Jump to content
ACN Latitudes Forums

zinto

Members
  • Content Count

    27
  • Joined

  • Last visited

Everything posted by zinto

  1. Hi all I have been reading about the benefits of krill oil as well as those of flax , EPO and borage oil on these forums . We are about to introduce some of this to my sons regime - he has had fish oil in the past and didn't seen better or worse on it but I don't think he took it for long from memory as we were chopping and changing between supplements . I am wondering whether he should take the krill or the flax combo ? Would both be beneficial or should we stick to one only ? Do they have similar benefits ? Thanks so much for your help
  2. it is always reassuring to hear how well your son is doing Chemar. My son is only 7 so I wonder if CBT would be of any use/help to him yet ? he is pretty aware of his tics and can control them when he tries to. I just wonder if it is still too young though ? would there be a certain therapist with certain skills I would be looking for in my research ? thanks
  3. Hi everyone My sons tics have been very mild the last couple of weeks ( relatively speaking ) but in the last week at 2 events - his school sports carnival and today his Easter play - his facial tics went crazy . Both times he was in the spotlight and felt excitement and nerves . Seems so cruel that when he is most being watched his tics would go crazy . It made me very stressed and I just want to know is there a way to minimize this happening that anyone has come across ? Does all the work just go out the window when a child is excited and we just have to accept this or does anyone think th
  4. he has had microbial faecal testing, hair analysis and blood work which ruled out everything except for being slightly high in heavy metals. all else appears ' normal'...which makes things harder.....
  5. Hi everyone , I really appreciated your comments and questions last month when I asked your thoughts re the environmental doc protocol my 7 year old son was on . I don't have all the answers to the questions you asked but I do know pandas was ruled out ( this remains open in my mind though ) He completed the course of anti biopics and other supplements I listed atwell as continuing dairy, gluten , processed food free diet and Epsom salt baths. Worsening has continued and now instead of just the one main eye Blinking tic he also has a low grade vocal and a fairly pronounced neck head tic too .
  6. Hi there It's almost 2 years on for us ( we have moved slowly ) and I am yet to see enough of an improvement to validate what we are doing . That said - how would I know how much worse he could be if we weren't doing anything ? My parents keep saying to me let it all go none of it's working but I feel he could be worse too at this point . Our main tic is the eye blinking which has been around for 12 months with increasing intensity with no breaks . My son is only 7 so I do worry a lot for the future . So far we have introduced Epsom baths , gone gluten dairy and processed food free , an
  7. Thanks all for the reassurance . I know I won't get fast results but the diet restrictions and extra supplements etc are such a lot of effort and work - and the diet part has been for over a year now but no real change in symptoms . It gets disheartening and I guess I'm just wondering how long do we wait before we try something else and what would it be ? Feels like a puzzle that can never be solved . He has just started at a new school and we have mined house so again I'm questioning triggers - but they are so hard to narrow down and nothing really stands out . Chemar yes he had blood te
  8. Hi everyone , It's been a while since I checked in but I am very keen to get some of your thoughts on the treatment protocol my 7 year old son has been given by our environmental doctor . Just a reminder of the background first - he has most likely for genetically inherited TS - both verbal and motor tics for 2 years now as well as some anxiety issues. Yet to be diagnosed officially . We approached an environmental doctor who suspected pandas and sent a stool sample for microbial (?) faecal testing to see what the balance of bugs etc was in my sons gut . No pandas ( according to result)
  9. Thanks so much for your response . So you have found those modifications to be of benefit enough to continue with ? We just find nothing we have tried has made any noticeable difference and the merry go round just keeps going - it is very hard to know what to try and how long for . How did you find out your son had a methylation problem ? Was that bloods ? Our ED has initially just focussed on strep but we wish he would look at other things too to save time. I'm still unclear as to whether or not PANDAS can have genetic roots and run in families or is it just TS . Please let me know ho
  10. HI all its been a while since I have had a chance to check in but still keep an eye on new posts. Would love to provide you with an update and get your input on here knowing everyones experiences are so diverse and everyones research so thorough ! we finally got our son ( age 6 - suspected genetic TS but undiagnosed yet - 18 month history of mild motor and vocal tics) in to the see a recommeded environmental physician. we waited 6 months to see him. He was very quick so I dont feel like we got the time we needed to ask all of our questions but he seemed familiar with tic disorders and says
  11. thanks for your response We have never had his eyes tested. Maybe I should do that to be sure. I am sure his classroom has fluro lights. We dont have any at home. Thats what I thought re bonnie supps - maybe it is an intial increase. not sure how long to try them before I cut them out. do you think if we cut them the increased tics would subside or do some people find they trigger a permanent increase ?? oh dear. I have an appt with an enviro doc but we couldnt get in until end of October. I am hoping he has answers for us but also need to be realistic. I am wondering if acupuncture would
