You can learn and participate on our active Forum for several conditions, including tics and Tourette syndrome. There’s nearly 5,000 topics on tics and Tourette’s alone. We’ve selected a handful of topics from among the many that have helpful feedback, or are intriguing starting topics from patients and families. As you go through the selected ones below, I hope you’ll take a minute to post a reply if you have something to add. The Forums are free and any member can participate.
I’d like to take this opportunity to thank our wonderful moderator Chemar for keeping things on track and steadfastly adding her insights. (And I’m now inspired to spend more time on the Forums myself. I confess to getting too involved in article preparation and handling organizational needs while neglecting the Forums!)
We love having participation by so many. Our readers are an amazing wealth of information.
Here’s an example of a Forum post on tics and Tourette’s that was just started. Additional interesting links are provided below.
My 8 year old daughter has had a couple of motor and vocal tics for a couple of months now. We hoped when school was out they would improve. As I have read they have been waxing and waning. She is most upset by a vocal tic…she repeats a sound over and over. At first it was the end sound of a word. Now it seems to be a g or an r most often. We started chiropractic care about a month ago. Have a neurologist appointment scheduled for mid September. What do I do next? Would greatly appreciate any guidance you can give. Feeling lost at this point.
Make sure you read Sheila’s book at the top of the page, it will really help guide you through the investigation process. Also you need to spend time working through older posts on this forum and the pinned posts at the top are very helpful.
For every child the triggers are going to be different. For many it is diet related, for my son it is primarily chemical sensitivity that sets off the tics. He also had toxic levels of aluminium in his system that we had to detox out of him. Sheila has a quote about the kids–[they] “have something in their body that they do not need, or something they need that they do not have.” This has certainly proven to be correct for us. Got the aluminium out, balanced his nutrients, removed chemicals from the house and I’ve very conscious of chemicals in the food supply as well. Now you wouldn’t know he has TS. He still only has the occasional tics, but they don’t tend to last long and are so minor that they go unnoticed by most.
Good luck with your journey, have hope that many of us have achieved good results by investigating triggers and you can make a difference, but it does take commitment and work, but so so worth it.