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Our forums provide support for people dealing with neurological and related issues. Everyone joining this community should find it a safe haven where they are treated with respect, civility, and understanding.
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If you violate a guideline, you will be contacted by PM or email. We will try to resolve things amicably. We don’t like to ban members and rarely do, but this is an option.
Updated March 19, 2010
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Updated March 19, 2010
Our community blogs
My 9 year old son started to eye twitching 4 months ago. I took him to behavioral doctor and he said that it should go away within 6-12 months. He asked him to count as fast as he can to up to 200 and he did not blink or twitch once when he was counting. He is fine in the morning but I noticed that when he is around kids, get excited, tired, focused in karate or plays his xbox, his twitching gets much worse. We took him bowling last Sat. and when he was twitching all the time there. I see that stress effects him. Should I not let him to be with his cousins and other kids? He is twitching in school too. What is the chance that this will go away in fact? What are the statistics? I do not know yet if this is Transient Tic or Chronic because it has not be going on for over 12 months. He is also affraid to sleep in his room by himself and take shower by himself so I always need to be in bathroom with him...Did anyone experience something like this. Devastated Mother..
The company sent me a 3 day sample. During those 3 days, the difference we noticed in her tics was dramatic and more than enough to move me to place an order. Since it was around Christmas time, there was a delay in the shipment, so her usage was interrupted for a few days, and we did see the tics increasing during those days. On December 31st, we received the order, and by December 3rd we were able to go out with her again after being stuck in the house for over a month due to her loud tics.
To be honest, we have noticed some head jerking coming back (starting Tuesday). DD is allergic to dust/dust mite and she was exposed to it on Monday. There are other viruses going on at school as well. I am not sure but that might be the reason some tics are coming back. It is worth noting that they are less intense than they were before wearing the patches. All in all, we are very happy with the results we have seen with the patches, but still keeping our fingers crossed around here.
Hope this helps!
Source: Our experience with Repreeve
Recent EntriesLatest Entry
We have had the device now for almost three months. I can see that it helps my daughter a lot when she wears it, but she doesn't like to wear it, so we don't push it. It has helped identify, at least in my mind, the difference between her tics and compulsions, as it helps more (I'd say significantly) with tics than with the compulsions, although it seems to help some with the compulsions too. However, since she doesn't like to wear it, we're sort of back to square one. At least we have it in our back pocket, although it was a very expensive "back pocket item". It did help the other day when she started an eye rolling tic, she put it in for maybe half hour and that one stopped and so far has not come back. So that is huge.
Thank you to Sheila who sent me a link for a dentist in Seattle who we went and saw last weekend. Here is the link:
He was so very nice, saw us on a Saturday and had a few options of things to try. He tried testing for the mouthguard, he tried an FDA approved anxiety device (you can see it in the video on his website), acupuncture bandaids and he gave us a few bandaids with magnets to try as well, we haven't tried yet but will today. His philosophy is if it has helped even one person, it might help others, so try everything. We so much appreciated his willingness to help. I will post more if the route we are going turns out to be successful for us.
Hello, I am just learning how to better navigate this site, and thought I would try posting a blog. I read from Bigal about his son having success with use of a dental device used to correct TMJ/TMD. I have been trying to find a doctor in the Portland, OR area to work with to see if this might be a possibility to help my daughter but no one is interested in working with us. The five doctors I have found that do this are located in: VA, MA, WA, NY and CA. I am waiting on a call back from the WA doc as they are the closest, and I left an email with the newest one I discovered today in NY to see if he is willing to work with anyone local. The other three as I understand it are not willing to work with other doctors for various reasons. I just thought if I posted here, I might hear from others who have tried this (either successfully or not, it would be helpful to hear your story), and also if you have any ideas of how to get this information out there, as creating "demand" might help spark interest in more and more docs across the nation. Thank you to Sheila who has sent information on the Seattle doc and also on a trial going on, and to Bigal for sharing your story.
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