UPDATE: 2/17/17 We have had the device now for almost three months. I can see that it helps my daughter a lot when she wears it, but she doesn't like to wear it, so we don't push it. It has helped identify, at least in my mind, the difference between her tics and compulsions, as it helps more (I'd say significantly) with tics than with the compulsions, although it seems to help some with the compulsions too. However, since she doesn't like to wear it, we're sort of back to square one. At least we have it in our back pocket, although it was a very expensive "back pocket item". It did help the other day when she started an eye rolling tic, she put it in for maybe half hour and that one stopped and so far has not come back. So that is huge.
UPDATE: 11/1/16 Thank you to Sheila who sent me a link for a dentist in Seattle who we went and saw last weekend. Here is the link:
He was so very nice, saw us on a Saturday and had a few options of things to try. He tried testing for the mouthguard, he tried an FDA approved anxiety device (you can see it in the video on his website), acupuncture bandaids and he gave us a few bandaids with magnets to try as well, we haven't tried yet but will today. His philosophy is if it has helped even one person, it might help others, so try everything. We so much appreciated his willingness to help. I will post more if the route we are going turns out to be successful for us.
ORIGINAL POST: Hello, I am just learning how to better navigate this site, and thought I would try posting a blog. I read from Bigal about his son having success with use of a dental device used to correct TMJ/TMD. I have been trying to find a doctor in the Portland, OR area to work with to see if this might be a possibility to help my daughter but no one is interested in working with us. The five doctors I have found that do this are located in: VA, MA, WA, NY and CA. I am waiting on a call back from the WA doc as they are the closest, and I left an email with the newest one I discovered today in NY to see if he is willing to work with anyone local. The other three as I understand it are not willing to work with other doctors for various reasons. I just thought if I posted here, I might hear from others who have tried this (either successfully or not, it would be helpful to hear your story), and also if you have any ideas of how to get this information out there, as creating "demand" might help spark interest in more and more docs across the nation. Thank you to Sheila who has sent information on the Seattle doc and also on a trial going on, and to Bigal for sharing your story.
Happy New Year to all.
I am new to this site and am totally enjoying it. My problem is I am a Fix-It-Grandma and have just experienced that after my son got through his tic behavior (20 years ago)...we now have his son at 8 years old doing a complete repeat.
It is hard to go back to, we thought we were blessed by God to have our son's resolved, but now our heart goes out to our grandson. I have researched all the new behavior. I immediately settled into the visual stimulation of the TV, Video games and the stimulation. Our grandson is an ideal, perfect student, who during a Arts performance (dark & light) experienced head movements. After that, during Christmas...dark rooms with TV flicker (big screens) and new XBox and Video games, continued to progress in his tic behavior.
I recently read the GABA findings of kids with tic behavior...has anyone studied this? I am willing to help our little family to desinsitize the house, make changes in diet & environment, and I am wondering about the GABA supplements in helping.
We have another granddaughter right behind him, and a newborn of 5 months following.
Any advice, sharing, help?
My 9 year old son started to eye twitching 4 months ago. I took him to behavioral doctor and he said that it should go away within 6-12 months. He asked him to count as fast as he can to up to 200 and he did not blink or twitch once when he was counting. He is fine in the morning but I noticed that when he is around kids, get excited, tired, focused in karate or plays his xbox, his twitching gets much worse. We took him bowling last Sat. and when he was twitching all the time there. I see that stress effects him. Should I not let him to be with his cousins and other kids? He is twitching in school too. What is the chance that this will go away in fact? What are the statistics? I do not know yet if this is Transient Tic or Chronic because it has not be going on for over 12 months. He is also affraid to sleep in his room by himself and take shower by himself so I always need to be in bathroom with him...Did anyone experience something like this. Devastated Mother..