Jump to content
ACN Latitudes Forums

kos_mom

Members
  • Content Count

    329
  • Joined

  • Last visited

  • Days Won

    1

Reputation Activity

  1. Like
    kos_mom got a reaction from kakrpa in Tonight's Chicago Med episode   
    I contacted PANDAS Network right after the episode.  This morning I received this response from Diana Pohlman:
    "We heard from lots of parents and 600 innundated the producers email.  We are following up with an email to the producers as well.  Happily 20-20 is doing a great story on REAL TREATMENT mid May and that will be on ABC."

    NBC is the producer for Chicago Med.
     
  2. Like
    kos_mom got a reaction from Cind in Tonight's Chicago Med episode   
    I contacted PANDAS Network right after the episode.  This morning I received this response from Diana Pohlman:
    "We heard from lots of parents and 600 innundated the producers email.  We are following up with an email to the producers as well.  Happily 20-20 is doing a great story on REAL TREATMENT mid May and that will be on ABC."

    NBC is the producer for Chicago Med.
     
  3. Like
    kos_mom got a reaction from bobh in Anyone have experience with Coxsackie Virus?   
    JPDad,
     
    Coincidentally this post just came up on Dr. T's FB concerning what appears to be an adult with coxsackie. It seems to indicate antivirals could be helpful:
     
    "Got the best news EVER tonight!!! I was contacted by Dr. T. My labs show Mycoplasma consistent or chronic infection. Pneumococcal titers are high although I have never had the pneumonia vaccine??, There is persistent evidence of Coxasackie A titers which is rare in adults. This is a known trigger of PANS. Dr. T has a reasonable suspicion that...there was an active or chronic mycoplasma and/or coxsackie infection that was activated by the live nasal influenza vaccine. It can be treated with antivirals and antibiotics which I will start tomorrow. I am so appreciative to Dr. T for his expertise and persistence. All these tests could have been done while at Upstate University Hospital by my team of neurologists and movement specialist through Upstate University. Their response is " I don't really buy into PANS". Their recommendations are for me to establishe care with a psychiatrist/psychologist as they may possibly by a psyhogenic disorder. ARE YOU KIDDING ME!!!! Maybe if Suny upstate did the appropriate testing they would have known the cause of my symptoms. Thank you Dr. T for thinking outside the box, giving me hope, and reassuring myself that I am not crazy!!! The movement disorder specialist and I had a heated debate about PANS and he said... " If this Dr. T can cure you I want you to walk into my office and tell me I am wrong" I indeed will do this. When the medical profession does not have answers for your ailments they are too quick to say a psychogenic etiology may be the cause!!! Thank you for all your prayers!!"
     
    Ko's Mom
×
×
  • Create New...