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khen

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  1. Hi everyone, We wanted to post and let the Canadian members know about 3 confirmed screenings so far of the PANDAS documentary My Kid is Not Crazy by Tim Sorel. Ottawa On area on May 11 -https://centrewakefieldlapeche.ca/event-2456054/Registration Oakville, On on May 13 - http://mykidisnotcrazyoakville.bpt.me/ Calgary, AB- on June 3 https://www.eventbrite.com/e/my-kid-is-not-crazy-movie-scre… Please visit the above ticket sites to purchase tickets and get more info for these great events. We also have a parent in our Ontario support group who is a talented photographer and w
  2. Hi everyone, I have not posted in this forum in quite some time, mostly because my kids have been doing pretty well over the last couple of years. However, in the beginning, this forum was a lifesaver and also my link to finding other Canadian parents at that time. I hope it is permitted that I post this here and if not no hurt feelings if it is taken down.... I just wanted everyone to know that the organization PANDAS/PANS Ontario that I co-founded a few years ago is working on a petition to the Canadian Paediatric Society asking them to create a position statement and practice p
  3. I figured as much. Thanks so much for your reply.
  4. Hi Everyone, Just wondering if anyone has any good links for reputable, encouraging research papers on Pandas/Pans etc. I'm in Ontario, have been trying to get a diagnosis for almost 8 months now for my 5 yr old son and am seeing a new doctor next month. I'd like to be able to bring some fact based, helpful stuff along with me this time. I'd have gone to one of the US specialists if I could afford it but haven't been able to make that happen yet. This new doc is a developmental neurological pediatrician and I am really hoping she will be more open or knowledgeable of this whole thing.
  5. HI, just wondering what other people's experiences are with ibuprofen use, the frequency of use, the results or safety of it? Our doctor has us giving it to our son three times a day for four weeks during a flare up to test out and create a timeline of symptoms while trying to determine if he has Pandas or not. It does seem to make a huge difference for our little guy but I am worried about the side effects. Also have been trying to find a doctor in the US to see us as we're from ontario without a knowledgeable pandas doctor. Due to costs I am looking for one that would not involve much tr
  6. Hi Everyone...just filling you in on what happened at our appointment yesterday. As we were aware before we went there, he even stated that he does not have much experience with this but was happy to look into it. He was really pleasant to talk to. He took a brief history, but was basing his findings about my son mostly on the psychiatric evaluation that my doctor had forwarded with the referral. I found this a little frustrating because this was a psychiatrist who spent only five minutes with our son and diagnosed the behaviour (ocd, gad) and not a cause for it. I hadn't even heard of pan
  7. Thank you so much for your responses! We are headed to Hamilton tomorrow...2.5 hr trip for us! I will definitely let you know how it all goes when we get back. Nice to hear from you momcap...if we end up with the diagnoses we will definitely be needing to apply for that program you were speaking of. We have no extra money in the budget to be travelling to the US(unless anyone knows of a doc in the Detroit area) let alone paying for the care and medication. If you still have my email maybe you could pass the info on? I am just so thankful that because of moms like you on the forums I am ab
  8. Hi Everyone...I was so happy to see this post today. I've suspected Pans/Pandas for my son for a couple of months now. Only after a lovely stranger was kind enough to suggest I check into it after I commented on a blog of hers one night. I never would have even known about this possibility. I too am from Southwestern Ontario and no one in my city has even heard of this or willing to discuss it with us. Very frustrating! Luckily our family doctor agreed to a referral to an immunologist that was recommended in Hamilton. His name is Dr. Dent at McMaster. Has anyone heard of him or seen him?
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