Mayzoo

We tried low does zoloft, with minimal improvements, but no real negatives that I am aware of. We moved onto to lemon balm 500mg three times a day since it worked better for our kiddo and has a lower side effect profile.
 
I would definitely go with prophylactic abx for now, even if only to lower risk of future infections. Yes, they do reduce inflammation as well.

Words I never thought I would be saying again, I have said three times in the last two days .
 
"Honey, please turn the TV down."
 
She has been listening to it so low that I could not understand most of what was said (and I am midly sound sensitive). She has required subtitles for some time now, and part of that is due to a love of reading and part may be she cannot really understand every either at the low levels she must listen to it at. She has been watching the TV between 6-8 volume but now she is listening to it between 12-15. Too loud for me, but I am thrilled none the less.
 
How many parents are tickled pink to be telling their kiddos to turn something down .

Tomatos are in the nightshade category, and are high alkaloids foods, which are hard to digest for some people. However, the plan I am trying to follow is by Dr. Weil and he recommends increasing tomato intake.
 
When comparing resources, it can get very confusing. Do the research, then ultimatley, like everything else, you have to make the best choices you can.

Here is the one I order. I have prime and the price it shows for me is $17.77 for 120 of the 750mg capsules.
 
http://www.amazon.com/BioPerine-vegetarian-capsules-Pure-Anti-Inflammatory/dp/B00DUYYUNQ/ref=sr_1_4?s=hpc&ie=UTF8&qid=1398634148&sr=1-4&keywords=curcumin+%2B+pure
 
I think it is in an "0" size capsule. It is bigger than a zithromax but smaller than augmentin. Yes, kiddo will swallow any size pill and several at a time actually.

The 50-50 natural/peppermint mix was a success this morning. She preferred it over the peppermint straight.
 
She took a shower yesterday and was upset at the start, but settled down during the shower. She has not taken a shower without being upset all the way through and for an hour or more after in as long as I can remember. I have had to force her to take showers for about a year now.

The 50-50 natural/peppermint mix was a success this morning. She preferred it over the peppermint straight.
 
She took a shower yesterday and was upset at the start, but settled down during the shower. She has not taken a shower without being upset all the way through and for an hour or more after in as long as I can remember. I have had to force her to take showers for about a year now.

The OP is 4.5 years old. I do not know if this poster is still around or not.

The probiotic should be given 2 hours away from the zithromax or it may not be effective (abx killing beneficial bacteria of probiotic).
 
Symptoms can go up with successful treatment if you are having die off and she is having issues detoxing the die off. Charcoal two hours away from other meds, milk thistle, lemon water, etc can all be good ways of reducing symptoms if they are related to detox problems.

We opted to not do this test. Kiddo was text book PANDAS, and we had already done about 5000.00 worth of other testing for co-infections. We could not justify another 1000.00 for a test that would only tell us what we and the doctor already accepted as fact.
 
I can see needing the test when the case is not as clear cut as our kiddo was, if you have doubts, or if you are still fighting with a doctor.

My daughter's ASO (6) and anti-Dnase (86) are always low even when she was in the middle of a 60 day strep episode. Further investigation showed she is immune compromised, so she does not make antibodies the way she should.

My daughter's ASO (6) and anti-Dnase (86) are always low even when she was in the middle of a 60 day strep episode. Further investigation showed she is immune compromised, so she does not make antibodies the way she should.

The urine tests will give you a picture of what is going on absorption wise in this moment in time only. The 23andme test gives you tools for a life-long plan. We did both so I could see how her absorption was on her current regimen, and I wanted to know for the future what to look out for as well.
 
For us, my kiddo has a lot of other dxs going on as well, so I wanted to maybe get one step ahead of a possible serious issue if I could. Too many other dxs snuck up on me since the symptoms to those were also part of what she already had been diagnosed with. With the 23andme, I had a tool to look up all the symptoms for what she is at risk for so I can better identify a problem early on rather than later.

The average milk kefir does have Streptococcus thermophilus. Not all kefirs have the same bacterias and yeasts, but here is a general guide of the common ingredients found in milk kefir made from healthy grains:
 
Bacteria
Lactobacillus acidophilus
Lactobacillus brevis
Lactobacillus casei
Lactobacillus delbrueckii subsp. bulgaricus
Lactobacillus delbrueckii subsp. delbrueckii
Lactobacillus delbrueckii subsp. lactis
Lactobacillus helveticus
Lactobacillus kefiranofaciens subsp. kefiranofaciens
Lactobacillus kefiri
Lactobacillus paracasei subsp. paracasei
Lactobacillus plantarum
Lactobacillus rhamnosus
Lactobacillus sake
Lactococcus lactis subsp. cremoris
Lactococcus lactis subsp. lactis
Lactococcus lactis
Leuconostoc mesenteroides subsp. cremoris
Leuconostoc mesenteroides subsp. dextranicum
Leuconostoc mesenteroides subsp. mesenteroides
Pseudomonas
Pseudomonas fluorescens
Pseudomonas putida
Streptococcus thermophilus

Yeasts
Chamaerops humilis
Kazachstania unispora
Kazachstania exigua
Kazachstania exigua
Kluyveromyces siamensis
Kluyveromyces lactis
Kluyveromyces marxianus
Saccharomyces cerevisiae
Saccharomyces martiniae
Saccharomyces unisporus
 
http://www.culturesforhealth.com/milk-kefir-grains-composition-bacteria-yeast/#

Unlikely this will help, but when I was in school (AP kid, but not a pandas kid) I found that taking notes while reading my texts helped me to feel like I was not missing anything. I could condense a chapter down to a few pages of notes this way, and use them as a study guide for a test. This served me well for college also. I used a linear format for clarity as well.
 