  12. Well, we started my son on the bontech/bonnie supps a week or so ago now. Very small dose and we plan to build up very slowly . So far we have seen a slight worsening and definitely no improvement I would say. I know that could be unrelated and we need to give it time and see how we go. my sons particular tic at the moment is blinking - literally every second (with short breaks here and there) - it is especially exacerbated when he is talking/excited etc. It is a really obvious one and kids at school have been asking him about it. Its impossible not to notice and it is bothering him, a
  13. thanks for the replies, I will let you know how it goes. A LOT of work and research involved - now that we have made a start the full extent of it has become evident. It is quite overwhelming. Since starting we have read elsewhere that almond/almond flour can be detrimental to conditions such as TS and other neurological conditions. Given it is a HUGE part of GAPS we need to look at this a little more.
  14. anyone tried this or know much ? thanks
  15. HI everyone, we are looking at going the whole hog and trying the GAPS diet for a while. We have read the book and watched a talk online with Dr Natasha and it just makes so much sense that even if it doesnt help TS it would have to be highly beneficial for many other health complaints - my husband has suffered from 'IBS' all his life of ranging severity at different stages but has never been diagnosed with anything particular. He elminates dairy and most processed food and keeps things at bay a lot of the time, but will have flare ups for no obvious reason. This as well as our sons tics and
  16. Thanks for the feedback guys . We are working on diet in a big way . We have a few supplements but it's hard to know how long to keep them up for or if they are doing any good ? 911r n why haven't they diagnosed TS ? What's the hesitation in relation to ? Interesting . Has anyone tried the GAPS diet ? I have heard its complicated but very successful for all manner of health problems .
  17. Hi everyone , Just ambling along slowly in this journey of trying to treat my 6 yr old sons tics - and I have a few qs I would love your thoughts on : 1) what to do about increased tics from nerves / excitement ?? Anything ?? I don't want to avoid these situations but he is definitely worse when they occur and I just wonder if anyone ever found something that helped with that ?? 2) would you say that when someone says ' we tried all the alternatives - nothing worked for us' that basically they have just not exhausted the options ? It's such a puzzle and I can understand anyone saying it
  18. thanks for the replies. I have stopped giving it to him in case it was the wrong thing. can anyone suggest a good multi to start on? I am still so overwhelmed by supplements and uncertainty as to where to start. also love to get a clear idea of which fish oil or alternative I should be looking for. apparently there is a certain balance of the 3- 6 - 9 ?? to get ? any advice hugely appreciated
  19. Hi there I have recently started my son on juice plus chewables as I had heard it had benefits in some cases for TS patients . His tics seem to have suddenly increased at the same time . Does anyone know if there's a link here ? Anyone else experienced this ?? Thanks
  20. thanks everyone, there are just so many choices it is overwhelming. Hard here in Oz to find a practitioner to guide you through it unfortunately. I am reluctant to try too much as although I know these supplements are natural, Im sure some of them can also have detrimental effects. I dont want to do more damage ! Logismum, have you had any success with that multi yet ? I looked it up tonight and yes it does look very much suited to TS with the inclusions in it.... thanks again everyone
  21. Hi there I am probably asking a question I have asked before but just looking for reconfirmation re magnesium. My son is taking approx 3/4 of a teaspoon of natural calm every morning and having an eps salt bath most nights. So far this has seemed to keep things at bay ( well we think it has it is hard to measure) He is 6 and weighs 25kg....should I be giving him more than this - gradually increasing dose or this an ongoing dose ? The reason I ask is he is suffering a bit of a tic explosion at the moment so I am looking at what to start with him. It is very overwhelming as I read to know
  22. Hi there have u found this vitamin has helped with ur son at all ? Thanks
  23. thanks for that... No we dont use a multi at all at mo - Im so confused as to what to get that I just havent got anything - are there key ingredients/ratios to look out for ? my son is almost 6 so it would be a child-friendly one needed. I am assuming then by your link that you think Bontech still running ? I couldnt reach them via email and wondered if site is still current. Would those supplements be a safe start do you think? I am in Australia so unsure of what I can get here that is equivalent. Chemar would you say then that the flaxseed oil is a better option then ? or should I try f
  24. HI there I am slightly overwhelmed by the range of supplements people suggest for helping TS. we are doing epsom salt baths and natural calm....but I want to get a good fish oil and any other major tic redUcers. does anyone know if bontech supplements are still running ? I would like to order some but I cannot get in touch with them. Anyone have any idea ? thanks so much
×
×
  • Create New...