Leaderboard

Hi We noticed an almost immediate improvement for the vocal tics when we started L-carnitine. However we were advised to not go above 500mg per day even though my son was adult weight & a young teen then

I don't know how to distinguish between either flare getting worse, and "bad psychological effects" from zith, and herx. I feel a little more comfortable separating out allergic reactions to meds (because they are less like PANDAS/PANS flare symptoms) - and allergic reaction would be an important reason to stop the zith right away. My bias is that it might be herx, and therefore to wait it out, perhaps lower the dose if its too hard to take. For my own kid, I don't like to pile on other detoxing ideas for the first time, because you never know if he is having some reaction to those (I thought my kid got worse on charcoal when we first tried it, but can't be sure). Do let us know how it goes.

Table and Text Excerpt from: “Treatment of Pediatric Acute-onset Neuropsychiatric Syndrome (PANS)” SE Swedo (NIMH), J Frankovich (Stanford), TK Murphy (Univ S Florida) In press, Journal of Child & Adolescent Psychopharmacology https://www.pandasppn.org/wp-content/uploads/2017/05/PANS-Clinical-Care-Standards-for-Use-of-IVIG.pdf

I'm glad you have areas to focus on--tinkering. I know it can seem like a full-time job. Camp cabins are often also musty and moldy, just throwing that out--though they may have been new, or treated for mold and hence toxic in that way. It's great you have preventive measures--and that he can go to camp. Please let us know what you discover, Tracy.

Another recipe thread. What are your favourite sugar-free recipes you've discovered over the years, the ones you use all the time? Or any other handy ways of doing things you've discovered, that aren't actually recipes? We can pass them all on here. The person who posts the best recipe... er, is a clever cook. :-) Also, you could post your requests for things you haven't found a good recipe for yet, and see if anyone can step forward with one. That's all the special diets I can think of; if anyone else thinks of one that ought to have its own thread, please start one.

The brownies were a great success, so here's the recipe I used (modified a bit from the original). They're quite easy. It's not completely sugar free the way I did it, but pretty low in sugar; the original recipe uses stevia and sugar-free chocolate chips, in which case it is sugar free. 1 American cup is 240 ml, half an American pint or slightly under half a British pint, by the way. Makes 12. Prep time 10 minutes, cooking time 20 minutes. 1 smallish banana 4 tbsp milk 4 tbsp / 100 g butter or coconut oil, melted 1 egg (can omit this or use a substitute if allergic, according to original recipe) ---- 125 g / 1 American cup plain flour ("pastry flour") (can use gluten free; if so add 1/2 tsp xanthan gum) 65 g / 1/2 American cup cocoa powder 1/2 tsp baking powder 1/2 tsp salt 1 tbsp brown sugar: that's what I used and it was plenty. The original recipe says 1 1/2 tsp pure stevia extract or 4-6 tsp Sweetleaf powdered stevia, but according to Sweetleaf's website that's supposed to be equivalent to 10 tbsp sugar, so I think the original recipe has overdone it! ---- 1/2 cupful chocolate chips (optional) 1/2 cupful chopped walnuts (optional) 1. Preheat oven to Gas Mark 4/350 F/180 C. I put the butter in there to melt. 2. Push the banana through a sieve. If you just mash it the mixture comes out lumpy. 3. Add the milk, butter and egg and whisk together. 4. Add the flour, cocoa, baking powder, salt and sugar and mix well. 5. Stir in chocolate chips and nuts if using - keep some chocolate chips back to put on top. 6. Line an 8" x 8" baking dish with parchment paper. Pour batter into dish and top with a few more chocolate chips. 7. Bake for 20 minutes. 8. Allow to cool for 10 minutes before slicing.

We always halve amounts of sugar too. Once you're used to eating less sugary things, the amount of sugar in ordinary recipes just tastes far TOO sweet! I wonder if those jars of baby food apple puree would work instead of apple sauce in recipes? I'll let you know if the brownies work with mashed banana!

I'll start: Baked banana pudding This isn't the same pudding that's sometimes called "baked bananas" - it's somewhere between that and bread and butter pudding. A hot pudding made in ten minutes, and it's good for you. These instructions look more complicated written down than they are to do. It has to be said that the result looks like something scraped out of the bin. This is normal, and it doesn't taste like it at all! (It looks more appetising once it's got yoghurt and jam on top.) Ingredients Quantities depend on the size of your ovenproof dish, these are for ours which is about 7 inches and makes enough for 3 people. 2 or 3 slices of wholemeal bread 1 or 2 bananas - should be thoroughly ripe, in fact this is a good use for slightly overripe bananas, though preferably not actually going mushy. 1 teaspoonful of mixed spice 1 dessertspoonful of raisins Milk Plain yoghurt and sugar-free jam for topping. Cut bread into fingers - cut each slice in half and each half in thirds. Line an oven-proof bowl with the pieces. Sprinkle with spice and raisins. Cut bananas into halves or thirds (depending on size), then halve each piece lengthways. Lay them flat on top of the bread. Pour on some milk - half or quarter of a pint, maybe, not sure. Bake in a medium oven for maybe 20 or 30 minutes, check from time to time to see that any sticking-up edges of the bread aren't burning too much, until it looks done. Serve with milk (the first lot of milk will all have evaporated or been absorbed by now) and yoghurt and a spoonful of jam on top. Note on sugar-free jam It's worth seeking out the kind sweetened only with fruit juice, e.g. Whole Earth or Meridian, which is labelled "Pure fruit spread" because it can't technically be sold as "jam" (at least not in this country). You probably still shouldn't go too overboard with it, as it has a fair bit of concentrated fruit sugar, but I assume it's not as bad as ordinary jam and it's worth getting just for the taste. Since they can't bulk it out with sugar, it's impossible to skimp on the fruit, so that it tastes more fruity than any ordinary jam I've ever had. I don't know why more people don't know about this!