Cum Passus
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Posts posted by Cum Passus
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Hi Faith,
I know we used a Carlson Brand with the high DHA, however, I was more thinking my sons ticcing on the fish oil was from the mixed tocopherols. I called every fish oil co. that our health food store carried, and every one said their was a little amount of soy in the vit. E part of the fish oil.
I would like to say my sons has done very well on the fish we have been giving him. As for concentration, I do believe he is able to memorize more work on his study guides in school. He is one out of 2 kids in his pre-algebra class who received a 100% on last weeks test. Also a 100% on his math quiz the second week of school. He studied for a civics, science, Spanish, and English (all tests) this past weekend. When I quizzed him on it all he got just about every question right. So I'm thinking he is benefiting from the fish.
I do give our daughters fish oil, higher in the DHA. The oldest has been taking it since last year. Her history teacher, and science teacher both wanted her to take honors classes this year. She also received the Latin award, for having the highest grade in the class. I really do believe it is working for her, because each year I was afraid school would get harder for her, but she is doing better then I ever expected.
C.P.
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michele,
Soon to be 14, and is 90 lb, he takes 500mcg B12 (as cobalamin per SpectraCell lab suggestion) by Solgar.
Zinc 50mg (as citrate)by Allergy Research Group.
Have you had vit. deficiencies test done yet? I floundered for a year until I had these tests done to help me get started.
Good luck michele,
C.P.
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Hi,
In a few week this will be two years for us, so I hope this will help a little. Dec 2005 tics became so bad we put our son on clonidine patch, had allergy testing done that same month, and took away foods he was allergic to. And all bad stuff. Jan 2006 took him off the patch, body tics never came back. I have a feeling that might be because we took away foods he was allergic to.
Vocal tic was the only tic we had the most trouble with for the next 10 months. Put him on Risperdal for the vocal tics Oct. 2006. Vocal tics came down a little better then 50%. Diet still the same. Dec 2006 Started the Natural Calm, and an unbelievable change. Jan, Feb, March 2007 an introduction of vits. Cal, zinc, B6, B12. Diet still the same. June 2007 weaned him off the Risperdal. He has been doing very well. Has had a small increase in vocals this past week. Could be from the pollen. Diet still the same. Only thing he may have in his diet that is different then most kids is he drinks raw milk. I just found out he was voted student of the month from the school, and will recieve an award in Jan. This gives me such hope that he is doing very well in school with the tics.
Just a little side note about my husband. He never watched his diet until a few months ago. He is no different, his tics are the same. (not much) He was a manager for a rest. that did about 6-8 million a week, with a special that everyone working had to taste, and he ate everything on the menu. He remembers the little spice bottle of MSG that they put in almost every dish. He worked for this co. for 14 years, eating the food all day
long. I met him at this rest. and never in the years dating or 15 yr of marrage did he tic that would make me wonder what was he doing. He never took vit, and drank lots of diet soda. I just find that very interesting.
I can only hope my son will make right choices reguarding food, but will also have the pleasure of dinning out with friends once in a while without a tic explosion.
C.P.
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Hi brink,
If I could make a suggestion, I would start with a mag/cal Or the Natural Calm. Olny because I have not heard anyone say mag triggered tics. Some supps can trigger tics, and that would just make you wonder if the supps were the trigger or was it from the weaning off the meds. Just stay calm, and trust, God will do the rest.
God Bless,
C.P.
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Hi everyone,
I know some of you are no way thinking about dating for your child, but thought I would ask, and maybe some of you parents who have TS could help answer some questions.
My son has only showed a little interest in girls. He has a girl he likes, but only smiles when she is mentioned. I was wondering how I could encourage him, and maybe ask some probing questions to fine out how he feels about girls/dating, and having TS.
I have talked to my husband about it, but he really isn't much help, because he was not labled as having TS. He also had no idea he was different as a child. He did date a little when he was in high school.
Just wondering if some parents with older TS children could share how their kids deal with the subject of dating.
Any parent who has TS I would love to hear how you felt at that tender age.
Thanks in advanced,
C.P.
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Hi Faith,
Eye tics were first for my son too. It is the only tic that will come and go.
All other motor tics my husband had as a child are ALL gone. He only has the vocal tic that will pop up once in a while.
The vocal is the one tic my son can not seem to shake. I guess if he is going to be like his father it may never go away, just lessen. (I hope)
C.P.
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Hi emma 1,
My son's Dr. wanted him on 500mg of DHA daily, she made a point to tell me the DHA should be higher then the EPA. My son has TS, and at this point can not take fish oil. (made him tic more)
DHA is most abundant in the grey matter of the brain. And I thought EPA was more for the heart, so I can see where you are confused.
