khen

Hi everyone, We wanted to post and let the Canadian members know about 3 confirmed screenings so far of the PANDAS documentary My Kid is Not Crazy by Tim Sorel. Ottawa On area on May 11 -https://centrewakefieldlapeche.ca/event-2456054/Registration Oakville, On on May 13 - http://mykidisnotcrazyoakville.bpt.me/ Calgary, AB- on June 3 https://www.eventbrite.com/e/my-kid-is-not-crazy-movie-scre… Please visit the above ticket sites to purchase tickets and get more info for these great events. We also have a parent in our Ontario support group who is a talented photographer and writer. She has been putting together a slide show to show at the screenings to bring awareness to how many children in Canada are affected and what kind of impact it can have. Doctors in Canada desperately need to see their faces and hear our voices to know this exists and needs recognition now. If you are interested in helping to make this project a success can you please send any of the following to jennyducharme@outlook.com. : a before and after photo of your child or just a current photo now with either their first name, age and city/province or you can send a quote with name, age, city/province or you can simply send her a name/age/city all on its own. She will work with you to help you feel the most comfortable with what is submitted. No last names please. She has been working on this for some time now and hopes to finish up by the end of the week so please send anything you can in asap. Or if you are interested in hosting a screening in your city please contact me for more information. Much appreciated! Kerry

Thank you so much for signing !

Hi everyone, I have not posted in this forum in quite some time, mostly because my kids have been doing pretty well over the last couple of years. However, in the beginning, this forum was a lifesaver and also my link to finding other Canadian parents at that time. I hope it is permitted that I post this here and if not no hurt feelings if it is taken down.... I just wanted everyone to know that the organization PANDAS/PANS Ontario that I co-founded a few years ago is working on a petition to the Canadian Paediatric Society asking them to create a position statement and practice point for PANDAS/PANS and to make it available to their members immediately. We are really struggling still for quality care in our country and especially in Ontario. We're hoping that this will be a start to making some positive change. Please check out the link to the petition and please consider commenting about your story at the bottom and sharing it with as many people as you can. https://www.change.org/p/canadian-paediatric-society-educate-your-members-about-pandas-pans-and-help-our-children?source_location=minibar Thanks for listening! And Ontario parents...if you haven't connected with us and are looking for local support and other families from your area to discuss practitioner options and be involved in our events check us out here.... https://www.facebook.com/ppontario.org/ https://www.facebook.com/groups/pandaspansontario/ Much love...Kerry

I figured as much. Thanks so much for your reply.

Hi Everyone, Just wondering if anyone has any good links for reputable, encouraging research papers on Pandas/Pans etc. I'm in Ontario, have been trying to get a diagnosis for almost 8 months now for my 5 yr old son and am seeing a new doctor next month. I'd like to be able to bring some fact based, helpful stuff along with me this time. I'd have gone to one of the US specialists if I could afford it but haven't been able to make that happen yet. This new doc is a developmental neurological pediatrician and I am really hoping she will be more open or knowledgeable of this whole thing. Also, unrelated to the topic....my son is doing this new thing where he is always repeating what people say or things he hears on tv in this weird matter of fact way. Is this a common thing for anybody else? I've also had my daughter, 6 seen by a naturopath for chronic yeast issues and have found out that on top of having high yeast and parasite levels she also has high metal toxicity and chemical toxicity levels. They likened it to their Autism patients' levels. This leads me to think that maybe my daughter could be headed down this road also..or maybe already is? She had some transient tics as a small child and for the last year or so has been increasingly defiant and full of rage when asked to do the tiniest of tasks, huge temper temper tantrums. Any advice would be appreciated. I know this can run in siblings and I also have a 2 year old girl.