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Jen85

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  1. I am in shock I had to log back on here. My last post was in spring 2013. My now 9 year old daughter has no problems in what feels like forever. Suddenly this past Friday the separation anxiety and vocal tics appeared out of the blue. I hadn't heard her little vocal tic since her last flare up and I immediately knew the PANS was back. Her sister had a sore/swollen throat earlier that week and my daughter never shows symptoms of sickness, she never gets anything like other kids but instead it seems to rear it's ugly head with ocd/tics/anxiety. I feel defeated as I thought puberty kicking
  2. So I just sent my 5 year old off to Kindergarten today who is having her 2nd flare up this year. A nasty virus swept through the school and most of the kids have been out of class for the last 2 weeks. Of course, she does not display symptoms of the virus like other kids.. instead.. full-blown ocd/anxiety/tics overnight. But no cough, no sniffles, nothing. I could not get her to go to school Monday or Tuesday. She refuses to eat and she can't explain why. If I put her in the car to go to school she throws up fluids everywhere and shakes. Everytime she has a flare up the stress on me and h
  3. For those of you whose children take Vistaril (Hydroxyzine) for Anxiety, what is the dosage and how often do you give it? My daughter is 5.5 and I requested it for her pandas induced anxiety to see if it would help. She prescribed 10 to 15mg every 8 hours. My insurance nearly denied it because it said it was a HIGH dosage.... but everywhere I read online says 50mg over divided doses for under 6.. So that is really conflicting.. Just curious what dosage pandas kids were prescribed.
  4. Last year at pre-school when her PANS flared up I did try sitting outside her classroom, but it made her worse. She had to constantly check I was there. She does better with a swift hug & kiss. If I am confident she can go, she is more confident she can do it. But she will still cry through out the school day, mainly when switching activities. And that is part of the reason I am still making her go, even on her worst days, is that I don't want "Mr. Worry" to win..... But some days it's just so hard.. I just want to take her out for a few weeks... let the abx work.. and reduce stress...
  5. Thank you Dedee for your insight! I agree.. I just get nervous at keeping her at home because I don't know how many days she can legally miss (even with a doctors note).. I hear horror stories about parents going to jail for truancy so it scares me! She's only missed 3 or 4 days the entire school year. Keeping her home seems to INCREASE her anxiety.. because she knows she's suppose to be at school. So if I keep her out I would have to lie to her and say school is cancelled or something! I keep hearing about this allergy medicine that also helps with anxiety.... Visitril? I wonder if that's
  6. So we're in week 2 of flare up for my DD age 5. She's on day 3 of antibiotics. Things are SO hard around here. Main stressors are just commitments.. like school. She wants to go but her anxiety is so bad about everything she won't eat.. and the little I can get her to eat she will vomit all over herself before school. She physically shakes and she just looks MISERABLE. So.. all morning I see her ocd/anxiety building up and building up... I get her dressed for school.. she pukes up her breakfast on herself.. change clothes... then we're 2 minutes away from the school and she does it again.
  7. So.. as I've posted before... my daughters pans/pandas flares up EVERY spring like clock work. Only in the spring. Her pediatrican couldn't give me an answer but I was thinking... Do allergens lower her immune system and therefore make her more susceptible to a pandas episode? Maybe she is allergic to something in the spring that just tanks her system...... I am wondering how I could prevent it, if that's the case?
  8. Is it common to have a low grade fever during an exacerbation? My daughters OCD/Anxiety/School refusal came on suddenly monday correlated with a low grade fever. Today she has a low grade fever of 100.3, flushed cheeks and is actually one of her worst days so far. She keeps repeating the same thing over and over and she doesn't seem "there".. also started a throat clearing tic this morning. She's on a 5 day steroid burst but no antibiotics yet. Her Nuero appointment is on Monday and I am assuming she'll prescribe some while we wait for lab results. Also, how do you get treatment quickly
  9. I took my 5 year old to her pediatrician while we wait for her nuero appointment. I asked if we could treat her for allergies as an "experiment" as her OCD only appears in the spring. She prescribed a 5 day course of prednisolone, zyrtec and nasal spray. All her meds were given a few hours before Kindergarten started. She had a melt down before school not wanting to go which is typical during an exacerbation. I had to peel her out of the car and she was just a wreck. Was very hard to drop her off today. I expected her to be a mess when I picked her up.. but.. SHE WAS HAPPY. CALM. She asked
  10. My daughters Pandas has starts in March un-related to strep and is completely gone by June for the last 3 years. With out any intervention or antibiotics it goes away on it's own. Does anyone else have a similar experience? With my research I seem to read a lot of cases where it's on and off the whole year. Also, after it's over she is 100% normal again with nothing lingering.
  11. Thank you for all your advice. Right now getting her to school isn't the problem but something will trigger her to start crying while she is at school and the teacher can't calm her down. So she ends up sitting in the nursing station wanting me. But she physically shakes and makes herself very sick. When she was younger something would trigger it, for example, the water fountain. One of her irrational fears was that the water was going to take her skin off. When she is not having a pandas episode (march through june) she has no problem going to school.. infact, she doesn't seem to remember wh
  12. When she was 3 it was strep, when she was 4 it was Mycoplasma pneumonia, and I have to wait until Monday to figure out what it is this time. But you are right, it sounds like some allergy related? But could allergies cause something this severe? Her nuerologist, Dr. Alarcio, said it wasn't anything to do with allergies. But the fact that it is every March like clockwork is just the strangest thing. But her symptoms are completely debilitating. When she was 3 she would repeat the same question over and over as if she had Tourrettes or something? Every year it completely turns the whole
  13. My daughters PANS or PANDAS is back, as predicted, as this is the third year in a row it's reared it's ugly head in March. She's had an episode in March at age 3,4 and now 5. Comes on very sudden, literally overnight, suddenly fearful of things she's never been scared of before, has extreme separation anxiety, asks repetitive reassurance questions, only talks about one subject, etc. As she gets older it looks a little different but I can immediately tell the change in her. When she was 3 it lasted from March to and slowly faded by July. Last year from March and 100% better by June. So
  14. Hi All, First of all I just wanted to say I don't wish these circumstances on anyone but it is a relief to know I am not alone with what my daughter, aged 4 is going through. A little back ground: Last Spring when she was 3.5 years old, out of the blue, my daughter started repeating the same question over and over (related to a sudden fear something was wrong with her foot). If it were possible to count how many times she'd said it, It wouldn't surprise me if it was in the thousands per day. Every moment of everyday she spent checking her feet, unable to wear shoes. Before we knew it we were
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