I remember reading that low DHA is linked to low serotonin levels. It would seem it should be the other way around. I do remember reading someone here posted that the are giving high EPA, and it is working well for them. I just forget who that was, and if their child has TS or PANDAS. Maybe they will post too.
C.P.
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Hi Judy,
I'm not sure what you would call the stage he was/is in. Not to be gross, but when he was 12 he had no pubic hair. The last year and a 1/2 he has become a man in that area. However he still has a cracking voice, and no body odor, no hair under the arm or face. He is very small for his age, and has always been a slow grower.
So I'm a little confused on what stage you would call him.
You might want to chart his growth. we did that and he was growing faster during the time of the explosion, and the year to follow.
C.P.
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hermom33,
I don't know much about PANDAS, and I know what you mean about the Drs. I thought I would bring this post back up to the front so maybe some PANDAS moms can help.
Good luck,
C.P.
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Hi jkc,
I would stop the school pizza for a while. Maybe you could tell him you will make him homemade pizza for dinner on Fri. to help with the disappointment. We have a special treat for our kids on Fri. nights, we make healthy nochos. They can't wait for Fri. because of that. My son ticced non-stop for over a year, I thought he would never stop. (has not stopped, but doing very very well) Hang in there things will get better.
C.P.
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Hi Amy,
Welcome, we saw a great improvement with the B6 and B12. If your daughter can do the B vitamins you might look into that, it is better to take all the B's together, but some kids can't do the B-complex. (makes them tic more)
There is so much about the diet, if you look back at past posts you will get very well informed.
Hope you don't have to see that boob of a Dr. again, and glad you like the other one, sounds like they gave you great advice.
C.P.
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Hi bmom,
Yes he takes a mutli, 100mg B6, 500mcg B12, Mag (natural calm) 400mg, cal 700mg, vit. E 400mg, selenium 100mcg, zinc 50mg. He will have the SpectraCell lab done again in Oct. to see if we are still on the right track with the vit.
His diet is a lot of meat, I slow cook a whole chix every week, then use that broth for soup. Do the same with a beef roast, and use leftovers for BBQ beef sandwiches. Husband grills ribs, steak and one extra for fajitas the next day. Husband also cooks up chix wings with a sauce of butter and tabasco. Son eat leftovers of that at lunch. He has to chase his friends away from his lunch at school. I made homemade spaghetti sauce with tomatoes from my garden. My husband thinks I have been body snatched, the food tastes too good.
I bake all his treats, cookies, muffins, cakes, and right now I made a lemon meringue pie, from a recipe I found that did not have corn starch in it.
He eats loads of fruit and veggies too.
I do not watch his carbs.
He does not eat soy, corn, and rice.
God Bless,
C.P.
P.S. I think the year of wholesome foods has helped his school work too.
First week of Spanish he has down numbers 1-100, months, days of the week, and some other words I forgot. He only has that class every other day, so he has only been there 3 times.
I know I'm 1/2 Mexican but I do not speak Spanish (had a hard enough time with English)
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Hi Judy,
Welcome, my son was dx at 12 with TS. He had almost no tics before age 12, very little ones that we did not notice as tics. I think you are smart to have the pandas test done. Check into his diet a little deeper, Carolyn posted a good one on hidden MSG today. This could also be because of his age, and for us it seemed nothing helped until he pasted the puberty stage.
Good luck,
C.P.
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Hi all,
Just wanted to post a good report for you all. I know how badly we like to hear good news. First I wanted to let you all know the 6 baby teeth he had pulled had no effect on his tics. Nor did the gas they gave him. School so far has been good, he has done well adjusting to a new school. I will have to see how things go for Spanish, because he is taking that class with upper classmates and he is a little scared of them.
Also the school did a great job hand picking his teachers he likes them all.
We are still on a strict diet, that is easy for him because of his high peanut allergy. Carrying around an Epi-pin keeps him on the obedient side
He had a friend spend the night a few weeks ago and the two of them stayed up all night. Lack of sleep did not seem to bother him either. He will be 14 in 6 weeks just so you all have an idea of his age, and possible good news about tics lessening with age.
The goldenrod seems not to be a problem this fall, maybe the cow we get the raw milk from, has been munching on some gloldenrod for dessert.
As always your in my prayers,
C.P.
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Thanks Carolyn N,
It is so great to hear you have a good idea on how to help control your son's tics. It does feel hopeless sometimes, but nice to hear your story, and the success you are having.
I have become a good cook, because of having to make meals from scratch. I am even figuring out how to shop wisely and get the most out of my organic foods. It's kind of fun.
Keep up the good detective work and thanks for posting it will help a lot of parents.
C.P.
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Pandamommn,
I just wanted to tell you I'm so sorry you are going through this. I felt ill reading your story. You and your family will be in our prayers.
God Bless You,
C.P.