I. Main topic
A. First main sub topic
1. Minor point
a. Detailed point
B. Second main sub topic
1. Minor point
2. Second minor point
II. Main topic
 
ETC......
 
Maybe this could help him speed read through, jot down the important stuff he sees, and he can feel more assured that he is not missing or will forget an important point.

Tinytreasures provided this information. Call you insurance company and ask them how much they cover for each of these cpt codes, whatever they do not reimburse, you are responsible for. That way you are not guessing.
 
 
83520 - 4 times
88230 - 1 time
86352 - 1 time

 
  
It seems to be very accurate in my kiddos case. They did cover MTHFR variations. Kiddo has one BUT only one . I would say it was worth it. There is a great documentary about the pluses and minuses of doing genetic testing, and it covers 23andme pretty well. I can find the link if you have not seen it yet.
 
I think it was worth it medially, and it has a lot of simply interesting information as well. I do not regret getting it, but then again, kiddo showed no serious disease traits either *whew*.

When we did the 23andme test, we did so as anonymously as possible. It was paid for by a distant family member, it was shipped to a friends address, and I registered it under an anonymous name. If an insurance company wants the information, of course they can get it if they try hard enough, but I wanted to make it as difficult as possible for now since it is all predictions.
 
As LLM stated, we will have to disclose any known risks or known conditions when the time comes. I see no reason to make my kiddos life any more difficult than necessary. She already would never qualify for life insurance anyway, but I see no reason to make getting medical any harder than it already is.

The inflammation from the antibodies attacking the basal ganglia is what causes most the symptoms. Steroids both drastically reduce inflammation, and they also suppress your own bodies immune system (immunosuppresant). This will reduce the amount of antibodies available to attack the basal ganglia. So, you have fewer antibodies causing the inflammation, AND a drastic reduction in inflammation already present. Both lead to a tremendous reduction in symptoms sometimes within hours, sometimes within days.
 
I am glad it was the within hours for you .

We have a pool, and I have been using 1/2 white vinegar mixed with 1/2 rubbing alcohol in kiddos ears for years after we get out of the pool. No ear aches since starting this. It works as an anti-fungal by altering the PH to an inhospitable level for fungus.
 
I will try this mixture next time kiddo has an ear ache though. She gets them in the winter sometimes.

You are welcome . I live in a tiny town over 20 minutes from a small town LOL. I shop online a lot to get the variety of what I want since a truly decent town is over 45 minutes from me. It has become second nature now for me to check amazon and ebay.
 
Hope it helps someone .

I do not know how much it is at your local store, but you can get almost anything on amazon now days. Here is the search for manuka honey:
 
http://www.amazon.com/s/ref=nb_sb_noss?url=search-alias%3Daps&field-keywords=manuka%20honey

I believe the information is very important for parents to be armed with when our kids are "medically complicated". I also believe we parents need to do everything we can to protect our kids information for as long as we can. At this time, the only way to trace my daughter's test kit back to my home is through the IP address of checking on the results. Then they will not be positive who in my house the results are for.
 
I read part of the law last night, and saw the exclusions then. Those are not really a concern to *me* on a personal level at this time since I already know my child will never qualify for life insurance, and she will likely be deemed "disabled" as soon as she turns 18. I can see how others would be very concerned about those listed exclusions.
 
I am highly cynical in that I believe, in the next 10-15 years, under the guise of making catching criminals or terrorists sooooo much easier, all genetic testing companies will be mandated to hand all their results over to the government. I also believe that in my child's lifetime we will all be required to submit to genetic testing to determine our rates. Many will say these things can never happen in Amercia, but then again, many have said there is no way Americans will ever be forced to purchase medical insurance against their will or be fined for not doing so. Times and laws are changing, and we the people do not have a vote in many of these changes.

Talk to your pharmacy. They can make a note stating she is to get a different generic from now on, though you will have to check in the bag before you leave every time to make sure they did not miss the note. Good luck.

We would stay off the internet if docs could provide relief of symptoms/diseases for our children. Who here actually wants to spend so much time researching for our children, and who would gladly give it up if our children actually were getting better in the first several attempts at medical treatment? But as it is, let's see......research what seems endlessly or stand idly by and watch our kids suffer with no apparent relief in sight? I know what I and everyone here has picked.

My only input so far is it looks like a toddler got a hold of your computer .
 
The MTHFR C677T I believe is a methyl folate mutation. LLM will be more helpful I am sure . Maybe, I can be more helpful in a few months, or maybe you can help me in a few months