) I'm trying to get an idea on how much would be good for him. He is borderline to being adequiate in B12. (on his chart)
Also having a hard a time finding low doses of B12.
Thanks for your help,
C.P.
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Hi All,
My son's energy production markers show high Cis-Aconiate and Isocitrate both associated with Renal ammonia loading. Arginine is suggested at 1000mg. What effect on TS do you think this will have? I do not remember reading if anyone has used arginine.
I see where arginine supports growth hormones. could this be the reason he is so small for his age?
I'm not sure I want to start messing with growth hormones with a child who has TS.
But then again I do want him to have all the interventions his body needs, could help the TS right???
If anyone has helpful info on this I would really be grateful.
Thanks,
C.P.
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Hi Owen's mom,
Welcome, I wanted to tell you I started my son on Bonnie's supps, before we had allergy testing. he told me one day his stomach iched. I stopped the supps and had him tested, and he does have an allergy to soy. It was high and we never saw any rashes nor did he complain after eating products with soy.
I told my Dr. that he needed to be tested because his peanut allergy is severe, and I needed to know about other foods. I never said it was for TS. My son does come up allergic to other beans.
We took milk away for three weeks... no change, he still ticced like crazy. Introduced it back... no change, still ticced like crazy.
I have wondered about the PANDAS with my son. His titers are very very low. So if anything have the test done and rule it out.
Glad your here,
C.P.
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Patty,
I'm glad you shared this with us.
The best part about God is he knows our hearts, and what ever one would do to glorify Him he knows it, even if all it is, is to offer up your daily chores.
God Bless,
C.P.
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Patty,
Thanks for the info, I'm always looking for ways to save.
C.P.
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Hi Faith,
We should have a phobia club.
I'm so bad I feel like I need a gas mask to enter Home Depot.
You know what they say misery loves company, just thought you would get a kick out of another
Charlie Brown. (me)
C.P.
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Oh yes! yes! How could I forget you dads.
I too believe God talks to us, and one thing he revealed to me was, only one apostle stood at the foot of the cross. The others could not handle it, and left.
C.P.
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Boy Kim, you sure know your way around the web.
You got me thinking, and reminded me I wanted to get the book THE SECOND BRAIN, by Dr. Michael Gershon.
Has anyone read it?
I'm stuck on the gut being the second brain, and having, " A hundred million neurotransmitters, line the gut, approximately the same as the brain."
In all my notes about raw milk and it being a perfect food, "One could live off it alone if one had to." The 60 plus enzymes, protein, vitamins, and amino acids. I'm finding myself wanting to know so much more about the gut and the brain connection. And how is my son benefiting from the raw milk.
My son also was NOT on soy as a child. In fact he has an allergy to it, tho we did not know until tests were done.
Interesting link on the neurotransmitters, I think I can even point out some effects these have on my husband.
C.P.
Hi Faith, 
Oh yes! yes! How could I forget you dads.
New here, onset of tics in daughter
in Tourette Syndrome and Tics
Posted
Hi Lisa,
I never saw any reaction from my son in early shots. He got the tetnis/purtusis (sp?) and meningitis at 12 I don't know if it was both shots at the same time that did it, or was he on the brink of exploding because of his age.
If I didn't have a photo (taken shortly after the shots) that shows he looks ill I would not be so hung up on shots. We took three trips the summer of 2005 long traveling ones too, and he showed nothing that would have been an eye opener. Last trip was 5 weeks before the shots those pictures he looks great and healthy.
It just make me really think.
C.P.