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Not sure why our son is doing so well. Maybe the goldenrod pollen is not very high yet. He is doing so good I would have to say even better then when he was on medication. The only thing we have done different is feed him 6oz sockeye salmon every other day. We did this because he didn't do well with the fish oil. I found in a book at the library (The Miracle Brain) It said 2oz of salmon would give you 650mg of DHA. The the lady at the health store said sockeye salmon has the most DHA then other salmon.
We have not given any new vitamins.
He looks like he does not even know school is going to start tomorrow.
C.P.
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Hi all,
I know first had how stressfull the start of school can be. Last year my son was screaming all the time for three months. I just wanted you all to know, each and every one of you, and your children are in my prayers.
It is my prayer that God bless all of you with his mercy and grace. It is so easy to shake and tremble with fear of the unknown, but remember God said "No follower of Mine shall ever walk in darkness." (John 8:12)
May God keep your children safe this school year.
Blessings,
C.P.
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Hi jkc,
I would say she started eye blinking and pushing her tongue to the side of her mouth in May. I know she has an allergy to grass. The mid-atlantic has had a drought this summer and our grass has been dead for at least 6 or 7 weeks. Don't know if that has helped her blinking.
I do get worried about her having TS because so many people say they notice tics then they go away, and come back. So far she is no way ticcing like my son.
By the way all, so far so good with him, I'll let you all know how the start of school goes.
C.P.
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Hi jkc,
Just wanting to understand, your son has never had tics before? If not, try not to worry to much. It really could just be a childhood tic that will go away. My daughter had some tics this spring, but have gone away so far. We do have TS in the family so her tics could come back, but I think they were allergy or nerves do to softball. The team really depended on her she was their best pitcher, and fastest base runner. So I think that could have been the problem. Have not seen any ticcing in her since July 4th.
It is good that you are reading up on the posts here. One thing is, I really really believe junk food is bad for all of us. I had some soup last week that I think had MSG in it and I got really tired, and my eyes felt funny. I think i have not eaten MSG in so long I really felt strange. Don't know if that could happen since I never was known to have a problem with MSG before.
All the things you mentioned... yes, they could be triggers.
Supplements could take awhile, and sometimes people see good results right away.
Good luck, we are all here to help you through this, it is so painful to watch, but so rewarding to see Dr. mom and dad taking good care of the child God gave us.
C.P.
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Hi Janey,
My Dr. told us to give the zinc at night before bed. He eats it with yogurt to get it down. Our vit are all seperate, is your cal/mag/zinc one vit? My son takes the cal/mag at the same time three times a day. He does not take grapeseed.
I know what you mean sometimes I get mad when the bottles don't say.
Good Luck,
C.P.
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Hi Lori,
So glad your here for help, we are here to help your son, and you. I'm so sorry you feel like this. I know all to well that feeling. Keep praying, God will answer. My son was high in arsnic too. Do you have a treated outdoor wood play set? You know the ones that have slides, and look like tree houses. My Dr. told me they treat the wood with arsnic. she also said decks have this in is too.
You might want to start over with all the vits to see if you can find ones causing the increase in tics, like patty said some vit cause more tics. We had that problem and I had a hard time finding the ones causing more tics.
God Bless Lori, He is listening.
C.P.
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Hi hcelesteanderson,
My heart is just breaking for you and your son. ((((((((((hug))))))))) I wish I could give you a real hug. As itsme said your at the right place. Read as much as you can here, and you may find the help your drs are not providing. Try as hard as you can to use natural food to heal him. I do believe bad food is what causes some illnesses and it keeps us sick. On the other side food in the form of how God intended us to eat it can be healing.
Good luck,
C.P.
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Thanks Caryn & Faith,
My father-in-law has TS too. He just has not been a part of my kids lives that much, and I know he did not believe his own son (my husband) had something wrong with him as a child. I just worry he will get irratated with the noise now and then.
Thanks again,
C.P.
Fermented milk products
in Tourette Syndrome and Tics
Posted
I am reading about fremented milk products, and their ability to make pathogenic bacteria simply disappear.
I came across this interesting tid-bit, about Dali (similar to yogurt). When E-coli, Streptococcus, and Staphylococcus were added to dali the organisms soon died off.
In general, pathogenic bacteria simply disappeared two to four days after they are added to yogurt containing from 1.65 to 2 percent lactic acid. Their are other species, like Neisseria meningitides (an agent for meningitis)
the list goes on. All died off, or did not develop. I'm wondering if fremented milk products would benefit children with PANDAS, or would it help for those kids who seem to have more trouble during strep season.
If people living in traditional cultures enjoy good health, and do not get these diseases, is a child who for most of their life ate yogurt...could this be one factor to their never having strep?
Just wanting to understand what I'm reading here. I know kefir/yogurt is good for you, but am I educated on all its benefits. How would one know if there was enough lactic acid in the fremented milk product.
Thanks guys,
C.P.